Disability, Chronic Disease and Human Development


Book Description

Disability is part of human life and most of us will, at some time during our lifetime, experience an impairment or difficulty in our functioning, either by disease or in our old age. Once upon a time, disability in a person resulted in many kinds of disadvantages and shunning from society as a whole, but in our time society has changed attitudes toward this part of our population. The idea today is to transform a disability into an ability and to support and help this population in any way possible via treatment, interventions or new technology to make a better quality of life and an optimal functioning, despite the disability or chronic disease. Chronic disease for example is a long lasting condition that can be somehow controlled, but not cured. This lifespan approach to chronic diseases was the topic of the Gerry Schwartz and Heather Reisman 4th International Conference on Pediatric Chronic Diseases, Disability and Human Development held in Jerusalem, Israel during January 21-23, 2015 and in this book you will find the abstracts from the conference.




Chronic Disease and Disability


Book Description

"Neurodevelopmental disabilities are a diverse group of chronic disorders that begin at any time during the development process - from conception through completion of adolescence. The impact of such disabilities last throughout an individual's lifetime. The underlying basis for these disorders lies in fundamental deficits in the developing brain due to genetic, prenatal, perinatal, metabolic, and other factors. Developmental disabilities affect 17% of individuals younger than 18 years of age in the United States. Prevention along with early recognition and intervention is critically important to mitigate the adverse impact of developmental disabilities, both at an individual level and at societal level. Children and adults with disabilities need routine preventive and acute medical care and access to services similar to those who do not have such disabilities. The quality of life and health outcomes for individuals with disabilities largely depend on the access and adequacy of community-based support systems. With appropriate support, most individuals with disability can maintain relative independence and productive life. In this book we have gathered some recent selected topics on neurodevelopmental disabilities which we hope will be of interest for the reader"--




Chronic Disease and Disability in Childhood


Book Description

Looking back on history and especially medical history, children born with significant congenital anomalies, genetic and metabolic diseases or disabilities perished at an early age, and very few survived into adolescence and even less into adulthood. Congenital heart disease, major errors in metabolism, cancer, cystic fibrosis and many other diseases were fatal. Today with advances in medical knowledge and technology, many of these patients now live a longer life and sometimes even close to the average life expectancy for the country. In this way, childhood diseases have become lifelong diseas.




Public Health Ethics: Cases Spanning the Globe


Book Description

This Open Access book highlights the ethical issues and dilemmas that arise in the practice of public health. It is also a tool to support instruction, debate, and dialogue regarding public health ethics. Although the practice of public health has always included consideration of ethical issues, the field of public health ethics as a discipline is a relatively new and emerging area. There are few practical training resources for public health practitioners, especially resources which include discussion of realistic cases which are likely to arise in the practice of public health. This work discusses these issues on a case to case basis and helps create awareness and understanding of the ethics of public health care. The main audience for the casebook is public health practitioners, including front-line workers, field epidemiology trainers and trainees, managers, planners, and decision makers who have an interest in learning about how to integrate ethical analysis into their day to day public health practice. The casebook is also useful to schools of public health and public health students as well as to academic ethicists who can use the book to teach public health ethics and distinguish it from clinical and research ethics.




Disability and Chronic Disease


Book Description

Once upon a time, paediatrics was involved with infectious disease and acute disorders, but a new pattern of morbidity has emerged. Social difficulties, behavioural problems, developmental difficulties, disabilities and chronic disease have become main parts of the scope of paediatric practice. Among adults, multiple chronic disease is increasingly prevalent, whereas the prevalence of impairment and disability remain stable, but substantial and therefore, present day health professionals must be aware of disability and chronic disease. Just a few decades ago, children born with significant congenital anomalies or genetic and metabolic diseases perished at an early age and very few survived into their teens and even less into adulthood. Congenital heart disease, major errors in metabolism, cancer, cystic fibrosis and many other major diseases were fatal. Because of that, many physicians in adult primary care did not have the opportunity to see patients with these problems and thus were unable to learn how to care for them. With major advancements in medical knowledge, technology, imaging techniques, surgical skills and pharmaceutical products as well as prosthetic devices, many of these patients now live much longer lives and sometimes even close to the average life expectancy for the country, at least in the developed world. With that, a new medical care challenge has been created and we have to take a life span approach.




Neurological, Psychiatric, and Developmental Disorders


Book Description

Brain disordersâ€"neurological, psychiatric, and developmentalâ€"now affect at least 250 million people in the developing world, and this number is expected to rise as life expectancy increases. Yet public and private health systems in developing countries have paid relatively little attention to brain disorders. The negative attitudes, prejudice, and stigma that often surround many of these disorders have contributed to this neglect. Lacking proper diagnosis and treatment, millions of individual lives are lost to disability and death. Such conditions exact both personal and economic costs on families, communities, and nations. The report describes the causes and risk factors associated with brain disorders. It focuses on six representative brain disorders that are prevalent in developing countries: developmental disabilities, epilepsy, schizophrenia, bipolar disorder, depression, and stroke. The report makes detailed recommendations of ways to reduce the toll exacted by these six disorders. In broader strokes, the report also proposes six major strategies toward reducing the overall burden of brain disorders in the developing world.




Disability in America


Book Description

This report focuses on preventing potentially disabling conditions from developing into disabilities and on minimizing the effects of such conditions on a person's productivity and quality of life. It describes disability as a social and public health issue and not just a physical condition. The report begins with an executive summary, an introduction which discusses prevention issues in general and defines concepts, and a list of 27 recommendations. Subsequent chapters discuss: (1) the magnitude and dimensions of disability in the United States; (2) a conceptual approach to disability prevention and use of the tools and principles of epidemiology; (3) major areas of disability (developmental disabilities, injury-related disabilities, chronic diseases and aging, and secondary conditions associated with primary disabling conditions); (4) government and private sector programs concerned with disability prevention; and (5) conclusions and recommendations in the areas of a national program for the prevention of disability, surveillance, research, access to care and preventive services, and professional and public education. Appendixes contain a paper by Saad Z. Nagi titled "Disability Concepts Revisited: Implications for Prevention"; a statement of one committee member dissenting from this majority report of the Committee on a National Agenda for the Prevention of Disabilities; a response to the dissenting statement by committee members; and committee biographies. (Approximately 375 references) (JDD)




Living Well with Chronic Illness


Book Description

In the United States, chronic diseases currently account for 70 percent of all deaths, and close to 48 million Americans report a disability related to a chronic condition. Today, about one in four Americans have multiple diseases and the prevalence and burden of chronic disease in the elderly and racial/ethnic minorities are notably disproportionate. Chronic disease has now emerged as a major public health problem and it threatens not only population health, but our social and economic welfare. Living Well with Chronic Disease identifies the population-based public health actions that can help reduce disability and improve functioning and quality of life among individuals who are at risk of developing a chronic disease and those with one or more diseases. The book recommends that all major federally funded programmatic and research initiatives in health include an evaluation on health-related quality of life and functional status. Also, the book recommends increasing support for implementation research on how to disseminate effective longterm lifestyle interventions in community-based settings that improve living well with chronic disease. Living Well with Chronic Disease uses three frameworks and considers diseases such as heart disease and stroke, diabetes, depression, and respiratory problems. The book's recommendations will inform policy makers concerned with health reform in public- and private-sectors and also managers of communitybased and public-health intervention programs, private and public research funders, and patients living with one or more chronic conditions.




Disability, Health and Human Development


Book Description

This open access book introduces the human development model to define disability and map its links with health and wellbeing, based on Sen’s capability approach. The author uses panel survey data with internationally comparable questions on disability for Ethiopia, Malawi, Tanzania and Uganda. It presents evidence on the prevalence of disability and its strong and consistent association with multidimensional poverty, mortality, economic insecurity and deprivations in education, morbidity and employment. It shows that disability needs to be considered from multiple angles including aging, gender, health and poverty. Ultimately, this study makes a call for inclusion and prevention interventions as solutions to the deprivations associated with impairments and health conditions.




Prevention of Disabilities Linked to Chronic Diseases


Book Description

Worldwide diseases have changed to include more chronic conditions, while the majority of current health systems continue to provide treatment and acute care rather than continuity of care. Even more dramatic changes in the health needs of the world population are anticipated, with non-communicable diseases as the leading cause of disability.This publication, drawn up by a Council of Europe Committee of Experts, proposes appropriate means of prevention aimed at reducing disabilities caused by chronic disease. Recommendations made include: the setting up of individualised programmes of psycho-social rehabilitation aimed at the full development of the person, and the adoptions of measures to promote the full integration of people with disabilities into society.