Lupus . . . the Journey Continues


Book Description

Joyce Duren establishes herself as a force to be reckoned with in literary as well as other circles. Ms. Duren has written a work of commendable perfection. In style, content, and supreme organization, My Bout with Lupus now takes its place on the universal bookshelf of masterpieces. There can be no doubt about her originality. She tells an unusually touching story in a colorful, lighthearted language unique to a contemporary Californian with roots in Cleveland, Ohio, and West Virginia, all of which she is . . . and has . . . None of which she denies. She also can take on tough situations successfully. Her completion of this fine book, despite overwhelming odds, proves that. And her application of spiritual tools such as prayer, fasting, and positive thinking along the way proves her to be steadfast in her faith. Besides being entertaining and inspiring My Bout with Lupus is also educational. It teaches us how to apply our own inner resources in these tumultuous times. Thus, Ms. Duren is a master teacher too. On top of all this, shes also charismatic, perfect for any television talk show. Hints of her healthy personality leak out of this vigorous saga about her struggles successfully to meet the challenges of simultaneously being a single parent, church activist, and businessperson. Writer, instructor, personalityJoyce Duren is all these great things . . . and more. But why go on here? Read her inspiring, informative story.







The Lupus Journey


Book Description

"The Lupus Journey" is a comprehensive and compassionate guide that delves deep into the world of lupus, offering invaluable insights, support, and empowerment to those who are navigating this complex autoimmune disease. This book is a beacon of hope for patients, caregivers, and anyone seeking a better understanding of lupus. Lupus is a chronic autoimmune disease that affects millions of people worldwide, and it can be an enigmatic and debilitating condition. In "The Lupus Journey," author Dr. Amanda Bates, drawing from years of personal experience and expert knowledge, takes readers on an enlightening and empowering expedition through the myriad aspects of lupus.




Butterfly Girl My Lupus Journey


Book Description

Aimee Ackell's, Butterfly Girl, MY LUPUS JOURNEY is a story about the time she was diagnosed with Lupus and how she weathered many trials and challenges on her journey of twenty years with the disease. She gives the reader a positive outlook on how to handle it and how she persevered in her life. She talks about her illness, medications, hospitalizations, family, friends, work, exercise, diet spirituality, and love for inspiring people to conquer their fears with an illness. She is a motivating individual who believes that anyone can just do it to heal him or herself back to being healthy. Aimee Ackell offers an informative and positive perspective on coping with Lupus for people with the disease and their families. Lupus is a chronic autoimmune disease that is difficult to diagnose, and the symptoms-from achy joints to skin rashes- often mimic those of other diseases. Lupus affects more than 1.4 million people in the United States, and affects more women then men. It is considered the silent disease. Her journey of twenty years with Lupus demonstrates the good, the bad and the ugly. The challenges of Lupus are unlimited but there is hope and inspiration given to the reader. She describes the major events that have affected her with her Lupus and how she handled it. The reader walks away with a confident outlook on to handle Lupus. She is very inspirational and her journey allows you a peek into her life while living with a chronic disease. As she always says, smile and smile more!




Lupus Journey


Book Description

I learned not to take my life for granted. After my maternal grandmother died, I went into heavy mourning. Odd symptoms developed on my skin and hair by my senior year in high school. I was diagnosed with lupus. Lupus is an auto-immune disease that can affect any organ of your body. Lupus is not contagious. The cause is unknown and there is no known cure. Lupus Journey is a coming of age memoir that talks about what I went through with lupus, the challenges I faced graduating high school, college and trying to live a normal life.




My Journey with Lupus


Book Description

My journey with Lupus displays my personal experience, from the beginning to now, and how I came to the point of not giving up on living, loving, learning, and hoping for a cure. I have also developed the need for sharing my situation with others, whether they have Lupus or some other illness, or may have family or friends that have Lupus, so that more people can understand the various types of Lupus, and how it impacts the lives of those who live with it.




8 Lessons Lupus Taught Me


Book Description

Written as a narrative short story, CallyRae shares her candid insights as she journeys through surviving with autoimmune diseases. Suffering from chronic daily pain, infections, and extreme fatigue, her outlook was one of frustration and hopelessness. As her life journey down the autoimmune highway took twists and turns, she learned to read the signs and listen to her body, mind, and spirit. She continues on the journey but has replaced pain with vitality, infections with health, and extreme fatigue with immense energy. Her outlook is now one of hope and happiness, and she considers herself blessed to live with the autoimmune diseases of rheumatoid arthritis, systemic lupus erythematosus, and oral lichen planus. She no longer suffers and survives but rather thrives and shares hope and inspiration to those who are looking for a better healthier way to live.




Lupus: the Battle Within


Book Description

Valerie Horn is a lupus patient that has been battling lupus for over fifty years. While living in New York City, her parents did whatever they could by taking her from hospital to hospital, until that one special doctor made a difference in her life. She shares her life story with admirable strength and courage, as she takes you through her most precious and private moments. You will follow Valerie's journey from childhood, when she was first diagnosed, all the way into adulthood, as she talks about her marriage and divorce and raising a child. Her leap at love again left her heartbroken in another state, with two more children to raise...alone. "Lupus: The Battle Within," is a glimpse into the daily struggle that so many lupus patients face, but may be too ashamed to talk about. In Horn's debut memoir, you are reminded that you are NOT alone. You can persevere like a champion, and leave a "Legacy" for your family to remember forever.




Life After Lupus


Book Description

It starts off where it left off 2009. I was in remission for about 5 years. I lived a balanced life traveled, worked part-time worked on businesses and spend time with mu family and friends. At the end of 2014, I started having signs of end stage renal disease and lupus. By January of 2015, I was in the hospital for a week fighting to stay alive, My whole life changed, I had to be on dialysis and not to work for about 5 months. I learned the "dark side of lupus", when the word "disability" was introduced to me. It was a fight to get my health back, a day-to day struggle to push pass was told to me by the doctors. But God works miracles. The scripture Genesis 50:20 says "But as for you, you thought evil against me; but God meant it unto good, to bring to pass, as it is this day, to save much people alive."




The Lupus Encyclopedia


Book Description

Now completely updated! The best-selling, most comprehensive guide to lupus, its complications, and management. Lupus is an autoimmune disease that can attack any body organ. It is three times more common in the United States today than it was in the 1980s, so there is an increased need for accurate, practical information on this potentially devastating disease. Lupus expert and clinician Donald E. Thomas, Jr., MD, provides all the helpful information patients need so they can understand and treat this disease. Highlighting amazing advancements in the diagnosis and treatment of lupus, this edition includes new and expanded information on: • The latest FDA-approved medications • How lupus affects different body parts • Advanced labs that improve lupus diagnosis and treatment • The role of the microbiome and anti-inflammatory diets • Updated recommendations for those who are pregnant or breastfeeding • Childhood-onset lupus • The interaction between COVID-19 and lupus • Non-drug treatments, complementary medicine, and medical cannabis The gold standard since it was first published and carefully reviewed by experts in the field, the latest edition of The Lupus Encyclopedia is essential for patients, health care providers, and families. Bonus content on insurance issues and information about working with lupus and disability is also available online. Endorsed by The Lupus Foundation of America Contributors: Jemima Albayda, MD; Divya Angra, MD; Alan N. Baer, MD; Sasha Bernatsky, MD, PhD; George Bertsias, MD, PhD; Ashira D. Blazer, MD; Ian Bruce, MD; Jill Buyon, MD; Yashaar Chaichian, MD; Maria Chou, MD; Sharon Christie, Esq; Angelique N. Collamer, MD; Ashté Collins, MD; Caitlin O. Cruz, MD; Mark M. Cruz, MD; Dana DiRenzo, MD; Jess D. Edison, MD; Titilola Falasinnu, PhD; Andrea Fava, MD; Cheri Frey, MD; Neda F. Gould, PhD; Nishant Gupta, MD; Sarthak Gupta, MD; Sarfaraz Hasni, MD; David Hunt, MD; Mariana J. Kaplan, MD; Alfred Kim, MD; Deborah Lyu Kim, DO; Rukmini Konatalapalli, MD; Fotios Koumpouras, MD; Vasileios C. Kyttaris, MD; Jerik Leung, MPH; Hector A. Medina, MD; Timothy Niewold, MD; Julie Nusbaum, MD; Ginette Okoye, MD; Sarah L. Patterson, MD; Ziv Paz, MD; Darryn Potosky, MD; Rachel C. Robbins, MD; Neha S. Shah, MD; Matthew A. Sherman, MD; Yevgeniy Sheyn, MD; Julia F. Simard, ScD; Jonathan Solomon, MD; Rodger Stitt, MD; George Stojan, MD; Sangeeta Sule, MD; Barbara Taylor, CPPM, CRHC; George Tsokos, MD; Ian Ward, MD; Emma Weeding, MD; Arthur Weinstein, MD; Sean A. Whelton, MD