OECD Health Policy Studies Health Data Governance Privacy, Monitoring and Research


Book Description

This report identifies eight key data governance mechanisms to maximise benefits to patients and to societies from the collection, linkage and analysis of health data, and to minimise risks to both patient privacy and the security of health data.







The Data Governance Imperative


Book Description

This practical book covers both strategies and tactics around managing a data governance initiative to help make the most of your data.




Health Data Governance for the Digital Age Implementing the OECD Recommendation on Health Data Governance


Book Description

Health data are essential to modern health care delivery, health system management and research and innovation, and must be well governed to foster their use while protecting privacy and data security. The 2016 OECD Recommendation on Health Data Governance provides a roadmap towards more harmonised approaches to health data governance across countries.




Infonomics


Book Description

Many senior executives talk about information as one of their most important assets, but few behave as if it is. They report to the board on the health of their workforce, their financials, their customers, and their partnerships, but rarely the health of their information assets. Corporations typically exhibit greater discipline in tracking and accounting for their office furniture than their data. Infonomics is the theory, study, and discipline of asserting economic significance to information. It strives to apply both economic and asset management principles and practices to the valuation, handling, and deployment of information assets. This book specifically shows: CEOs and business leaders how to more fully wield information as a corporate asset CIOs how to improve the flow and accessibility of information CFOs how to help their organizations measure the actual and latent value in their information assets. More directly, this book is for the burgeoning force of chief data officers (CDOs) and other information and analytics leaders in their valiant struggle to help their organizations become more infosavvy. Author Douglas Laney has spent years researching and developing Infonomics and advising organizations on the infinite opportunities to monetize, manage, and measure information. This book delivers a set of new ideas, frameworks, evidence, and even approaches adapted from other disciplines on how to administer, wield, and understand the value of information. Infonomics can help organizations not only to better develop, sell, and market their offerings, but to transform their organizations altogether. "Doug Laney masterfully weaves together a collection of great examples with a solid framework to guide readers on how to gain competitive advantage through what he labels "the unruly asset" – data. The framework is comprehensive, the advice practical and the success stories global and across industries and applications." Liz Rowe, Chief Data Officer, State of New Jersey "A must read for anybody who wants to survive in a data centric world." Shaun Adams, Head of Data Science, Betterbathrooms.com "Phenomenal! An absolute must read for data practitioners, business leaders and technology strategists. Doug's lucid style has a set a new standard in providing intelligible material in the field of information economics. His passion and knowledge on the subject exudes thru his literature and inspires individuals like me." Ruchi Rajasekhar, Principal Data Architect, MISO Energy "I highly recommend Infonomics to all aspiring analytics leaders. Doug Laney’s work gives readers a deeper understanding of how and why information should be monetized and managed as an enterprise asset. Laney’s assertion that accounting should recognize information as a capital asset is quite convincing and one I agree with. Infonomics enjoyably echoes that sentiment!" Matt Green, independent business analytics consultant, Atlanta area "If you care about the digital economy, and you should, read this book." Tanya Shuckhart, Analyst Relations Lead, IRI Worldwide




Registries for Evaluating Patient Outcomes


Book Description

This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.




Data Governance


Book Description

Managing data continues to grow as a necessity for modern organizations. There are seemingly infinite opportunities for organic growth, reduction of costs, and creation of new products and services. It has become apparent that none of these opportunities can happen smoothly without data governance. The cost of exponential data growth and privacy / security concerns are becoming burdensome. Organizations will encounter unexpected consequences in new sources of risk. The solution to these challenges is also data governance; ensuring balance between risk and opportunity. Data Governance, Second Edition, is for any executive, manager or data professional who needs to understand or implement a data governance program. It is required to ensure consistent, accurate and reliable data across their organization. This book offers an overview of why data governance is needed, how to design, initiate, and execute a program and how to keep the program sustainable. This valuable resource provides comprehensive guidance to beginning professionals, managers or analysts looking to improve their processes, and advanced students in Data Management and related courses. With the provided framework and case studies all professionals in the data governance field will gain key insights into launching successful and money-saving data governance program. - Incorporates industry changes, lessons learned and new approaches - Explores various ways in which data analysts and managers can ensure consistent, accurate and reliable data across their organizations - Includes new case studies which detail real-world situations - Explores all of the capabilities an organization must adopt to become data driven - Provides guidance on various approaches to data governance, to determine whether an organization should be low profile, central controlled, agile, or traditional - Provides guidance on using technology and separating vendor hype from sincere delivery of necessary capabilities - Offers readers insights into how their organizations can improve the value of their data, through data quality, data strategy and data literacy - Provides up to 75% brand-new content compared to the first edition




Data Governance Simplified


Book Description

What is Information Governance?Information governance is using the business strategy to apply objectivity, economies, and efficiencies of scale to the processes necessary for the management of information in the achievement of business success. The point of Information or Data Governance is to create TRUSTED data for the business. But how is that actually done?This book is for the individual who is looking for a starting place for establishing a path to better information for their business through a data governance program. The book focuses on describing deliverables and techniques necessary to quantify and measure the Trust of information, including creating dashboards to monitor the success of the Information Management and Governance (IMG) Program as well as an overall Trust Dashboard for the enterprise. If you are trying to answer any of the following questions, then this book can help you out:How do we decrease the number of data silos?How much management and governance is needed for the data?Who owns the data?How do we get the business to trust the data?What measurements can I use to prove the data is good?What do I show executives to illustrate the progress of a data governance program?How can trust of business data be quantified?How is the relevance of data to the business determined?What is the appropriate level of management and governance necessary for the data?This book will help you answer these questions and start improving (and measuring the improvement) of data for your business. The book includes chapters that give a high level overview of data governance but focuses most of the attention on the deliverables and methods necessary to quantify and measure the Trust of data, thereby establishing clear measurements for success.




Fundamentals of Clinical Data Science


Book Description

This open access book comprehensively covers the fundamentals of clinical data science, focusing on data collection, modelling and clinical applications. Topics covered in the first section on data collection include: data sources, data at scale (big data), data stewardship (FAIR data) and related privacy concerns. Aspects of predictive modelling using techniques such as classification, regression or clustering, and prediction model validation will be covered in the second section. The third section covers aspects of (mobile) clinical decision support systems, operational excellence and value-based healthcare. Fundamentals of Clinical Data Science is an essential resource for healthcare professionals and IT consultants intending to develop and refine their skills in personalized medicine, using solutions based on large datasets from electronic health records or telemonitoring programmes. The book’s promise is “no math, no code”and will explain the topics in a style that is optimized for a healthcare audience.




Big Data Management


Book Description

Data analytics is core to business and decision making. The rapid increase in data volume, velocity and variety offers both opportunities and challenges. While open source solutions to store big data, like Hadoop, offer platforms for exploring value and insight from big data, they were not originally developed with data security and governance in mind. Big Data Management discusses numerous policies, strategies and recipes for managing big data. It addresses data security, privacy, controls and life cycle management offering modern principles and open source architectures for successful governance of big data. The author has collected best practices from the world’s leading organizations that have successfully implemented big data platforms. The topics discussed cover the entire data management life cycle, data quality, data stewardship, regulatory considerations, data council, architectural and operational models are presented for successful management of big data. The book is a must-read for data scientists, data engineers and corporate leaders who are implementing big data platforms in their organizations.