Families Living with Chronic Illness and Disability


Book Description

To help families manage an intense medical-related event, Power and Dell Orto propose that a family-oriented life and living perspective should be combined with a family intervention philosophy. Stressing acknowledgment of the adverse effects of the illness and an affirmation approach to family struggle and opportunities, the authors explore issues relevant to treatment, family adaptation, quality of life, and family survival. A unique feature of the text includes the organization of the chapters around thought-provoking personal statements followed by questions/experiential tasks designed to stimulate thought and discussion. This book is must reading for health and allied health professionals including physicians, nurses, rehabilitation counselors, social workers, psychologists, and family advocates and will serve as a useful textbook for professionals-in-training.




How Do Families Cope With Chronic Illness?


Book Description

Because chronic disorder is becoming an ordinary feature of family life and development, understanding its impact has become critical. This volume, and the conference proceedings it reports, represents a major effort to examine the family's response to chronic physical or psychopathological illness in one or more of its members. Recent data are revising our notions of chronic illness. Evidence is mounting that chronic psychiatric disorders reflect, in part, abnormalities of brain structure and function. In this sense, they are, in part, medical disorders. On the other hand, a number of traditionally labeled medical disorders produce a broad range of psychological symptoms and are exquisitely sensitive to psychosocial influences. Families undergo a complex process of adaptation during which their response to stress and their fundamental beliefs about learning and parenting change. These beliefs endure and are difficult to alter. By examining the processes in a wide range of chronic conditions, this volume helps to identify the common, underlying processes of adaptation. The first three chapters concern the families' responses to disorders that are distinctly medical; the next three focus on families' responses to "grey zone" disorders or anomalies that appear early in life, minor physical anomalies, and communication handicaps; and one chapter focuses exclusively on schizophrenia. The last chapter reflects an effort to develop a model based on the experience of researchers with both psychiatric and medical illness.




Death and Chronic Illness in the Family


Book Description

What does it mean to be ‘present and accounted for’ when a family member is facing chronic illness or death? How does one define a self in relation to the ill or dying member and the family? Rooted in Murray Bowen’s family systems theory, this edited volume provides conceptual ideas and applications useful to clinicians who work with families facing chronic illness or the death of a member. The text is divided into four parts: Part I provides a detailed overview of Bowen’s theory perspectives on chronic illness and death and includes Murray Bowen’s seminal essay "Family Reaction to Death." In Parts II and III, chapter authors draw upon Bowen theory to intimately explore their families' reactions to and experiences with death and chronic illness. The final part uses case studies from contributors’ clinical practices to aid therapists in using Bowen systems perspectives in their work with clients. The chapters in this volume provide a rich and broad range of clinical application and personal experience by professionals who have substantial knowledge of and training in Bowen theory. Death and Chronic Illness in the Family is an essential resource for those interested in understanding the impact of death and loss in their professional work and in their personal lives.




Family Therapy and Chronic Illness


Book Description

Treatment for the chronically ill has traditionally focused on physical factors and symptoms, despite the fact that chronic illness also affects life in an emotional and spiritual way. The approach toward treatment described in this volume addresses all aspects of a patient's life, including their interpersonal experiences and relationships, presenting family therapists and family physicians as part of the same treatment team. This volume thus provides a foundation for understanding the role illness plays in family systems. The meaning an individual gives to an illness is profoundly influenced by and influences that person's social world. In turn, social culture and social networks both shape and are shaped by the individual's experiences. Exploring how the meaning of chronic illness is defined tells us much about the individual's interpersonal relations and the resultant meaning given to the person's illness. As a consequence, family therapy must be an integral part of the treatment plan for chronically ill patients . Family Therapy and Chronic Illness approaches chronic illness from a leading-edge perspective. This approach enables therapists to listen attentively to complicated narratives. Because these stories, feelings, and emotions are difficult to describe, the clients have demanding "telling" tasks while therapists have demanding "listening" tasks. This book sends an important message not just about the chronically ill, but also about their families, therapists, and doctors, and how they can work together to develop the best treatment plan possible.




When Your Child Has a Chronic Medical Illness


Book Description

Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. When you're focused on ensuring your child gets the best possible treatments for their symptoms, it's easy to overlook or dismiss the impact the illness can have on your relationships and emotions. This book places your psychological well-being front and center, so you can be the best caregiver possible for your child.




Patient Safety and Quality


Book Description

"Nurses play a vital role in improving the safety and quality of patient car -- not only in the hospital or ambulatory treatment facility, but also of community-based care and the care performed by family members. Nurses need know what proven techniques and interventions they can use to enhance patient outcomes. To address this need, the Agency for Healthcare Research and Quality (AHRQ), with additional funding from the Robert Wood Johnson Foundation, has prepared this comprehensive, 1,400-page, handbook for nurses on patient safety and quality -- Patient Safety and Quality: An Evidence-Based Handbook for Nurses. (AHRQ Publication No. 08-0043)." - online AHRQ blurb, http://www.ahrq.gov/qual/nurseshdbk/







Children, Families and Chronic Disease


Book Description

Chronic childhood disease brings psychological challenges for families and carers as well as the children. Roger Bradford explores how they cope with these challenges, the psychological and social factors that influence outcomes and the ways in which the delivery of services can be improved to promote adjustment. Drawing on concepts from health psychology and family therapy, the author proposes a multi-level model of care which takes into account the child, the family and the wider care system and how they interrelate and influence each other.




Helping Couples and Families Navigate Illness and Disability


Book Description

Couples and families face daunting challenges as they cope with serious illness and disability. This book gives clinicians a roadmap for helping affected individuals and their loved ones live well with a wide range of child, adult, and later-life conditions. John S. Rolland describes ways to intervene with emerging challenges over the course of long-term or life-threatening disorders. Using vivid case examples, he illustrates how clinicians can help families harness their strengths for positive adaptation and relational growth. Rolland's integrated systemic approach is useful for preventive screening, consultations, brief counseling, more intensive therapy, and multifamily groups, across health care settings and disciplines. This book significantly advances the clinical utility of Rolland?s earlier landmark volume, Families, Illness, and Disability.




Handbook of Health Social Work


Book Description

The Handbook of Health Social Work provides a comprehensive and evidence-based overview of contemporary social work practice in health care. Written from a wellness perspective, the chapters cover the spectrum of health social work settings with contributions from a wide range of experts. The resulting resource offers both a foundation for social work practice in health care and a guide for strategy, policy, and program development in proactive and actionable terms. Three sections present the material: The Foundations of Social Work in Health Care provides information that is basic and central to the operations of social workers in health care, including conceptual underpinnings; the development of the profession; the wide array of roles performed by social workers in health care settings; ethical issues and decision - making in a variety of arenas; public health and social work; health policy and social work; and the understanding of community factors in health social work. Health Social Work Practice: A Spectrum of Critical Considerations delves into critical practice issues such as theories of health behavior; assessment; effective communication with both clients and other members of health care teams; intersections between health and mental health; the effects of religion and spirituality on health care; family and health; sexuality in health care; and substance abuse. Health Social Work: Selected Areas of Practice presents a range of examples of social work practice, including settings that involve older adults; nephrology; oncology; chronic diseases such as diabetes, heart disease, and HIV/AIDS; genetics; end of life care; pain management and palliative care; and alternative treatments and traditional healers. The first book of its kind to unite the entire body of health social work knowledge, the Handbook of Health Social Work is a must-read for social work educators, administrators, students, and practitioners.