Epilepsy on Our Terms


Book Description

Nearly three million people in the United States live with epilepsy every day and another 180,000 Americans develop epilepsy every year. Around the world, more than 60 million people have epilepsy. Epilepsy impacts everyone in different ways, as well as their families, friends and professional caregivers. This enlightening book presents the firsthand personal accounts of children with seizure disorders and their parents. In their own words, these children and parents vividly describe the experiences of handling the crisis of the initial seizure, adjusting to the diagnosis of epilepsy, coping with seizures, managing medications and side effects, and dealing with health care providers, teachers, schoolmates, siblings, and friends. Their stories reveal the terror, uncertainty, and frustration felt by children an dparents after an initial seizure or a diagnosis of epilepsy and document the ongoing trials, tribulations, and triumphs of coping with seizures, medication schedules and side effects, health care providers and hospitals, schoolmates, siblings, relatives and friends. These accounts provide realistic insights into the myriad issues encountered in living with childhood epilepsy. The book also includes a straightforward medical discussion of childhood seizures, written in layperson's terms; a glossary of medical terms; and a guide for schoolteachers and parents.




In Our Words


Book Description

Psychogenic Non-Epileptic Seizures (PNES) can cause blackouts, collapses, involuntary movements, loss of memory and have major impact on quality of life. Whereas epilepsy is caused by abnormal electrical activity in the brain, PNES are psychological-based responses to triggers inside or outside the body that are perceived as threatening by the person affected. PNES are poorly understood by the medical community. It is common for doctors to struggle to explain this diagnosis, which can leave their patients frustrated and confused. Often people are told that their PNES are caused by "stress" and sent away with no further support or advice. It is no wonder that those affected feel isolated, abandoned and hopeless about living with the condition. In Our Words: Personal Accounts of Living with Non-Epileptic Seizures shows those diagnosed with PNES that they are not alone, and how others have courageously managed to come to terms with their seizures. These heartfelt personal accounts will also allow family, friends, healthcare providers and researchers to gain more understanding of the condition and work to provide a better quality of life to those living with PNES.




Epilepsy in Our Words


Book Description

Nearly three million people in the United States live with epilepsy every day and another 180,000 Americans develop epilepsy every year. Around the world, more than 60 million people have epilepsy. Epilepsy impacts everyone in different ways, as well as their families, friends and professional caregivers. With the Brainstorms series, one of the world's leading authorities on epilepsy, Dr. Steven C. Schachter has gathered together the personal testimonies of patients, family members, and professional caregivers to create a poignant and gripping series of books on this misunderstood and often devastating disorder. This volume, Epilepsy in Our Words, features 68 personal accounts of seizure activity from people with epilepsy that illustrates the wide range of experiences associated with seizures and living with epilepsy. Many have had epilepsy for yers, and their passages are heartfelt and realistic. An introductory section explains epilepsy and different seizure types from a medical perspective. An index helps readers focus on particular symptoms and other specific aspects of seizures, such as seizure warnings and triggers.




In Our Own Words


Book Description

This book is a compilation of the experiences of people with psychogenic non-epileptic seizures (PNES). This psychological disorder has received little attention in the medical community and those experiencing PNES have often been misdiagnosed as having epilepsy. Some have been told that they are faking their seizures because their seizures do not register on standard tests for epilepsy. Non-epileptic seizures usually occur as a result of past trauma (PTSD) or stressful events which cannot be fully processed by the mind. It is our hope that the telling of our stories will give a voice to those who suffer with PNES and bring awareness to this disorder, educate medical professionals, families and friends of those with PNES and create a new level of compassion and understanding in order to bring about healing for PNES sufferers and all of those affected by this illness.




The Epilepsies


Book Description

This book gives an exhaustive account of the classification and management of epileptic disorders. It provides clear didactic guidance on the diagnosis and treatment of epileptic syndromes and seizures through thirteen chapters, complemented by a pharmacopoeia and CD ROM of video-EEGs.




On the Sacred Disease


Book Description

It is thus with regard to the disease called Sacred: it appears to me to be nowise more divine nor more sacred than other diseases, but has a natural cause from the originates like other affections. Men regard its nature and cause as divine from ignorance and wonder, because it is not at all like to other diseases. And this notion of its divinity is kept up by their inability to comprehend it, and the simplicity of the mode by which it is cured, for men are freed from it by purifications and incantations. But if it is reckoned divine because it is wonderful, instead of one there are many diseases which would be sacred; for, as I will show, there are others no less wonderful and prodigious, which nobody imagines to be sacred. The quotidian, tertian, and quartan fevers, seem to me no less sacred and divine in their origin than this disease, although they are not reckoned so wonderful. And I see men become mad and demented from no manifest cause, and at the same time doing many things out of place; and I have known many persons in sleep groaning and crying out, some in a state of suffocation, some jumping up and fleeing out of doors, and deprived of their reason until they awaken, and afterward becoming well and rational as before, although they be pale and weak; and this will happen not once but frequently. And there are many and various things of the like kind, which it would be tedious to state particularly. They who first referred this malady to the gods appear to me to have been just such persons as the conjurors, purificators, mountebanks, and charlatans now are, who give themselves out for being excessively religious, and as knowing more than other people. Such persons, then, using the divinity as a pretext and screen of their own inability to of their own inability to afford any assistance, have given out that the disease is sacred, adding suitable reasons for this opinion, they have instituted a mode of treatment which is safe for themselves, namely, by applying purifications and incantations, and enforcing abstinence from baths and many articles of food which are unwholesome to men in diseases. Of sea substances, the surmullet, the blacktail, the mullet, and the eel; for these are the fishes most to be guarded against. And of fleshes, those of the goat, the stag, the sow, and the dog: for these are the kinds of flesh which are aptest to disorder the bowels. Of fowls, the cock, the turtle, and the bustard, and such others as are reckoned to be particularly strong. And of potherbs, mint, garlic, and onions; for what is acrid does not agree with a weak person. And they forbid to have a black robe, because black is expressive of death; and to sleep on a goat’s skin, or to wear it, and to put one foot upon another, or one hand upon another; for all these things are held to be hindrances to the cure. All these they enjoin with reference to its divinity, as if possessed of more knowledge, and announcing beforehand other causes so that if the person should recover, theirs would be the honor and credit; and if he should die, they would have a certain defense, as if the gods, and not they, were to blame, seeing they had administered nothing either to eat or drink as medicines, nor had overheated him with baths, so as to prove the cause of what had happened. But I am of opinion that (if this were true) none of the Libyans, who live in the interior, would be free from this disease, since they all sleep on goats’ skins, and live upon goats’ flesh; neither have they couch, robe, nor shoe that is not made of goat’s skin, for they have no other herds but goats and oxen. But if these things, when administered in food, aggravate the disease, and if it be cured by abstinence from them, godhead is not the cause at all; nor will purifications be of any avail, but it is the food which is beneficial and prejudicial, and the influence of the divinity vanishes.




Epilepsy Across the Spectrum


Book Description

Although epilepsy is one of the nation's most common neurological disorders, public understanding of it is limited. Many people do not know the causes of epilepsy or what they should do if they see someone having a seizure. Epilepsy is a complex spectrum of disorders that affects an estimated 2.2 million Americans in a variety of ways, and is characterized by unpredictable seizures that differ in type, cause, and severity. Yet living with epilepsy is about much more than just seizures; the disorder is often defined in practical terms, such as challenges in school, uncertainties about social situations and employment, limitations on driving, and questions about independent living. The Institute of Medicine was asked to examine the public health dimensions of the epilepsies, focusing on public health surveillance and data collection; population and public health research; health policy, health care, and human services; and education for people with the disorder and their families, health care providers, and the public. In Epilepsy Across the Spectrum, the IOM makes recommendations ranging from the expansion of collaborative epilepsy surveillance efforts, to the coordination of public awareness efforts, to the engagement of people with epilepsy and their families in education, dissemination, and advocacy for improved care and services. Taking action across multiple dimensions will improve the lives of people with epilepsy and their families. The realistic, feasible, and action-oriented recommendations in this report can help enable short- and long-term improvements for people with epilepsy. For all epilepsy organizations and advocates, local, state, and federal agencies, researchers, health care professionals, people with epilepsy, as well as the public, Epilepsy Across the Spectrum is an essential resource.




The Causes of Epilepsy


Book Description

Expanded and revised, this unique book provides concise descriptions of the many causes of epilepsy, for use in clinical practice.




Introduction to Epilepsy


Book Description

Covers all aspects of epilepsy, from basic mechanisms to diagnosis and management, as well as legal and social considerations.




Epilepsy


Book Description

This book is a unique collaboration between a gifted writer with epilepsy and a skilled physician who has brought new insight into the treatment of this condition. At the age of twenty-six, when Adrienne Richard was seven months pregnant, she was diagnosed with epilepsy. For years she took anticonvulsant drugs to control her seizures, but she wanted to wean herself from the powerful drugs if she could. During the first ten years without medication she had only one seizure. Her goal was to live seizure-free. Ms. Richard practiced yoga, biofeedback, and mind/body techniques in the eighties to help her reach that goal. While writing an article for a magazine based in California, she learned of Dr. Joel Reiter, who was exploring epilepsy self-care in his clinical practice and through his groundbreaking research. Epilepsy: A New Approach combines Adrienne Richard's own inspiring story of overcoming a debilitating condition with Dr. Reiter's up-to-the-minute medical knowledge of diagnosis and treatment. This self-help program offers people with epilepsy and those who love them a chance to regain control of their lives.