Author : Dennis Drotar
Publisher : Psychology Press
Page : 515 pages
File Size : 10,33 MB
Release : 2000-08
Category : Medical
ISBN : 1135666423
This interdisciplinary edited volume addresses critical gaps in scientific understanding of adherence/compliance to treatment regimens in chronic health conditions for children & Ados.
Author : Julian Allen
Publisher : CRC Press
Page : 546 pages
File Size : 44,13 MB
Release : 2016-04-19
Category : Medical
ISBN : 1439801827
The median age of survival for those with cystic fibrosis has risen considerably in recent years. This text thoroughly examines the developments and breakthroughs which have led to this improvement in life expectancy. With a focus on the latest discoveries in the diagnosis and treatment of the disease, this book provides a comprehensive overview of
Author : Margaret Hodson
Publisher : CRC Press
Page : 523 pages
File Size : 15,73 MB
Release : 2012-12-11
Category : Medical
ISBN : 1444113690
This international and authoritative work, which brings together current knowledge in the field of cystic fibrosis, has become established in previous editions as a leading reference in the field. The third edition continues to provide everything that the clinician or allied health professional treating patients with cystic fibrosis will need in a single manageable volume. Thoroughly revised and updated throughout, it reflects the significant advances that have been made in the field since the second edition published in 2000. Cystic Fibrosis evaluates in detail the basic science that underlies the disease and its progression, putting it into a clinical context. Diagnostic and clinical aspects are covered in depth, as are monitoring the condition and the importance of multi-disciplinary care, reflected in the sections into which the new edition has been sub-divided to improve accessibility. Future developments, including novel therapies, are covered in a concluding section. The clinical areas have been much expanded, with the introduction of separate chapters covering sleep, lung mechanics and the work of breathing, upper airway disease, insulin deficiency and diabetes, bone disease, and sexual and reproductive issues. A new section on monitoring discusses the use of databases to improve patient care, and covers monitoring in different age groups, exercise testing and the outcomes of clinical trials in these areas. Separate chapters are devoted to paramedical issues, including nursing, physiotherapy, psychology, and palliative and spiritual care. Throughout, the emphasis is on providing an up-to-date and balanced review of both the clinical and basic sciences aspects of the subject, and to reflect the multi-disciplinary nature of the cystic fibrosis care team. Drawing on the expertise of a team of international specialists from a variety of backgrounds, the third edition of Cystic Fibrosiswill continue to find a broad readership among respiratory physicians, paediatricians, specialist nurses and other health professionals working with patients with cystic fibrosis.
Author : National Research Council
Publisher : National Academies Press
Page : 164 pages
File Size : 25,54 MB
Release : 2001-10-08
Category : Social Science
ISBN : 0309170362
Adolescents obviously do not always act in ways that serve their own best interests, even as defined by them. Sometimes their perception of their own risks, even of survival to adulthood, is larger than the reality; in other cases, they underestimate the risks of particular actions or behaviors. It is possible, indeed likely, that some adolescents engage in risky behaviors because of a perception of invulnerabilityâ€"the current conventional wisdom of adults' views of adolescent behavior. Others, however, take risks because they feel vulnerable to a point approaching hopelessness. In either case, these perceptions can prompt adolescents to make poor decisions that can put them at risk and leave them vulnerable to physical or psychological harm that may have a negative impact on their long-term health and viability. A small planning group was formed to develop a workshop on reconceptualizing adolescent risk and vulnerability. With funding from Carnegie Corporation of New York, the Workshop on Adolescent Risk and Vulnerability: Setting Priorities took place on March 13, 2001, in Washington, DC. The workshop's goal was to put into perspective the total burden of vulnerability that adolescents face, taking advantage of the growing societal concern for adolescents, the need to set priorities for meeting adolescents' needs, and the opportunity to apply decision-making perspectives to this critical area. This report summarizes the workshop.
Author : Bert N. Uchino
Publisher : Yale University Press
Page : 232 pages
File Size : 36,68 MB
Release : 2004-01-01
Category : Medical
ISBN : 0300127987
This book will change the way we understand the future of our planet. It is both alarming and hopeful. James Gustave Speth, renowned as a visionary environmentalist leader, warns that in spite of all the international negotiations and agreements of the past two decades, efforts to protect Earth's environment are not succeeding. Still, he says, the challenges are not insurmountable. He offers comprehensive, viable new strategies for dealing with environmental threats around the world. The author explains why current approaches to critical global environmental problems - climate change, biodiversity loss, deterioration of marine environments, deforestation, water shortages, and others - don't work. He offers intriguing insights into why we have been able to address domestic environmental threats with some success while largely failing at the international level. Setting forth eight specific steps to a sustainable future, Speth convincingly argues that dramatically different government and citizen action are now urgent. If ever a book could be described as essential, this is it.
Author : Peter M. Fayers
Publisher : John Wiley & Sons
Page : 460 pages
File Size : 11,39 MB
Release : 2013-05-23
Category : Medical
ISBN : 1118699459
Quality of life studies form an essential part of the evaluation of any treatment. Written by two authors who are well respected within this field, Quality of Life: The Assessment, Analysis and Interpretation of Patient-reported Outcomes, Second Edition lays down guidelines on assessing, analysing and interpreting quality of life data. The new edition of this standard book has been completely revised, updated and expanded to reflect many methodological developments emerged since the publication of the first edition. Covers the design of instruments, the practical aspects of implementing assessment, the analyses of the data, and the interpretation of the results Presents all essential information on Quality of Life Research in one comprehensive volume Explains the use of qualitative and quantitative methods, including the application of basic statistical methods Includes copious practical examples Fills a need in a rapidly growing area of interest New edition accommodates significant methodological developments, and includes chapters on computer adaptive testing and item banking, choosing an instrument, systematic reviews and meta analysis This book is of interest for everyone involved in quality of life research, and it is applicable to medical and non-medical, statistical and non-statistical readers. It is of particular relevance for clinical and biomedical researchers within both the pharmaceutical industry and practitioners in the fields of cancer and other chronic diseases. Reviews of the First Edition – Winner of the first prize in the Basis of Medicine Category of the BMA Medical Book Competition 2001: “This book is highly recommended to clinicians who are actively involved in the planning, analysis and publication of QoL research.” CLINICAL ONCOLOGY “This book is highly recommended reading.” QUALITY OF LIFE RESEARCH
Author : B. Bradford Brown
Publisher : Academic Press
Page : 1294 pages
File Size : 36,86 MB
Release : 2011-06-06
Category : Psychology
ISBN : 0123739519
The period of adolescence involves growth, adaptation, and dramatic reorganization in almost every aspect of social and psychological development. The Encyclopedia of Adolescence, Three Volume Set offers an exhaustive and comprehensive review of current theory and research findings pertaining to this critical decade of life. Leading scientists offer accessible and easily readable reviews of biological, social, educational, occupational, and cultural factors that shape adolescent development. Issues in normative development, individual differences, and psychopathology/maladjustment are reviewed. Over 130 chapters are included, each covering a specific aspect or issue of adolescence. The chapters trace differences in the course of adolescence in different nations and among youth with different backgrounds.The encyclopedia brings together cross-disciplinary contributors, including academic researchers, biologists, psychiatrists, sociologists, anthropologists and public policy experts, and will include authors from around the world. Each article features an in-depth analysis of current information on the topic, along with a glossary, suggested readings for further information, and cross-references to related encyclopedia articles. The volumes offer an unprecedented resource for all audiences, providing a more comprehensive understanding of general topics compared to other reference works on the subject.Available both in print and online via SciVerse Science Direct. Winner of the 2011 PROSE Award for Multivolume Reference in Humanities & Social Science from the Association of American Publishers; and named a 2012 Outstanding Academic Title by the American Library Association's Choice publication Brings together cross-disciplinary contributors, including developmental psychologists, educational psychologists, clinical psychologists, biologists, psychiatrists, sociologists, anthropologists and public policy experts Published both in print and via Elsevier's ScienceDirectTM online platform
Author : Dennis Drotar
Publisher : Psychology Press
Page : 394 pages
File Size : 42,9 MB
Release : 2014-06-03
Category : Psychology
ISBN : 1317824563
This volume's purpose is to describe concepts and methods concerning assessment of health-related quality of life (HRQOL) in children and adolescents with a special focus on chronic health conditions. The impetus for this book came from a recognition of the increasing importance of HRQOL assessments in the evaluation of treatment outcomes and the need to increase the utilization of HRQOL assessments in research and clinical applications with a range of pediatric populations. The need to develop a volume that describes new research and clinical applications concerning this topic stemmed from several recent developments. There is a continuing need for evaluations of the efficacy of medical treatments for children and adolescents, including those with chronic health conditions. To address these critical unmet needs in the field of HRQOL assessment, and to advance scientific methods and clinical applications in this field, a conference was held at Case Western Reserve University. The conference set out to summarize current information concerning the development and implementation of measures of HRQOL assessment, to identify and consider key conceptual and methodological issues in research concerning the measurement of HRQOL, and to recommend priorities to advance the state-of-the-art in research and clinical applications of QOL assessment in children and adolescents with chronic health conditions. This volume summarizes and synthesizes the information that was presented by the conference participants in a series of lively discussions and chapters that were based on the presentations.
Author : Stephanie Duggins Davis
Publisher : Springer Nature
Page : 525 pages
File Size : 12,17 MB
Release : 2020-05-21
Category : Medical
ISBN : 3030423824
This book provides a comprehensive overview of the multisystem disease, cystic fibrosis, for both pediatric and adult patients. Written by experts in the field, the text outlines the progressive nature of CF as well as the impact of this autosomal recessive disease on the respiratory, gastrointestinal, endocrine, rheumatologic, and renal systems, as well as the patient’s mental health. The book begins with a chapter describing the history of cystic fibrosis and how the face of this life-shortening disease has changed over the past several decades. The following chapters elucidate the pathophysiology of how cystic fibrosis impacts each organ system. Current management and therapeutics are detailed with step-by-step guidelines for clinicians. This book is unique in that it highlights the entire person, not just the respiratory system, with detailed inclusion of the patient perspectives throughout, informing practice standards and considerations. This is an ideal guide for pediatric and adult physicians who care for patients with cystic fibrosis, as well as respiratory therapists, physical therapists, nurses, nutritionists, and pharmacists who care for these patients.
Author : Joyce J. Fitzpatrick, PhD, MBA, RN, FAAN
Publisher : Springer Publishing Company
Page : 400 pages
File Size : 25,51 MB
Release : 2003-05-28
Category : Medical
ISBN : 0826141285
This 21st volume of the Annual Review synthesizes nursing research to date on child health and illness, including family issues. Ages range from pre-term babies to adolescents, with a focus on chronic illness. A special final chapter reviews the highlights of the past 10 volumes of the Annual Review of Nursing Research, to mark the 20th anniversary of the Review.
