Author : OECD
Publisher : OECD Publishing
Page : 202 pages
File Size : 14,73 MB
Release : 2015-10-05
Category :
ISBN : 9264244565
This report identifies eight key data governance mechanisms to maximise benefits to patients and to societies from the collection, linkage and analysis of health data, and to minimise risks to both patient privacy and the security of health data.
Author : Agency for Healthcare Research and Quality/AHRQ
Publisher : Government Printing Office
Page : 385 pages
File Size : 47,84 MB
Release : 2014-04-01
Category : Medical
ISBN : 1587634333
This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.
Author : OECD
Publisher : OECD Publishing
Page : 80 pages
File Size : 36,13 MB
Release : 2022-05-11
Category :
ISBN : 9264660550
Health data are essential to modern health care delivery, health system management and research and innovation, and must be well governed to foster their use while protecting privacy and data security. The 2016 OECD Recommendation on Health Data Governance provides a roadmap towards more harmonised approaches to health data governance across countries.
Author : Institute of Medicine
Publisher : National Academies Press
Page : 334 pages
File Size : 12,20 MB
Release : 2009-03-24
Category : Computers
ISBN : 0309124999
In the realm of health care, privacy protections are needed to preserve patients' dignity and prevent possible harms. Ten years ago, to address these concerns as well as set guidelines for ethical health research, Congress called for a set of federal standards now known as the HIPAA Privacy Rule. In its 2009 report, Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research, the Institute of Medicine's Committee on Health Research and the Privacy of Health Information concludes that the HIPAA Privacy Rule does not protect privacy as well as it should, and that it impedes important health research.
Author : OECD
Publisher : OECD Publishing
Page : 231 pages
File Size : 39,36 MB
Release : 2017-01-16
Category :
ISBN : 9264266437
This report discusses the need for an integrated and cyclical approach to managing health technology in order to mitigate clinical and financial risks, and ensure acceptable value for money.
Author : Marieke Verschuuren
Publisher : Springer
Page : 227 pages
File Size : 19,73 MB
Release : 2018-12-17
Category : Medical
ISBN : 3319765620
This timely volume presents an in-depth tour of population health monitoring—what it is, what it does, and why it has become increasingly important to health information systems across Europe. Introductory chapters ground readers in the structures of health information systems, and the main theoretical and conceptual models of population health monitoring. From there, contributors offer tools and guidelines for optimum monitoring, including best practices for gathering and contextualizing data and for disseminating findings, to benefit the people most affected by the information. And an extended example follows the step-by-step processes of population health monitoring through a study of health inequalities, from data collection to policy recommendations. Included in the coverage: · Structuring health information: frameworks, models, and indicators · Analysis: contextualization of process and content · Knowledge translation: key concepts, terms, and activities · Health inequality monitoring: a practical application of population health monitoring · Relating population health monitoring to other types of health assessments · Population health monitoring: strengths, weaknesses, opportunities, and threats A robust guide with international implications for an emerging field, Population Health Monitoring is a salient reference for public health experts working in the field of health information as well as post-graduate public health students and public health policymakers. "In this comprehensive and easy to read volume, Verschuuren and van Oers, accompanied by other specialists in the field, present a fresh and thoroughly researched contribution on the discipline of population health monitoring. They critically analyse and describe the phases, functions and approaches to population health monitoring but far more importantly, the discipline is positioned within the wider domains of public health, health policy and health systems. The book is definitely highly recommended reading for students of public health and health services management but is also a useful refresher course for public health practitioners." Natasha Azzopardi Muscat, President, European Public Health Association Chapter 7 of this book is available open access under a CC BY 3.0 IGO license at link.springer.com Chapter 8 of this book is available open access under a CC BY 3.0 IGO license at link.springer.com
Author : OECD
Publisher : OECD Publishing
Page : 161 pages
File Size : 18,80 MB
Release : 2018-06-12
Category :
ISBN : 9264085106
This report presents newly collected data on the quality of dementia care in OECD countries. By providing the most up-to-date and comprehensive cross-country assessment of dementia care, it can help countries to improve their care systems today, and better prepare for the challenges of tomorrow.
Author : Pieter Kubben
Publisher : Springer
Page : 219 pages
File Size : 29,33 MB
Release : 2018-12-21
Category : Medical
ISBN : 3319997130
This open access book comprehensively covers the fundamentals of clinical data science, focusing on data collection, modelling and clinical applications. Topics covered in the first section on data collection include: data sources, data at scale (big data), data stewardship (FAIR data) and related privacy concerns. Aspects of predictive modelling using techniques such as classification, regression or clustering, and prediction model validation will be covered in the second section. The third section covers aspects of (mobile) clinical decision support systems, operational excellence and value-based healthcare. Fundamentals of Clinical Data Science is an essential resource for healthcare professionals and IT consultants intending to develop and refine their skills in personalized medicine, using solutions based on large datasets from electronic health records or telemonitoring programmes. The book’s promise is “no math, no code”and will explain the topics in a style that is optimized for a healthcare audience.
Author : OECD
Publisher : OECD Publishing
Page : 138 pages
File Size : 22,60 MB
Release : 2019-11-26
Category :
ISBN : 9264660658
This report examines the opportunities of enhancing access to and sharing of data (EASD) in the context of the growing importance of artificial intelligence and the Internet of Things. It discusses how EASD can maximise the social and economic value of data re-use and how the related risks and challenges can be addressed. It highlights the trade-offs, complementarities and possible unintended consequences of policy action – and inaction. It also provides examples of EASD approaches and policy initiatives in OECD countries and partner economies.
Author : OECD
Publisher : OECD Publishing
Page : 70 pages
File Size : 19,69 MB
Release : 2022-12-14
Category :
ISBN : 9264849955
The ubiquitous collection, use, and sharing of data that power today’s economies challenge existing governance frameworks and policy approaches. Drawing on the extensive research and analysis conducted at the OECD on data governance, on countries’ policies and practices, and the OECD legal instruments in this area, the Going Digital Guide to Data Governance Policy Making supports policy makers in navigating three fundamental policy tensions that characterise efforts to develop, revise, and implement policies for data governance across policy domains in the digital age.
