Diary of a CF Kid


Book Description

Are you a CF kid? You're not alone! When Tim Sweeney was (much) younger, he wished he had a book like this to help him navigate the ups and downs of having cystic fibrosis. Tim was born with cystic fibrosis at a time when there wasn't a lot known about it. Throughout Tim's life, he has faced challenge after challenge and never gave up. As a result, Tim has learned all of the tools he uses to be a CF Warrior everyday. Tools such as exercise, good eating habits, compliance with breathing treatments and medications, and having the right mindset. Just like a superhero, Tim relies on his family, friends, and doctors to help, but he also relies on himself. In Diary of a CF Kid, Tim teaches the life lessons he's learned, such as trust, self-esteem, integrity, courage, and many others, to help be a CF Warrior who is winning daily battles. Tim's mission in life is to live with health and happiness. Living with CF has many challenges and it helps to be inspired by someone who has seen every stage of CF including 3 life saving surgeries (and even managed to run a marathon less than year after his double lung transplant). Tim has been a personal trainer for over 20 years with a wife and 3 boys. Let's face it, a lot of kids find reading too boring and not as exciting as an iPad. Diary of a CF Kid is told in the entertaining Diary of a Wimpy Kid style with funny sketches and stories that will make you laugh, engage, be inspired, and learn. Tim's diary also brings to life important topics for a CF kid. Each diary entry focuses on a new value with examples that include historical figures such as Helen Keller, the Wright Brothers, Gandhi, Nelson Mandela, and many others. Tim also uses his own experiences to teach valuable lessons that have made a huge impact on his life. Learning from such real life heroes will inspire CF kids to live a life with health and happiness. This book is for a CF Kid. It is also for the parents of a CF kid who want to know how their kid experiences the world. How do CF kids perceive CF? What are the fears and hopes of a CF kid? What are some of the values that are important for a CF kid to practice daily? Perfect as a bedtime story, neatly divided into small sections, Diary of a CF Kid is a one of kind book for CF Kids.




Robyn's Book: A True Diary


Book Description

The author, suffering from cystic fibrosis, reminisces about her childhood and the advances in medicine for CF.




Salt in My Soul


Book Description

The diaries of a remarkable young woman who was determined to live a meaningful and happy life despite her struggle with cystic fibrosis and a rare superbug—from age fifteen to her death at the age of twenty-five—the inspiration for the original streaming documentary Salt in My Soul “An exquisitely nuanced chronicle of a terrified but hopeful young woman whose life was beginning and ending, all at once.”—Los Angeles Times Diagnosed with cystic fibrosis at the age of three, Mallory Smith grew up to be a determined, talented young woman who inspired others even as she privately raged against her illness. Despite the daily challenges of endless medical treatments and a deep understanding that she’d never lead a normal life, Mallory was determined to “Live Happy,” a mantra she followed until her death. Mallory worked hard to make the most out of the limited time she had, graduating Phi Beta Kappa from Stanford University, becoming a cystic fibrosis advocate well known in the CF community, and embarking on a career as a professional writer. Along the way, she cultivated countless intimate friendships and ultimately found love. For more than ten years, Mallory recorded her thoughts and observations about struggles and feelings too personal to share during her life, leaving instructions for her mother to publish her work posthumously. She hoped that her writing would offer insight to those living with, or loving someone with, chronic illness. What emerges is a powerful and inspiring portrait of a brave young woman and blossoming writer who did not allow herself to be defined by disease. Her words offer comfort and hope to readers, even as she herself was facing death. Salt in My Soul is a beautifully crafted, intimate, and poignant tribute to a short life well lived—and a call for all of us to embrace our own lives as fully as possible.




Dear Nobody


Book Description

"A rare, no-holds-barred documentation of an American teenager's life." —Publishers Weekly Told through the actual diary entries of a real teenage girl, Dear Nobody chronicles Mary Rose's struggles with drug addiction, bullying, and a deadly secret in this raw, authentic book. Her story will inspire you—and remind you that you're not alone. They call me a freak. I'm sick of it. It makes me want dangerous, bad things. Drugs—hard drugs—and people who are bad for me, but I don't care, because I'm so lonely and no matter what their intentions are at least they're talking to me... They say that high school is supposed to be the best time of your life. But what if that's just not true? More than anything, Mary Rose wants to fit in. To be heard. To be loved. And she'll do whatever it takes to make that happen. Even if it costs her her life. Compelling and unflinchingly honest, Dear Nobody is perfect for readers looking for: contemporary young adult nonfiction true stories about drug addiction books like Go Ask Alice and Lucy in the Sky stories that spark conversation about issues teens face




Diary of a Wimpy Kid


Book Description

Greg records his sixth grade experiences in a middle school where he and his best friend, Rowley, undersized weaklings amid boys who need to shave twice daily, hope just to survive, but when Rowley grows more popular, Greg must take drastic measures to save their friendship.




Robyn's Book


Book Description

Robyn expresses her thoughts about growing up while suffering from cystic fibrosis, a disabling disease that gets worse as she gets older. Contains stories, thoughts, poems, and an essay.




Send for a Superhero!


Book Description

Comic-book action meets picture-book adventure in this exciting and funny outing from beloved author Michael Rosen and illustrator Katharine McEwen. Tune in as a father reads his children a bedtime story about the exploits of two villains, Filth and Vacuum, and their wicked plan to suck all the money out of the banks and cover everything with muck and slime. Who is strong enough to save the world? Not Steel Man, nor Flying Through the Air Very Fast Man, nor even Incredible Big Strong Green Man. It may just be a job for clever young Brad Forty, who transforms himself into . . . Extremely Boring Man! His superpower is making people fall asleep — but will it work on the children listening to this story?




Having Cystic Fibrosis Is A Lot Like Being A Superhero


Book Description

This book tells the story of Jack, a boy who has a genetic condition called Cystic Fibrosis, and his Cystic Fibrosis Superpowers. Cystic Fibrosis affects approximately 1 in every 2,500 people of European ancestry, and also affects people of other ancestries, but less frequently. This book is intended to serve as a way to communicate with children about Cystic Fibrosis, to embrace and foster acceptance of the human condition, and help children understand what Cystic Fibrosis means for themselves or someone they know who is affected by Cystic Fibrosis.




My DNA Diary


Book Description

Have you heard of DNA? There's me, Alina and my three friends. Oh, and lots of cousins. How we live our life affects how you live yours. It's called genetics and this book will show you how it works. A gentle introduction to genes, chromosomes, inheritance, oxygen transport and sickle cell anaemia for 9-12 year-olds.




The Adventures of Miss Messy Suzie Mcgoo and the Cuff Cough Crew


Book Description

Meet Miss Messy Suzie McGoo, a delightful little girl who lives for adventure. Follow her as she embarks on her latest adventure - a trip through the jungle - where she and you will meet beautiful animals, see fantastic sights, and learn a thing or two about her and just how extraordinary and brave she is.This book will delight parents and children alike and will teach both about what it's like to live and thrive with cystic fibrosis and the special lung therapy that makes her life easier and helps her remain healthy and strong.Subject matter ?Teaching children with Cystic Fibrosis how to complete the lung therapy, the "Huff Cough". We have renamed it the "Cuff" Cough as the "C" alliteration more easily achieves the desired results, without in person training. Theme?A lighthearted and whimsical book, designed to act as an educational tool, while also helping normalize having to complete lung therapy. Target audience?Families affected by Cystic Fibrosis?Families affected by lung disease ?Children age 5 -10Main character?Miss Messy Suzie McGooProblem it will solve or lesson it will teach?The "Cuff Cough" lung therapy