Family Caregiving in the New Normal


Book Description

Family Caregiving in the New Normal discusses how the drastic economic changes that have occurred over the past few years have precipitated a new conversation on how family care for older adults will evolve in the future. This text summarizes the challenges and potential solutions scientists, policy makers, and clinical providers must address as they grapple with these changes, with a primary focus given to the elements that may impact how family caregiving is organized and addressed in subsequent decades, including sociodemographic trends like divorce, increased participation of women in the workforce, geographic mobility, fewer children in post-baby boom families, chronic illness trends, economic stressors, and the current policy environment. A section on the support of caregivers includes technology-based solutions that examine existing models, personal health records, and mobile applications, big data issues, decision-making support, person-centered approaches, crowd-sourced caregiving such as blogs and personal websites that have galvanized caregivers, and new methods to combine paid and unpaid forms of care. - Provides a concise "roadmap" of the demographic, economic, health trends, and policy challenges facing family caregivers - Presents potential solutions to caregiving so that scientists, policymakers, and clinical providers can best meet the needs of families and communities in the upcoming decades - Includes in-depth, diverse stories of caregivers of persons with different diseases who share perspectives - Covers person-centered care approaches to family caregiving that summarize effective community-based services of psychosocial intervention models - Examines how existing efficacious models can more effectively reach and serve individual families




Families Caring for an Aging America


Book Description

Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.




NORMAL Doesn't Live Here Anymore


Book Description

What would happen if The Unthinkable blindsided you, requiring everything be put on hold to become a full time caregiver for a loved one? At the very least, it would reshape your life. Without a survival guide, it could even destroy it.Barb Owen delivers precisely that survival guide in NORMAL Doesn "t Live Here Anymore: An Inspiring Story of Hope for Caregivers. She weaves a story, through the first two parts of the book, based on her life-changing experience as primary caregiver for her elderly parents. Following each chapter a bit of wisdom gained from Barb "s experience is summarized as a Reflection. The third part of NORMAL Doesn "t Live Here Anymore addresses the critical need for self-care for the new and seasoned caregiver alike. Specific suggestions abound for Me Time ”how to find it ”what to do with it ”and how very important it is for sustaining oneself throughout the often arduous caregiving-marathon. This truly inspiring book is one part parable, one part autobiography and all survival guide, illuminating a path for the more than 65 million caregiving Americans. SEverything hinges on your ability to care for both yourself and your loved one, says Owen. SThis maxim is of great consequence ”heed it, and you will endure. Dismiss it, and you will have trouble surviving. Take care of yourself, your loved one and keep the faith, because you "re not alone. ----- EXCERPT FROM: NORMAL Doesn "t Live Here Anymore - Chapter 21; The morning after I brought my 90-year-old Dad home from the hospital, Mom called me to say that he was not feeling at all well. My nagging intuition insisted that I visit Dad and spend some private time with him. Finding Dad awake and resting in his bed, I struggled to find my voice. Sitting beside him, I asked, SHow are you feeling this morning? SOh, I "m so-so, he sighed, as a tear rolled from his eye on to the pillow that cradled his head. SReally tired of all of this and worried about your mother. She "s having a hard time with everything. We stayed there in silence ”just being together for a few moments.Holding his hand, the heavy words finally left my mouth. SYou know, Dad, you can trust me to be sure that Mom is okay. I will take care of her, no matter what. He responded quietly, SI know. Studying and caressing my dad "s hand, I knew there was one more important conversation that the voice in my heart insisted upon. SDad, I know that this is getting to be really tough for you. If staying here becomes too hard, it "s okay to let go... During the following few weeks I watched my 89 year old Mom experience a renewed sense of purpose and increased strength as she doted on my dad and met his needs, as best she could. Some days were better than others. Most nights were difficult when Dad "s heart pain was significantly worse and his level of anxiety escalated. Often my mom would pass the hours by reading to Dad. Although her eyesight was clouding, she still managed to read the newspaper, column by column, or inspirational short stories she found in the stack of magazines beside their bed. Amazingly, dawn nearly always brought ease and comfort for them both. And so the nights and days continued ----- REFLECTION; Difficult subjects sometimes need to be discussed. You might be asked by others to deliver bad news ”news of someone "s death, a life-altering diagnosis, or even the necessity for a change in residence. Each conversation carries the potential for unleashed emotions. My advice? No matter how difficult or emotional, don "t leave words left unsaid. People, if capable of understanding, deserve information. Often, they are much stronger than we realize.Words are powerful. They carry courage, condemnation, reassurance or permission. Choose them wisely as your words may be the ones that bring freedom from pain or suffering. It "s tough, but I know you can do it and if you listen to that voice inside, you will know exactly the right time and the right words.Be Strong!




The Spectrum of Family Caregiving for Adults and Elders with Chronic Illness


Book Description

The vast majority of care provided to adults and elders with chronic illness is given in the home, most often by family members. The caregiver's role is daunting; caregiving is often referred to as a 'career,' requiring long hours and arduous tasks. Primary caregivers show higher rates of morbidity and mortality, and caregiving is a major source of stress and burden to caregiving families. Presently, very little support is available to caregivers from either State or Federal agencies. However, awareness of this worsening problem is growing among health professionals and policy makers. The Spectrum of Family Caregiving for Adults and Elders with Chronic Illness is written for individuals in the helping professions who are in roles that interface with or serve family caregivers who are supporting an adult or elder with a chronic condition. The volume includes eight disease-specific chapters written by experts from various disciplines. Each discusses the caregiving role and includes a thorough review of the literature on the characteristics of caregivers and care-recipients, including related care needs, issues, and challenges unique to that chronic illness. Chapters also review the extant literature on caregiver interventions. An Evidence Table is included in each of these chapters so that the reader can easily judge the quality of evidence supporting the intervention studies. Finally, each chapter includes two case studies describing common problems encountered by caregivers, along with descriptions of interventions used to address these problems. The final chapter summarizes the state of the science on caregiving roles and caregiver interventions and discusses the most relevant challenges and barriers faced by today's caregivers and caregiver advocates. This book will be valuable to clinicians and those in the helping professions, as well as academics and researchers with an interest in the study of family caregiving and caregiver interventions, and to health administrators, public officials, and policy makers concerned with chronic illness care and management.




Parenting for a Digital Future


Book Description

"In the decades it takes to bring up a child, parents face challenges that are both helped and hindered by the fact that they are living through a period of unprecedented digital innovation. Drawing on extensive research with diverse parents, this book reveals how digital technologies give personal and political parenting struggles a distinctive character, as parents determine how to forge new territory with little precedent, or support. The book reveals the pincer movement of parenting in late modernity. Parents are both more burdened with responsibilities and charged with respecting the agency of their child-leaving much to negotiate in today's "democratic" families. The book charts how parents now often enact authority and values through digital technologies-as "screen time," games, or social media become ways of both being together and setting boundaries. The authors show how digital technologies introduce both valued opportunities and new sources of risk. To light their way, parents comb through the hazy memories of their own childhoods and look toward varied imagined futures. This results in deeply diverse parenting in the present, as parents move between embracing, resisting, or balancing the role of technology in their own and their children's lives. This book moves beyond the panicky headlines to offer a deeply researched exploration of what it means to parent in a period of significant social and technological change. Drawing on qualitative and quantitative research in the United Kingdom, the book offers conclusions and insights relevant to parents, policymakers, educators, and researchers everywhere"--




Patient Safety and Quality


Book Description

"Nurses play a vital role in improving the safety and quality of patient car -- not only in the hospital or ambulatory treatment facility, but also of community-based care and the care performed by family members. Nurses need know what proven techniques and interventions they can use to enhance patient outcomes. To address this need, the Agency for Healthcare Research and Quality (AHRQ), with additional funding from the Robert Wood Johnson Foundation, has prepared this comprehensive, 1,400-page, handbook for nurses on patient safety and quality -- Patient Safety and Quality: An Evidence-Based Handbook for Nurses. (AHRQ Publication No. 08-0043)." - online AHRQ blurb, http://www.ahrq.gov/qual/nurseshdbk/




Bridging the Family Care Gap


Book Description

Bridging the Family Care Gap explores expected future shortages of family caregivers of older persons and identifies potential solutions. The book examines the sustainability and availability of care management models and whether they can be effectively scaled up to meet community needs. It identifies newly emerging policy initiatives at local, state, and federal levels. The book addresses the state of family caregiving science, dissemination and implementation of promising programs and supports, technological innovations, and other strategies to offset the family care gap. This edited volume also explores lay healthcare workers as guides, interpreters, and advocates in healthcare systems that provide continuity of contact for family caregivers. - Details threats to family caregiving-sociodemographic, chronic disease, and socioeconomic challenges - Presents solutions to the caregiving gap in a systematic, synthesized manner - Addresses the intersection of family caregiving and technology - Discusses chronic disease management to offset and reduce the need for family caregiving - Describes models of caregiver support in work settings - Reimagines the delivery of long-term services and supports with novel initiatives




Bridging the Family Care Gap


Book Description

Bridging the Family Care Gap explores expected future shortages of family caregivers of older persons and identifies potential solutions. The book examines the sustainability and availability of care management models and whether they can be effectively scaled up to meet community needs. It identifies newly emerging policy initiatives at local, state, and federal levels. The book addresses the state of family caregiving science, dissemination and implementation of promising programs and supports, technological innovations, and other strategies to offset the family care gap. This edited volume also explores lay healthcare workers as guides, interpreters, and advocates in healthcare systems that provide continuity of contact for family caregivers. Details threats to family caregiving-sociodemographic, chronic disease, and socioeconomic challenges Presents solutions to the caregiving gap in a systematic, synthesized manner Addresses the intersection of family caregiving and technology Discusses chronic disease management to offset and reduce the need for family caregiving Describes models of caregiver support in work settings Reimagines the delivery of long-term services and supports with novel initiatives




The Family Caregiver's Guide


Book Description

Caring for a loved one at home. What’s really involved? And what does it mean for your family and future? Tens of millions of Americans have had these questions and more as they prepare for this unsettling yet necessary task. The Family Caregiver’s Guide fills in the gaps, connecting the dots between research and real life. Drawing on the author’s extensive caregiving experience, this book provides strategies to care for your loved one, inside and out, as well as for yourself—including how to use your natural skills in your new role, and which skills you may need to add. You’ll discover how to set up your home for caregiving, including a safety checklist, equipment suggestions, and words you should know. And for those days that are more than a handful, you’ll find positive affirmations, a section on facing and accepting illness, and smart steps at the end of each chapter, in case you need guidance in a hurry. Caregiving has both rewards and challenges. But through it all, you’ll discover what’s most important—that caregiving is love in action.




The New Normal


Book Description

From Dr. Jennifer Ashton—the Chief Medical Correspondent at ABC News covering breaking medical news for Good Morning America and GMA3: What You Need to Know—comes a doctor’s guide to finding resilience in the time of COVID, while staying safe and sane in a rapidly changing world. In March 2020, “normal” life changed, perhaps forever. In its place we were confronted with life and routines that were unusual and different: the new normal. As we’ve all learned since then, the new normal isn’t just about wearing masks and standing six feet apart—it’s about recognizing how to stay safe and sane in a world that is suddenly unfamiliar. And no one understands this evolving landscape better than Dr. Jennifer Ashton. As ABC’s Chief Medical Correspondent, Dr. Ashton has been reporting on the novel coronavirus daily, helping Americans comprehend the urgent medical updates that have shaped the nation’s continued response to this public health crisis. Now in The New Normal, Dr. Ashton offers the essential toolkit for life in this unfamiliar reality. Rooted in her reporting on COVID-19 and the understanding that the virus isn’t going anywhere overnight, The New Normal is built on a simple foundation: thriving in this evolving world demands accepting the new normal for what it is, not what we want it to be. No longer is wellness a buzzword, but an imperative for surviving this unprecedented time. Using her trademark practical, easy-to-follow advice, Dr. Ashton gives you all the necessary information to reclaim control of your life and live safely—from exercise, to diet, to general health—showing how to prepare your body and mind for challenges such as: - Taking proper medical precautions to protect yourself and your loved ones - Exercising during the pandemic, even if you no longer feel safe at the gym - Finding emotional balance through these uncertain times - Deciphering complicated medical news to learn what to trust and what to ignore With these straightforward and accessible strategies and many more, Dr. Ashtonhelps empower you to make the unexpectedly hard decisions about socializing, food-shopping, seeing doctors, and most of all, finding normalcy. At once reassuring and urgent, The New Normal is a holistic roadmap through the ongoing struggles of the pandemic, providing the guidance you need to navigate this unsettling time and take charge of your future wellbeing.