Keys to Parenting a Child with Cerebral Palsy


Book Description

The everyday experience of raising a child with cerebral palsy is spelled out here with advice on helping the child become as independent as possible, providing education and occupational training, and making provisions for the child's social, emotional, and financial future.




Finnie's Handling the Young Child with Cerebral Palsy at Home E-Book


Book Description

The 4th edition of Finnie's Handling the Young Child with Cerebral Palsy at Home has been updated to reflect the current practices of today. It aims to help parents assist their child with cerebral palsy (CP) towards achieving the most comfortable independence in all activities. It is hoped to show how, by using typical parenting skills, which involve guiding and exposing a child to develop through challenging experiences, the child with CP will also develop. The book is also intended to help professionals and other carers new to this field understand, support and encourage young children with CP and their families.Over the years since the first edition of this book was written ideas on appropriate therapies have changed and developed. Similarly opinion on early intervention has changed and the method of delivery of service has in some places moved from centralisation to home-based or community provision. The emphasis of this new edition however remains on a holistic approach to the child's needs seeing the difficulties in relation to the overall development of the child as a unique person from childhood to adulthood. - Assessment procedures and prediction of future abilities - Management of problems (including medication if appropriate) such as epilepsy, constipation, eneurisis, nourishment, difficulty with sleeping, crying, temper tantrums, sensory deficits and deformity - Stimulation, fitness, problem solving, compensatory strategies and ease of management - New chapters include Neuroimaging, Epilepsy, Emotional health, Orthotics, Spasticity management, and Complementary and alternative medicine - Over 460 revised illustrations showing different pieces of equipment which may be helpful and ways of holding and moving a child with cerebral palsy - Chapters on Sleeping, Feeding, Lifting and Carrying, Toileting, Communication and Fine motor movement have been completely re-written by a professional specialising in the particular field




Understanding Cerebral Palsy


Book Description

A great starting point for parents and professionals when they first encounter cerebral palsy, this book provides essential information on causes, types, symptoms and treatments as well as practical tips on everyday considerations such as communication and diet. This positive handbook will help readers more fully understand cerebral palsy.




Cerebral Palsy


Book Description

When a child has a health problem, parents want answers. But when a child has cerebral palsy, the answers don't come quickly. A diagnosis of this complex group of chronic conditions affecting movement and coordination is difficult to make and is typically delayed until the child is eighteen months old. Although the condition may be mild or severe, even general predictions about long-term prognosis seldom come before the child's second birthday. Written by a team of experts associated with the Cerebral Palsy Program at the Alfred I. duPont Hospital for Children, this authoritative resource provides parents and families with vital information that can help them cope with uncertainty. Thoroughly updated and revised to incorporate the latest medical advances, the second edition is a comprehensive guide to cerebral palsy. The book is organized into three parts. In the first, the authors describe specific patterns of involvement (hemiplegia, diplegia, quadriplegia), explain the medical and psychosocial implications of these conditions, and tell parents how to be effective advocates for their child. In the second part, the authors provide a wealth of practical advice about caregiving from nutrition to mobility. Part three features an extensive alphabetically arranged encyclopedia that defines and describes medical terms and diagnoses, medical and surgical procedures, and orthopedic and other assistive devices. Also included are lists of resources and recommended reading.




Parenting Matters


Book Description

Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.




Teaching Motor Skills to Children with Cerebral Palsy and Similar Movement Disorders


Book Description

This book provides parents with help for children with cerebral palsy or other developmental delay master gross motor skills beginning in infancy. Organised in the sequence children acquire gross motor skills, this guide explains how motor development unfolds, and how cerebral palsy can affect it.




Cpdad


Book Description

This book is a testament to a father and mother's courage and undaunted love for their child. Roger, you have written a heart-rendering account that will not only enlighten those who need to persevere, but also those of us who do not count our blessings with any regularity. You have shown that self-sacrifice for your child can be the most poignant reminder to never take our precious lives for granted, that all life is precious, and that joy can be found in caring enough for someone else's happiness.Steve NolanLet me start off by saying I'm a non-reader and I wasn't sure how well I would do on this review but once I started reading this, I read it till the end could not stop. I coached Roger years ago and he was one of the best football players I've coached, and I knew he had a lot of heart and desire, but I had no idea how much heart! I had no idea what a committed human being and dad he was. I actually had him do some work on my house and I was still unaware of all the things going on in his life. There were times that I had to stop reading because of all the emotion that I was experiencing, often wonder how much people can do when faced with certain situations. Most of us will never experience the tough situations that he and his amazing family have had to endure. This was truly enlightening and I'm very fortunate that I was considered to be a part of this journey of Rogers life. Truly an amazing book and I hope that everyone has a chance to read and enjoy the gift that Roger and his entire family have. They are incredible their definitely role models for the rest of us! James McDowell It's been seventeen years, and my son, Kolton, has never spoken one word to me. All I've ever wanted to hear him say is "Daddy" and "I love you." I surround him with conversation every day, desperately waiting for him to speak or even babble words back to me. His mother, Angie, is always playing music in the house and singing to him. Kolton loves music, and I can see that they both love every second of listening to a song together.I vocalize my strengths into my son. Sometimes I whisper things in his ear like "I love you," "You're Daddy's boy," and "I'm so proud of you." I wonder if he really understands me, or if he is able to absorb and remember my words. Heart in every page.




Understanding Children with Cerebral Palsy


Book Description

"Cerebral Palsy (CP) represents one of the most frequent neurological disorder in the infancy and in the childhood. It includes brain injuries or developmental defects. According to the World Health Organization, it is a main problem of public health. It may include communication, intellectual, and motor disabilities with negative consequences on children inclusion in daily life and caregivers burden. Rehabilitative interventions are primarily focused on promoting self-determination and independence of individuals with CP. Postural control, gait, and motor skills are usually embedded. Additionally, one may envisage request and choice programs aimed at enhancing the child's awareness of his/her own behavior. The volume summarizes some illustrative evidence-based contributions to emphasize the effectiveness and the suitability of the adopted programs. Beside stability of upper limbs and motor performance of children with CP (chapter one), the therapeutic effects of a horse riding simulator which was compared to a traditional physiotherapy on the sitting position of children with spastic CP (chapter two), the evaluation of stability in children with different form of CP was assessed through a rehabilitative platform was implemented (chapter three). The aforementioned experimental examinations presented between-groups investigations. Furthermore, four case-report studies were included. Assistive technology-based setups were used to promote an active role, constructive engagement, and positive participation of the enrolled children with CP and intellectual disabilities. The beneficial outcomes on their quality of life were considered. Chapter four describes a microswitch-based program to enhance ambulation responses of a child with CP. Chapter five provides a detailed illustration of such program to support locomotion fluency. Chapter six illustrates a cluster-technology aimed at pursuing the dual goal of fostering an adaptive response and reducing a challenging behavior. Chapter seven refers to a computerized system focused on enabling a child with CP and intellectual delays with academic performance and communication opportunities. Whenever available, the effects on indices of happiness and/or positive participation were analyzed. Social validation procedures involving external raters were conducted. Practical features of the retained treatments were privileged. Clinical, educational, psychological, and rehabilitative implications of the findings were systematically and critically discussed. Caregivers, educators, families of children with CP, practitioners, psychologists, speech and occupational therapists, medicine or psychology students, and teachers may find some useful insights for both research and practice in daily life settings"--




Kids Beyond Limits


Book Description

Discover the revolutionary way to harness the brain's capacity to heal itself Supported by the latest brain research, The Anat Baniel Method uses simple, gentle movements and focus to help any child, who has been diagnosed with autism, Asperger's Syndrome, ADHD, Cerebral Palsy or other developmental disorders. In this supportive and hands-on book, Anat Baniel guides parents through the nine essentials of the method, each one designed to harness the brain's capacity to heal itself -- with remarkable and sometimes immediate results. By shifting the focus to connecting rather than "fixing," this powerful yet simple method helps both children and parents to de- stress, focus, and grow. Most of all, the it helps all children maximize their potential, no matter what their diagnosis.




Handling the Young Child with Cerebral Palsy at Home


Book Description

Fundamental is the co-operation of the parents in home handling; includes new information for therapists, nurses, parents and carers.