Dancing with Dementia


Book Description

Christine Bryden was a top civil servant and single mother of three children when she was diagnosed with dementia at the age of 46. Dancing with Dementia is a vivid account of her experiences of living with dementia, exploring the effects of memory problems, loss of independence, difficulties in communication and the exhaustion of coping with simple tasks. She describes how, with the support of her husband Paul, she continues to lead an active life nevertheless, and explains how professionals and carers can help. This book is a thoughtful exploration of how dementia challenges our ideas of personal identity and of the process of self-discovery it can bring about.




Slow Dancing with a Stranger


Book Description

A New York Times Bestseller Emmy-award winning broadcast journalist and leading Alzheimer’s advocate Meryl Comer’s Slow Dancing With a Stranger is a profoundly personal, unflinching account of her husband’s battle with Alzheimer’s disease that serves as a much-needed wake-up call to better understand and address a progressive and deadly affliction. When Meryl Comer’s husband Harvey Gralnick was diagnosed with early onset Alzheimer’s disease in 1996, she watched as the man who headed hematology and oncology research at the National Institutes of Health started to misplace important documents and forget clinical details that had once been cataloged encyclopedically in his mind. With harrowing honesty, she brings readers face to face with this devastating condition and its effects on its victims and those who care for them. Detailing the daily realities and overwhelming responsibilities of caregiving, Comer sheds intensive light on this national health crisis, using her personal experiences—the mistakes and the breakthroughs—to put a face to a misunderstood disease, while revealing the facts everyone needs to know. Pragmatic and relentless, Meryl has dedicated herself to fighting Alzheimer’s and raising public awareness. “Nothing I do is really about me; it’s all about making sure no one ends up like me,” she writes. Deeply personal and illuminating, Slow Dancing With a Stranger offers insight and guidance for navigating Alzheimer’s challenges. It is also an urgent call to action for intensive research and a warning that we must prepare for the future, instead of being controlled by a disease and a healthcare system unable to fight it.




Dancing with Granddad


Book Description

For parents and children looking for a way to open a dialogue on how Alzheimer's disease can affect their loved ones.




Dancing on Quicksand


Book Description

This moment of hope for those who must accept and embrace a new version of Mom or Dad . . . shows us that while we lament what we are loving, there are endless possibilities for enjoying the moments that remain (Fawn Germer, author of Hard Won Wisdom).




Dancing with Memories


Book Description

Dancing with Memories is a children's picture book about living well with dementia. Lucy lives with dementia - she wishes she didn't, but she does. S She is full of life and determination and although less competent than before, Lucy but can still do a lot. "My brain has changed", she says, "but I am still Lucy." Lucy knows her brain doesn't work like it used to, but doesn't always understand the implications. This leads to adventures and challenges. One adventure happens the day of her granddaughter's wedding. Lucy is to be picked up for the wedding by her daughter but decides to make her own way on the bus. Lucy becomes lost and confused on her way to the wedding. She is in danger of missing the wedding altogether! After a frustrating few hours, she finds her way home through the kindness and attentiveness of people in her community, including ten-year-old Reuben and his kelpie, Rejy. Lucy does make it to her granddaughter's wedding. Dancing with Memories focuses on wellbeing rather than deficit. It re-envisions what's possible by enjoying people living with dementia, more than fixating on what is lost. It is generative, not despairing; it informs and empowers. It centres on a community aware of the respectful support people living with dementia need and deserve - a dementia-friendly community, where people take time to notice, listen and act. Supported by Professor Ralph Martins' Q&A and Maggie Beer's healthy lunchboxes, Dancing with Memories provides a platform to raise awareness, alleviate fears and facilitate conversation with children around brain health. It highlights the importance of a life-long healthy diet and lifestyle, and empowers children to engage with hope and intent in the growing social challenge of dementia.




Finding Life in the Land of Alzheimer's


Book Description

"An excellent book…an emotional and ruminative anchor...She leaves her readers with hope.”-- San Francisco Chronicle One journalist's riveting and surprisingly hopeful in-the-trenches view of Alzheimer's Nearly five million people in the United States are living with Alzheimer's. Like many children of Alzheimer's sufferers, Lauren Kessler, an accomplished journalist, was devastated by the disease that seemed to erase her mother's identity even before claiming her life. But suppose people with Alzheimer's are not slates wiped blank. Suppose they experience friendship and loss, romance and jealousy, joy and sorrow? To better understand this debilitating condition, Kessler enlists as a bottom-of-the-rung caregiver at an Alzheimer's facility and learns lessons that challenge what we think we know about the disease. A compelling, clear-eyed, and emotionally resonant narrative, Finding Life in the Land of Alzheimer's offers a new optimistic look at what the disease can teach us and a much-needed tonic for those faced with providing care for someone they love. Previously published as Dancing With Rose.




Dancing with Elephants


Book Description

Based on the popular blog of the same name, Dancing With Elephants includes insightful interviews with chronic disease experts Toni Bernhard, Lucy Kalanithi, and Patch Adams. Sawatsky's landmark book provides support that only a fellow traveler down this road can offer. If you like touching stories, mindful wisdom, and a touch of irreverent humor, then you'll love Sawatsky's life-changing book.




Dancing with Lewy


Book Description

A woman recounts dementia’s toll on her family and shares lessons she learned that can provide help and hope to caregivers tending to their own loved ones. Within Dancing with Lewy, readers meet Lee and Nancy. Lee was born into a large farming family just before the Great Depression. He was a World War II Veteran, self-made businessman, artist, poet, and a man who would give a stranger his last nickel. Lee’s third daughter, Nancy, is practical, organized, pragmatic, a writer, and equals her father in a passion for life. Nancy was determined to take the helm when Lee’s mind began “dancing” with Lewy body dementia even though he resolved to remain independent while his mind slipped away. Within Dancing with Lewy, readers also meet God as the one who carried the family through this storm and offered grace to the weariness of the family. This memoir is written through Nancy’s eyes while original poetry by Lee is woven throughout to provide readers a glimpse into his outlook to life. In Part I of Dancing with Lewy,Nancy revisits Lee’s young life, her own years growing up with her dad, and the toll dementia took on their family. She shares the pain of grief when her mom died of cancer and her dad became even more confused. In Part II, she shares the lessons she learned along the way and offers hope for caregivers tending to their loved one(s) who have a debilitating illness. Nancy offers practical advice for caregivers such as how to: Get legal documents in order Find community resources Choose a nursing home and partner with the staff Treat their loved one with respect and dignity




Dancing with Alzheimer's


Book Description

Once a wealthy and sophisticated European dancer, Elizabeth 'Betty" Bromley is now spiraling downward into the abyss that is Alzheimer's disease-a world that relentlessly tightens its grip on the woman's sanity. At one time rich and powerful, Lolita Rimblas is on the brink of losing everything. Fate brings the two women together, and while they fight to hold on to Mrs. Bromley's memories, Lolita struggles to forget her own. Both Mrs. Bromley and Lolita are caught in a vortex of emotional turmoil that fills each day with despair, embarrassment, laughter, and eventually, acceptance. Lolita never imagined herself to be chasing after a dog and cataloguing its feces, preparing a dinner party for a ghost, fending off flashlight attacks in the middle of the night, or defending herself from affronts to her morality and self-esteem. But as days and nights fuse together, the two women develop a bond wrought from need, pity, loyalty, and a love that even Alzheimer's can't break. As Lolita helps Mrs. Bromley retain some of the dignity that Alzheimer's has taken away, she finds herself having to choose between following her lifelong dream or listening to the dictates of her unrelenting conscience.




The Forgetting


Book Description

NATIONAL BESTSELLER A powerfully engaging, scrupulously researched, and deeply empathetic narrative of the history of Alzheimer’s disease, how it affects us, and the search for a cure. Afflicting nearly half of all people over the age of 85, Alzheimer’s disease kills nearly 100,000 Americans a year as it insidiously robs them of their memory and wreaks havoc on the lives of their loved ones. It was once minimized and misunderstood as forgetfulness in the elderly, but Alzheimer’s is now at the forefront of many medical and scientific agendas, for as the world’s population ages, the disease will touch the lives of virtually everyone. David Shenk movingly captures the disease’s impact on its victims and their families, and he looks back through history, explaining how Alzheimer’s most likely afflicted such figures as Jonathan Swift, Ralph Waldo Emerson, and Willem de Kooning. The result is a searing and graceful account of Alzheimer’s disease, offering a sobering, compassionate, and ultimately encouraging portrait.