Facing Cystic Fibrosis
Author : Yelizaveta Sher
Publisher :
Page : pages
File Size : 47,79 MB
Release : 2020
Category :
ISBN : 9781951166113
The Power of Two
Author : Isabel Stenzel Byrnes
Publisher : University of Missouri Press
Page : 361 pages
File Size : 47,24 MB
Release : 2014-10-14
Category : Biography & Autobiography
ISBN : 0826273424
Book Description
For most people, a diagnosis of cystic fibrosis means the certainty of a life ended too soon. But for Isabel Stenzel Byrnes and Anabel Stenzel, twin girls with the disease, what began as a family’s stubborn determination grew into a miracle. The tragedy of CF has been touchingly recounted in such books as Frank Deford’s Alex: The Life of a Child, but The Power of Two is the first book to portray the symbiotic relationship of twins who share this life-threatening disease through adulthood.Isabel and Anabel tell of their lifelong struggle to pursue normal lives with cystic fibrosis while grappling with the realization that they will die young. Their story reflects the physical and emotional challenges of a particularly aggressive form of CF and is an honest and gripping portrayal of the daily struggle associated with long-term hospitalization, the impact of chronic illness on marriage and family, and the importance of a support network to continuing survival. Born in 1972, seventeen years before scientists discovered the genetic mutation that causes CF, the Stenzel twins endured the daily regimen of chest percussion, frequent doctor visits, and lengthy hospitalizations. But in the face of innumerable setbacks, their deep-seated dependence on each other allowed them to survive long enough to reap the benefits of the miraculous lung transplants that marked a turning point in their lives: “We have an old life—one of growing up with chronic illness—and anew life—one of opportunities and gifts we have never imagined before.” In this memoir, they pay tribute to the people who shaped their experience. These two remarkable sisters have much to teach about the power of perseverance—and about the ultimate power of hope.
Cystic Fibrosis
Author : Stephanie Duggins Davis
Publisher : Springer Nature
Page : 525 pages
File Size : 33,19 MB
Release : 2020-05-21
Category : Medical
ISBN : 3030423824
Book Description
This book provides a comprehensive overview of the multisystem disease, cystic fibrosis, for both pediatric and adult patients. Written by experts in the field, the text outlines the progressive nature of CF as well as the impact of this autosomal recessive disease on the respiratory, gastrointestinal, endocrine, rheumatologic, and renal systems, as well as the patient’s mental health. The book begins with a chapter describing the history of cystic fibrosis and how the face of this life-shortening disease has changed over the past several decades. The following chapters elucidate the pathophysiology of how cystic fibrosis impacts each organ system. Current management and therapeutics are detailed with step-by-step guidelines for clinicians. This book is unique in that it highlights the entire person, not just the respiratory system, with detailed inclusion of the patient perspectives throughout, informing practice standards and considerations. This is an ideal guide for pediatric and adult physicians who care for patients with cystic fibrosis, as well as respiratory therapists, physical therapists, nurses, nutritionists, and pharmacists who care for these patients.
Cystic Fibrosis in the Light of New Research
Author : Dennis Wat
Publisher : BoD – Books on Demand
Page : 394 pages
File Size : 11,4 MB
Release : 2015-08-24
Category : Medical
ISBN : 9535121529
Book Description
Cystic Fibrosis in the Light of New Research provides the latest research and clinical evidence that will be useful for clinicians, scientists and researchers to further their knowledge around this fascinating condition. The authors have brought along their expertise and wealth of knowledge to produce this book, including the basic science that underlies the disease, the burden of bacterial and viral infections, immunologic aspects of CF, a variety of clinical measurements to predict prognosis and novel therapies including gene therapy. This book will be invaluable and entertaining for anyone who is involved in the care of patients with cystic fibrosis.
Cystic Fibrosis
Author : Alex Horsley
Publisher : Oxford University Press, USA
Page : 191 pages
File Size : 32,19 MB
Release : 2010
Category : Medical
ISBN : 019958270X
Book Description
This pocketbook is a concise companion for all health care professionals in respiratory medicine, paediatrics, and primary care who manage, or come across, patients with cystic fibrosis.
Life With Cystic Fibrosis
Author : Allen Carril
Publisher :
Page : 32 pages
File Size : 28,78 MB
Release : 2021-07-03
Category :
ISBN :
Book Description
Walter is a great role model for children with Cystic Fibrosis and his story highlights what a person with CF can achieve with determination. If you have cystic fibrosis, it's important to learn as much as possible about the condition and how to manage it. Taking steps to stay as healthy as you can and undergoing treatment as needed may help prevent serious infections. There isn't a cure for cystic fibrosis. Although it may be impossible to prevent flare-ups entirely, there are things you can do to help reduce their frequency and severity, as well as improve your quality of life.
A Life Course Perspective on Health Trajectories and Transitions
Author : Claudine Burton-Jeangros
Publisher : Springer
Page : 215 pages
File Size : 42,69 MB
Release : 2015-08-11
Category : Medical
ISBN : 331920484X
Book Description
This open access book examines health trajectories and health transitions at different stages of the life course, including childhood, adulthood and later life. It provides findings that assess the role of biological and social transitions on health status over time. The essays examine a wide range of health issues, including the consequences of military service on body mass index, childhood obesity and cardiovascular health, socio-economic inequalities in preventive health care use, depression and anxiety during the child rearing period, health trajectories and transitions in people with cystic fibrosis and oral health over the life course. The book addresses theoretical, empirical and methodological issues as well as examines different national contexts, which help to identify factors of vulnerability and potential resources that support resilience available for specific groups and/or populations. Health reflects the ability of individuals to adapt to their social environment. This book analyzes health as a dynamic experience. It examines how different aspects of individual health unfold over time as a result of aging but also in relation to changing socioeconomic conditions. It also offers readers potential insights into public policies that affect the health status of a population.
Cystic Fibrosis
Author : David M. Orenstein
Publisher : Lippincott Williams & Wilkins
Page : 788 pages
File Size : 30,32 MB
Release : 2012-03-28
Category : Medical
ISBN : 1451154380
Book Description
This one-of-a-kind guide offers easy-to-understand explanations, advice, and management options for patients or parents of patients with cystic fibrosis. The book explains the disease process, outlines the fundamentals of diagnosing and screening, and addresses the challenges of treatment for those living with CF. As one reviewer said, this book “is the only complete answer book for everyone living with the disease. It is an indispensable resource for families of children with CF, adolescent and adult patients, and physicians, nurses, respiratory therapists, and social workers involved in the care of CF patients.”
Cystic Fibrosis, Third Edition
Author : Margaret Hodson
Publisher : CRC Press
Page : 523 pages
File Size : 17,28 MB
Release : 2012-12-11
Category : Medical
ISBN : 1444113690
Book Description
This international and authoritative work, which brings together current knowledge in the field of cystic fibrosis, has become established in previous editions as a leading reference in the field. The third edition continues to provide everything that the clinician or allied health professional treating patients with cystic fibrosis will need in a single manageable volume. Thoroughly revised and updated throughout, it reflects the significant advances that have been made in the field since the second edition published in 2000. Cystic Fibrosis evaluates in detail the basic science that underlies the disease and its progression, putting it into a clinical context. Diagnostic and clinical aspects are covered in depth, as are monitoring the condition and the importance of multi-disciplinary care, reflected in the sections into which the new edition has been sub-divided to improve accessibility. Future developments, including novel therapies, are covered in a concluding section. The clinical areas have been much expanded, with the introduction of separate chapters covering sleep, lung mechanics and the work of breathing, upper airway disease, insulin deficiency and diabetes, bone disease, and sexual and reproductive issues. A new section on monitoring discusses the use of databases to improve patient care, and covers monitoring in different age groups, exercise testing and the outcomes of clinical trials in these areas. Separate chapters are devoted to paramedical issues, including nursing, physiotherapy, psychology, and palliative and spiritual care. Throughout, the emphasis is on providing an up-to-date and balanced review of both the clinical and basic sciences aspects of the subject, and to reflect the multi-disciplinary nature of the cystic fibrosis care team. Drawing on the expertise of a team of international specialists from a variety of backgrounds, the third edition of Cystic Fibrosiswill continue to find a broad readership among respiratory physicians, paediatricians, specialist nurses and other health professionals working with patients with cystic fibrosis.
The Book of Rosy
Author : Rosayra Pablo Cruz
Publisher : HarperCollins
Page : 215 pages
File Size : 44,53 MB
Release : 2020-06-02
Category : Biography & Autobiography
ISBN : 0062941941
Book Description
“Offers hope in the face of desperate odds” – ELLE Magazine, ELLE’s Most Anticipated Books of Summer 2020 “[D]isturbing and unforgettable memoir…This wrenching story brings to vivid life the plight of the many families separated at the U.S.-Mexico border.” – Publisher’s Weekly, STARRED REVIEW “[The] haunting and eloquent…narrative of a Guatemalan woman's desperate search for a better life." -Kirkus, STARRED Review PEOPLE Magazine Best Books of Summer 2020 TIME Magazine Best Books of Summer 2020 PARADE Best Books of Summer 2020 Compelling and urgently important, The Book of Rosy is the unforgettable story of one brave mother and her fight to save her family. When Rosayra “Rosy” Pablo Cruz made the agonizing decision to seek asylum in the United States with two of her children, she knew the journey would be arduous, dangerous, and quite possibly deadly. But she had no choice: violence—from gangs, from crime, from spiraling chaos—was making daily life hell. Rosy knew her family’s one chance at survival was to flee Guatemala and go north. After a brutal journey that left them dehydrated, exhausted, and nearly starved, Rosy and her two little boys arrived at the Arizona border. Almost immediately they were seized and forcibly separated by government officials under the Department of Homeland Security’s new “zero tolerance” policy. To her horror Rosy discovered that her flight to safety had only just begun. In The Book of Rosy, with an unprecedented level of sharp detail and soulful intimacy, Rosy tells her story, aided by Julie Schwietert Collazo, founder of Immigrant Families Together, the grassroots organization that reunites mothers and children. She reveals the cruelty of the detention facilities, the excruciating pain of feeling her children ripped from her arms, the abiding faith that staved off despair—and the enduring friendship with Julie, which helped her navigate the darkness and the bottomless Orwellian bureaucracy. A gripping account of the human cost of inhumane policies, The Book of Rosy is also a paean to the unbreakable will of people united by true love, a sense of justice, and hope for a better future.
