Disability Studies


Book Description

Images of disability pervade language and literature, yet disability is, as the volume's introduction notes, "the ubiquitous unspoken topic in contemporary culture." The twenty-five essays in Disability Studies provide perspectives on disabled people and on disability in the humanities, art, the media, medicine, psychology, the academy, and society. Edited and introduced by Sharon L. Snyder, Brenda Jo Brueggemann, and Rosemarie Garland-Thomson and containing an afterword by Michael Bérubé (author of Life As We Know It), the volume is rich in its cast of characters (including John Bulwer, Teresa de Cartagena, Audre Lorde, Oliver Sacks, Samuel Johnson, Mark Twain, Walt Whitman); in its powerful, authentic accounts of disabled conditions (deafness, blindness, MS, cancer, the absence of limbs); in its different settings (ancient Greece, medieval Spain, Nazi Germany, the modern United States); and in its mix of the intellectual and the emotional, of subtle theory and plainspoken autobiography.




Research Methods in Health Humanities


Book Description

Research Methods in Health Humanities surveys the diverse and unique research methods used by scholars in the growing, transdisciplinary field of health humanities. Appropriate for advanced undergraduates, but rich enough to engage more seasoned students and scholars, this volume is an essential teaching and reference tool for health humanities teachers and scholars. Health humanities is a field committed to social justice and to applying expertise to real world concerns, creating research that translates to participants and communities in meaningful and useful ways. The chapters in this field-defining volume reflect these values by examining the human aspects of health and health care that are critical, reflective, textual, contextual, qualitative, and quantitative. Divided into four sections, the volume demonstrates how to conduct research on texts, contexts, people, and programs. Readers will find research methods from traditional disciplines adapted to health humanities work, such as close reading of diverse texts, archival research, ethnography, interviews, and surveys. The book also features transdisciplinary methods unique to the health humanities, such as health and social justice studies, digital health humanities, and community dialogues. Each chapter provides learning objectives, step-by-step instructions, resources, and exercises, with illustrations of the method provided by the authors' own research. An invaluable tool in learning, curricular development, and research design, this volume provides a grounding in the traditions of the humanities, fine arts, and social sciences for students considering health care careers, but also provides useful tools of inquiry for everyone, as we are all future patients and future caregivers of a loved one.




Disability Studies and the Environmental Humanities


Book Description

Although scholars in the environmental humanities have been exploring the dichotomy between "wild" and "built" environments for several years, few have focused on the field of disability studies, a discipline that enlists the contingency between environments and bodies as a foundation of its scholarship. On the other hand, scholars in disability studies have demonstrated the ways in which the built environment privileges some bodies and minds over others, yet they have rarely examined the ways in which toxic environments engender chronic illness and disability or how environmental illnesses disrupt dominant paradigms for scrutinizing "disability." Designed as a reader for undergraduate and graduate courses, Disability Studies and the Environmental Humanities employs interdisciplinary perspectives to examine such issues as slow violence, imperialism, race, toxicity, eco-sickness, the body in environmental justice, ableism, and other topics. With a historical scope spanning the seventeenth century to the present, this collection not only presents the foundational documents informing this intersection of fields but also showcases the most current work, making it an indispensable reference.




Literatures of Madness


Book Description

Literatures of Madness: Disability Studies and Mental Health brings together scholars working in disability studies, mad studies, feminist theory, Indigenous studies, postcolonial theory, Jewish literature, queer studies, American studies, trauma studies, and comics to create an intersectional community of scholarship in literary disability studies of mental health. The collection contains essays on canonical authors and lesser known and sometimes forgotten writers, including Sylvia Plath, Louisa May Alcott, Hannah Weiner, Mary Jane Ward, Michelle Cliff, Lee Maracle, Joanne Greenberg, Ann Bannon, Jerry Pinto, Persimmon Blackbridge, and others. The volume addresses the under-representation of madness and psychiatric disability in the field of disability studies, which traditionally focuses on physical disability, and explores the controversies and the common ground among disability studies, anti-psychiatric discourses, mad studies, graphic medicine, and health/medical humanities.




Disability Studies and the Classical Body


Book Description

By triangulating the Greco-Roman world, classical reception, and disability studies, this book presents a range of approaches that reassess and reimagine traditional themes, from the narrative voice to sensory studies. It argues that disability and disabled people are the ‘forgotten other’ of not just Classics, but also the Humanities more widely. Beyond the moral merits of rectifying this neglect, this book also provides a series of approaches and case studies that demonstrate the intellectual value of engaging with disability studies as classicists and exploring the classical legacy in the medical humanities. The book is presented in four parts: ‘Communicating and controlling impairment, illness and pain’; ‘Using, creating and showcasing disability supports and services’; ‘Real bodies and retrieving senses: disability in the ritual record’; and ‘Classical reception as the gateway between Classics and disability studies’. Chapters by scholars from different academic backgrounds are carefully paired in these sections in order to draw out further contrasts and nuances and produce a sum that is more than the parts. The volume also explores how the ancient world and its reception have influenced medical and disability literature, and how engagements with disabled people might lead to reinterpretations of familiar case studies, such as the Parthenon. This book is primarily intended for classicists interested in disabled people in the Greco-Roman past and in how modern disability studies may offer insights into and reinterpretations of historic case studies. It will also be of interest to those working in medical humanities, sensory studies, and museum studies, and those exploring the wider tension between representation and reality in ancient contexts. As such, it will appeal to people in the wider Humanities who, notwithstanding any interest in how disabled people are represented in literature, art, and cinema, have had less engagement with disability studies and the lived experience of people with impairments. FREE CHAPTER AVAILABLE! Please go to https://bit.ly/3pzpO7n to access the Introduction, which we have made freely available.




Health Humanities Reader


Book Description

Over the past forty years, the health humanities, previously called the medical humanities, has emerged as one of the most exciting fields for interdisciplinary scholarship, advancing humanistic inquiry into bioethics, human rights, health care, and the uses of technology. It has also helped inspire medical practitioners to engage in deeper reflection about the human elements of their practice. In Health Humanities Reader, editors Therese Jones, Delese Wear, and Lester D. Friedman have assembled fifty-four leading scholars, educators, artists, and clinicians to survey the rich body of work that has already emerged from the field—and to imagine fresh approaches to the health humanities in these original essays. The collection’s contributors reflect the extraordinary diversity of the field, including scholars from the disciplines of disability studies, history, literature, nursing, religion, narrative medicine, philosophy, bioethics, medicine, and the social sciences. With warmth and humor, critical acumen and ethical insight, Health Humanities Reader truly humanizes the field of medicine. Its accessible language and broad scope offers something for everyone from the experienced medical professional to a reader interested in health and illness.




Critical Disability Studies and the Disabled Child


Book Description

This book examines the relationship between contemporary cultural representations of disabled children on the one hand, and disability as a personal experience of internalised oppression on the other. In focalising this debate through an exploration of the politically and emotionally charged figure of the disabled child, Harriet Cooper raises questions both about what it means to ‘speak for’ the other and about what resistance means when one is unknowingly invested in one’s own abjection. Drawing on both the author’s personal experience of growing up with a physical impairment and on a range of critical theories and cultural objects – from Frances Hodgson Burnett’s novel The Secret Garden to Judith Butler’s work on injurious speech – the book theorises the making of disabled and ‘rehabilitated’ subjectivities. With a conceptual framework informed by both psychoanalysis and critical disability studies, it investigates the ways in which cultural anxieties about disability come to be embodied and lived by the disabled child. Posing new questions for disability studies and for identity politics about the relationships between lived experiences, cultural representations and dominant discourses – and demonstrating a new approach to the concept of ‘internalised oppression’ – this book will be of interest to scholars and students of disability studies, medical humanities, sociology and psychosocial studies, as well as to those with an interest in identity politics more generally.




Medical Humanities and Disability Studies


Book Description

Medical humanities and disability studies are disciplines at the cutting edge of innovative critical work in the study of health and disability, but to date there has been no book-length examination of the relationship between the two. Although each has emerged from different heritages, they share many features, from discussing the complexities of embodiment, identifying processes of exclusion and championing user participation, to a commitment to new forms of critical writing. In/Disciplines explores the connections between the two disciplines in detail. It presents a series of provocations about how they interact, the forms their practice take, and their strengths and weaknesses as working methods. With a focus on life stories that give accounts of health and disability experiences, it mixes creative and critical writing in an accessible manner aimed at a wide audience in both Medical Humanities and Disability Studies, and across new humanities more widely. The book asserts that both disciplines need to evaluate and challenge core assumptions if they are to remain critically relevant in the evolving study of social and cultural understanding of health and disability.




Edinburgh Companion to the Critical Medical Humanities


Book Description

In this landmark Companion, expert contributors from around the world map out the field of the critical medical humanities. This is the first volume to introduce comprehensively the ways in which interdisciplinary thinking across the humanities and social sciences might contribute to, critique and develop medical understanding of the human individually and collectively. The thirty-six newly commissioned chapters range widely within and across disciplinary fields, always alert to the intersections between medicine, as broadly defined, and critical thinking. Each chapter offers suggestions for further reading on the issues raised, and each section concludes with an Afterword, written by a leading critic, outlining future possibilities for cutting-edge work in this area. Topics covered in this volume include: the affective body, biomedicine, blindness, breath, disability, early modern medical practice, fatness, the genome, language, madness, narrative, race, systems biology, performance, the postcolonial, public health, touch, twins, voice and wonder. Together the chapters generate a body of new knowledge and make a decisive intervention into how health, medicine and clinical care might address questions of individual, subjective and embodied experience.




Keywords for Disability Studies


Book Description

Introduces key terms, concepts, debates, and histories for Disability Studies Keywords for Disability Studies aims to broaden and define the conceptual framework of disability studies for readers and practitioners in the field and beyond. The volume engages some of the most pressing debates of our time, such as prenatal testing, euthanasia, accessibility in public transportation and the workplace, post-traumatic stress, and questions about the beginning and end of life. Each of the 60 essays in Keywords for Disability Studies focuses on a distinct critical concept, including “ethics,” “medicalization,” “performance,” “reproduction,” “identity,” and “stigma,” among others. Although the essays recognize that “disability” is often used as an umbrella term, the contributors to the volume avoid treating individual disabilities as keywords, and instead interrogate concepts that encompass different components of the social and bodily experience of disability. The essays approach disability as an embodied condition, a mutable historical phenomenon, and a social, political, and cultural identity. An invaluable resource for students and scholars alike, Keywords for Disability Studies brings the debates that have often remained internal to disability studies into a wider field of critical discourse, providing opportunities for fresh theoretical considerations of the field’s core presuppositions through a variety of disciplinary perspectives. Visit keywords.nyupress.org for online essays, teaching resources, and more.