Palliative Care for Infants, Children, and Adolescents


Book Description

There are few things requiring more expertise, delicacy, and compassion than caring for an infant, child, or young adult with a life-limiting condition. Written by leading researchers, clinicians from relevant disciplines, family members, and advocates, this practical guide provides professionals involved in pediatric palliative and end-of-life care with comprehensive information in a single volume. Thoroughly updated and expanded, this edition includes chapters addressing the unique challenges facing children with HIV/AIDS and their families, care in home and ICU settings, difficult decision-making processes, and the importance of communication with the child and family, as well as completely new chapters on spiritual dimensions of care and educational and advocacy initiatives. Intended for primary care physicians, pediatric practitioners and specialists, home care and hospice personnel, pastoral counselors, and affected families, the book includes useful resource and reference material and practical, hands-on tips. With contributions from an international group of expert educators, clinicians, and parents, this book takes a truly interdisciplinary approach to pediatric palliative care, presenting best practices, clear instruction, and the latest information and research for anyone involved in pediatric palliative and end-of-life care.




LGBTQ-Inclusive Hospice and Palliative Care


Book Description

This is the only handbook for hospice and palliative care professionals looking to enhance their care delivery or their programs with LGBTQ-inclusive care. Anchored in the evidence, extensively referenced, and written in clear, easy-to-understand language, LGBTQ-Inclusive Hospice and Palliative Care provides clear, actionable strategies for hospice and palliative physicians, nurses, social workers, counselors, and chaplains.




End-of-Life-Care: A Practical Guide, Second Edition


Book Description

The most thorough text available on providing patients and families with quality end-of-life care "The study/learning questions at the end of each chapter make this book an excellent resource for both faculty who wish to test knowledge, and individual learners who wish to assess their own learning....The book is well written and easy to read. 3 Stars."--Doody's Review Service End of Life Care: A Practical Guide offers solution-oriented coverage of the real-world issues and challenges that arise daily for clinicians caring for those with life-limiting illnesses and conditions. End of Life Care: A Practical Guide includes specific clinical guidance for pain management and other common end of life symptoms. The second edition has been made even more essential with the addition of chapter-ending Q&A for self assessment and board review, new coverage of multicultural medicine, an increased number of algorithms to assist decision making on complicated clinical, legal, and ethical issues. Six sections walk you through the complexities of caring for patients who are nearing the end of life: Preparing Patients for End of Life Management of Symptoms Diagnostic and Invasive Interventions Ethical Dilemmas Special Populations Diversity No other text better assists physicians and other clinicians in providing patients near the end of life with support, guidance, and hope in the face of “hopelessness” than End of Life Care: A Practical Guide.




Counseling Clients Near the End of Life


Book Description

"I found this book to be a well-written, sensitively presented, and important resource for those engaged in this critical area of work. Thank you, Dr. Werth, for making such a substantial contribution to this field."--Journal of Palliative Care "[This book offers] over 20 contributors, all with impeccable credentials, covering many perspectives that we need to consider more frequently and in greater depth...There is much that awaits you in this book."--Illness, Crisis, and Loss "Counseling Clients Near the End of Life is a marvelous resource for mental health providers who are searching for useful information in areas such as the following: resolving ethical dilemmas; assisting clients in planning for the end of life; counseling caregivers of clients who are near the end of life; and assisting people in dealing with grief. The editor of this work, Dr. James Werth, has done a splendid job of gathering various experts to share their perspectives on end of life care and choices at this time of life--and he has also written an excellent chapter on counseling clients who are dying." Gerald Corey, EdD, ABPP Professor Emeritus of Human Services and Counseling California State University, Fullerton This highly accessible guide to counseling people who are terminally ill and their families fills a critical need in the counseling literature. Written for front-line mental health professionals and counseling graduate students, the text integrates research with practical guidance. It is replete with the experiences of contributing authors who are leaders in counseling terminally ill individuals , real-life case examples, clinical pearls of wisdom, and tables of practice pointers that provide quick access to valuable knowledge. The text offers information that is requisite for all counselors who provide services to persons who are terminally ill and their families. It addresses common issues that influence different types of counseling approaches, such as how the age, ethnicity, or religion of a client affects counselor conceptualizations and actions. The book discusses how to manage symptoms of depression, anxiety, and cognitive impairment near the end of life. It explains how advance directives can be used to assist dying individuals and their loved ones. The counseling needs of family members before and after death are addressed as well as counseling loved ones experiencing complicated grief. The text also examines the particular concerns of counselors regarding self-care and the benefits of working as part of a professional team. Woven throughout are important considerations such as cultural diversity, ethical challenges, laws, and regulations; and advocacy at client and social policy levels. Readers will also benefit from the inclusion of additional references for more in-depth study. Key Features: Integrates research with practical and accessible information Provides clinical ìpearlsî that can be put to use immediately Provides a reader-friendly format that includes real-life case studies and tables with important pointers Describes the counseling experiences of leading practitioners that include examples of successful and unsuccessful interventions Based on a comprehensive framework developed by a Working Group of the American Psychological Association




A Practical Guide to End of Life Care


Book Description

Are you involved in caring for people at the end of their life? Do you have a role in supporting the families of those who are dying, or is this an area of your work you find personally difficult? This book is an accessible guide for all those working in health or social care and caring for people at the end of their lives. This will include people in roles such as healthcare assistant, hospice worker, volunteer, nurse or other carers. Written by experts with extensive experience in delivering high quality end of life care, this book is full of real life examples, reflection exercises and case studies. It also includes insights into what can help make a good death, and how to help support families at the end of life.The easy to read chapters emphasise treating people who are dying with dignity using a person centred approach. The book supports the delivery of quality care by recognising physical and non-physical symptoms, and thinking about various emotional and physical needs people might have. It is also important that care givers look after themselves and advice is given on how best to do this. An essential purchase for anyone looking for guidance or support in this area, and suitable for those working in the community, care homes, hospices, hospitals or other settings where people are cared for. With a Foreword from Dr. Ros Taylor, MBE, National Director for Hospice Care, Hospice UK. “The book strikes a balance between the factual and the personal, and gives the reader detailed information and time to think through reflection exercises.” Deborah Preshaw, doctoral nursing student, Queens University Belfast, UK “This is a beautifully presented learning tool to support the delivery of end of life care. I particularly like the ‘signposts’ which reinforce the intention of the book to enable ‘carers’ to apply what they read to their role in practice.” Liz Bryan, Director of Education and Training, St Christopher's Hospice, UK "This book is a very welcome addition to the literature on end of life care, as it does exactly what it says – it is a practical guide. I highly recommend this book." Mick Coughlan, Programme Leader, The Royal Marsden School, UK "I feel this book would be very useful for those new to palliative care as well as those studying the subject. Relating theory to practice is always powerful and for new nurses and other healthcare professionals this provides context and meaning." Clodagh Sowton, Director of Patient Services, Phyllis Tuckwell Hospice Care, UK "This is a welcome book to the field of end of life care. This practical guide is accessible and is an excellent bridge between the ‘Lay Person’ and those health care professionals caring for the individual as they approach the end of life. I will be directing students of healthcare towards this impressive, insightful book." Robert Murphy, Senior Lecturer - Adult Nursing, London South Bank University, UK "The material covered is very helpful and the range of authors has been well selected from individuals who are active in clinical practice. The book is practical and clear, and Clair deserves high praise for the contribution it will make to clinicians seeking to improve their palliative care knowledge and skills." Professor Max Watson, Medical Director Northern Ireland Hospice, Visiting Professor University of Ulster, UK




The Art of Dying Well


Book Description

This “comforting…thoughtful” (The Washington Post) guide to maintaining a high quality of life—from resilient old age to the first inklings of a serious illness to the final breath—by the New York Times bestselling author of Knocking on Heaven’s Door is a “roadmap to the end that combines medical, practical, and spiritual guidance” (The Boston Globe). “A common sense path to define what a ‘good’ death looks like” (USA TODAY), The Art of Dying Well is about living as well as possible for as long as possible and adapting successfully to change. Packed with extraordinarily helpful insights and inspiring true stories, award-winning journalist Katy Butler shows how to thrive in later life (even when coping with a chronic medical condition), how to get the best from our health system, and how to make your own “good death” more likely. Butler explains how to successfully age in place, why to pick a younger doctor and how to have an honest conversation with them, when not to call 911, and how to make your death a sacred rite of passage rather than a medical event. This handbook of preparations—practical, communal, physical, and spiritual—will help you make the most of your remaining time, be it decades, years, or months. Based on Butler’s experience caring for aging parents, and hundreds of interviews with people who have successfully navigated our fragmented health system and helped their loved ones have good deaths, The Art of Dying Well also draws on the expertise of national leaders in family medicine, palliative care, geriatrics, oncology, and hospice. This “empowering guide clearly outlines the steps necessary to prepare for a beautiful death without fear” (Shelf Awareness).




Chronic Pain


Book Description

Patients with chronic pain present a unique set of challenges to the primary care clinician. In Chronic Pain: A Primary Care Guide to Practical Management, leading pain specialist Dawn A. Marcus, MD, offers practical, clear, and succinct evidence-based approaches to the diagnosis and treatment of the myriad of painful conditions clinicians see in their offices every day, such as headache, back pain, arthritis, fibromyalgia, and abdominal pain. Using an engaging case-based approach, the author simplifies the often complex care of patients with chronic pain by providing practical strategies for targeting important symptoms, establishing realistic treatment goals, and efficiently and effectively managing patients. Clinic-friendly instructional sheets (questionnaires, diaries, and chart documentation tools) can be copied directly from the book and used for both education and the monitoring of therapeutic compliance and response. Importantly, Dr. Marcus offers all of these practical applications in the context of the busy office practice. The author also presents invaluable guidelines for prescribing medications and nonmedicative therapies, and provides descriptions, illustrations, and diagnostic criteria to help identify specific, commonly occurring syndromes that produce chronic pain. Additional features include sections on opioid therapy and on chronic pain in special patient groups such as children and adolescents, pregnant women, and geriatrics. Also included is a value-added compact disk containing a companion ebook version of the book for downloading and use in the reader's computer or PDA, and continuing medical education (CME) questions that provide the opportunity to acquire 5 AMA/PRA category 1 CME credits from the American Society of Contemporary Medicine and Surgery. Comprehensive and case-oriented, Chronic Pain: A Primary Care Guide to Practical Management offers busy health care providers a practice-friendly approach to assessing and managing the often complex and time-consuming problems of chronic pain.




Final Gifts


Book Description

In this moving and compassionate classic—now updated with new material from the authors—hospice nurses Maggie Callanan and Patricia Kelley share their intimate experiences with patients at the end of life, drawn from more than twenty years’ experience tending the terminally ill. Through their stories we come to appreciate the near-miraculous ways in which the dying communicate their needs, reveal their feelings, and even choreograph their own final moments; we also discover the gifts—of wisdom, faith, and love—that the dying leave for the living to share. Filled with practical advice on responding to the requests of the dying and helping them prepare emotionally and spiritually for death, Final Gifts shows how we can help the dying person live fully to the very end.




Certified Hospice and Palliative Nurse (CHPN) Exam Review


Book Description

The first study guide for the CHPN® certification exam! This must-have study guide for nurses seeking to obtain Certified Hospice and Palliative Nurse (CHPN®) status provides state-of-the-art information about all aspects of this specialty. It features 300 carefully selected Q&As that offer a detailed rationale for each question, along with tips and strategies to promote exam mastery and frequently asked questions about the exam. Additional questions are arranged in chapters mirroring the exam blueprint and the number of questions for each category correlates with the exam matrix. Case-based scenarios embodied within the questions facilitate the application of knowledge in a problem-solving format. A complete practice exam is included as well. Brief topical reviews address hospice and palliative care nursing practice in all of its dimensions, including physical, spiritual, and psychosocial. The resource highlights information that forms the basis of end-of-life care, such as communication and family-centered care. Additionally, high-level skills used by hospice and palliative care nurses, such as drug and dosage conversion and the use of infusion therapy, are covered as well. Key Features: Delivers the first study guide for hospice and palliative nurses seeking CHPN® certification Provides concise, up-to-date knowledge on all aspects of the specialty Includes information about the exam, answers to commonly asked questions, and tips and strategies for exam mastery Includes practice questions and answers following each chapter Provides a final comprehensive practice exam that offers 300 Q&As with detailed answer rationales that mirror the exam format Presents case-based scenarios within the questions that facilitate the application of knowledge




Fast Facts for the Hospice Nurse


Book Description

An on-the-go reference for hospice nurses and those interested in end-of-life care, this practical guide covers the essential elements in the compassionate and holistic care of terminally ill patients and their families. Nurses care for patients facing end-of-life issues in every practice specialty and, as the U.S. population continues to age, the need for proficiency in end-of-life skills will become increasingly important. Fast Facts for the Hospice Nurse: A Concise Guide to End-of-Life Care is an invaluable resource that provides emotional, administrative, and palliative support, whether in a hospice, long-term care facility, or acute care setting. This vital go-to text clearly and concisely lays out not only how to care for patients facing end-of-life issues, but also how to engage in self-care and cope with occupational stress. Beginning with an overview of hospice care, including its history and philosophy, this book offers a timeline of the growth of the hospice movement in the United States. Subsequent sections include up-to-date information on the clinical responsibilities of the hospice nurse in addressing the physical, psychological, and spiritual needs of terminally ill patients and their families in a culturally sensitive way. This book also outlines the administrative duties of the hospice nurse, including hospice documentation, a review of hospice regulations, and quality management. The closing section focuses on occupational stress in hospice nursing and how to engage in self-care. This text can serve as a useful clinical resource and also as a reference for nurses seeking hospice certification from the Hospice and Palliative Credentialing Center. Key Features Organized within the context of the scope and standards of practice of the Hospice and Palliative Nurses Association. Addresses key points about issues unique to hospice nursing and highlights evidence-based interventions Addresses important Medicare regulations and reimbursement Offers numerous clinical resources to assist with hospice nursing practice Serves as a concise study resource for hospice nursing certification