Handbook of Service User Involvement in Mental Health Research


Book Description

Service user involvement in mental health research poses specific challenges for both researchers and service users. The book describes the relevant background and principles underlying the concept of service user involvement in mental health research, providing relevant practical advice on how to engage with service users and how to build and maintain research collaboration on a professional level. It highlights common practical problems in service user involvement, based on experience from various countries with different social policies and suggests ways to avoid pitfalls and common difficulties. The book helps researchers decide which level of service user involvement will be adequate for their research activities and what will be feasible in view of the practicalities involved. It is also ideal for service users who are interested in becoming involved in research, providing relevant background information on the possibilities of involvement in professional research.




Hearing (our) Voices


Book Description

Hearing (Our) Voices describes two innovative participatory action research projects - one on communication with medical professionals, the other on housing - carried out by a group of people diagnosed with schizophrenia under the guidance of Professor Barbara Schneider. Participants designed the research, conducted interviews and focus groups, participated in data analysis, and disseminated research results through a number of innovative strategies including theatre performances, a documentary film, a graphic novel, and a travelling exhibit. Emerging from these projects is the central and significant finding that people diagnosed with schizophrenia are caught between their dependence on care and their longing for independent lives. The research presented in Hearing (Our) Voices points to a way to resolve this paradox and transform lives through the inclusion of people diagnosed with schizophrenia in research, in decision-making about their own treatment and housing, and in public discourse about schizophrenia.




Mental health service users in research


Book Description

This book aims to show the value but also the difficulties encountered in the application of 'insider knowledge' in service user research. Mental health service users in research considers ways of 'doing research' which bring multiple understandings together effectively, and explains the sociological use of autobiography and its relevance. It examines how our identity shapes the knowledge we produce, and asks why voices which challenge contemporary beliefs about health and the role of treatment are often silenced. An imbalance of power and opportunity for service users, and the stigmatising nature of services, are considered as human rights issues.Most of the contributors to the book are service users/survivors as well as academics. Their fields of expertise include LGB issues, racial tensions, and recovering from the shame and stigma of alcoholism. They stress the importance of research approaches which involve mutualities of respect and understanding within the worlds of researcher, clinician and service user/survivor.




Common Mental Health Disorders


Book Description

Bringing together treatment and referral advice from existing guidelines, this text aims to improve access to services and recognition of common mental health disorders in adults and provide advice on the principles that need to be adopted to develop appropriate referral and local care pathways.




Ending Discrimination Against People with Mental and Substance Use Disorders


Book Description

Estimates indicate that as many as 1 in 4 Americans will experience a mental health problem or will misuse alcohol or drugs in their lifetimes. These disorders are among the most highly stigmatized health conditions in the United States, and they remain barriers to full participation in society in areas as basic as education, housing, and employment. Improving the lives of people with mental health and substance abuse disorders has been a priority in the United States for more than 50 years. The Community Mental Health Act of 1963 is considered a major turning point in America's efforts to improve behavioral healthcare. It ushered in an era of optimism and hope and laid the groundwork for the consumer movement and new models of recovery. The consumer movement gave voice to people with mental and substance use disorders and brought their perspectives and experience into national discussions about mental health. However over the same 50-year period, positive change in American public attitudes and beliefs about mental and substance use disorders has lagged behind these advances. Stigma is a complex social phenomenon based on a relationship between an attribute and a stereotype that assigns undesirable labels, qualities, and behaviors to a person with that attribute. Labeled individuals are then socially devalued, which leads to inequality and discrimination. This report contributes to national efforts to understand and change attitudes, beliefs and behaviors that can lead to stigma and discrimination. Changing stigma in a lasting way will require coordinated efforts, which are based on the best possible evidence, supported at the national level with multiyear funding, and planned and implemented by an effective coalition of representative stakeholders. Ending Discrimination Against People with Mental and Substance Use Disorders: The Evidence for Stigma Change explores stigma and discrimination faced by individuals with mental or substance use disorders and recommends effective strategies for reducing stigma and encouraging people to seek treatment and other supportive services. It offers a set of conclusions and recommendations about successful stigma change strategies and the research needed to inform and evaluate these efforts in the United States.




Best-Worst Scaling


Book Description

First systematic treatment of best-worst scaling, explaining how to implement, analyze, and apply the theory across a range of disciplines.




Mental Health Service Users in Research


Book Description

In examining how our identity shapes the knowledge we produce, Mental health service users in research considers ways of 'doing research' which bring multiple understandings together effectively, and explains the sociological use of autobiography and its relevance.




Draft Care and Support Bill


Book Description

This paper is published alongside the Government white paper "Caring for our future: reforming care and support" (Cm. 8378, ISBN 9780101837828). The draft Bill takes forward the recommendations of the Law Commission report on adult social care (Law Com. 326, HC 941, session 2010-12, ISBN 9780102971682) which concluded that existing care and support legislation was outdated and confusing, making it difficult for people who need care and support, and carers, to know what they are entitled to and for local authorities to understand their responsibilities. The Bill will: modernise and consolidate the law, clarify entitlements; support broader needs of local communities; simplify the care and support system and processes. Key provisions include: statutory principles which embed the promotion of individual well-being; clear legal entitlements; everyone, including carers, should have a personal budget as part of their care and support plan; duties to ensure care and support continues when a person moves to a different local authority area; a new statutory framework for adult safeguarding. Others sections cover the establishment of Health Education England and the Health Research Authority, and allow for the abolition (subject to consultation) of the Human Fertilisation and Embryology Authority and Human Tissue Authority.




This is Survivor Research


Book Description

There has been a major development in social science research: it is now being carried out by people who had previously only been seen as its subjects. At the forefront are people with experience as mental health service users/survivors who have taken a lead in pioneering a new approach to research which is now commanding increasing attention and respect. "This is Survivor Research" for the first time details this important new approach to research. Written and edited by leaders in the field, the book explores the theory and practice of survivor research, provides practical examples of survivor research and offers guidance for people wishing to carry out such research themselves. This is a groundbreaking book for policy makers, researchers, educators, students, service users and practitioners in the mental health field and beyond, many of whom must address user involvement in their research.




Recovery, Mental Health and Inequality


Book Description

Mental health has long been perceived as a taboo subject in the UK, so much so that mental health services have been marginalised within health and social care. There is even more serious neglect of the specific issues faced by different ethnic minorities. This book uses the rich narratives of the recovery journeys of Chinese mental health service users in the UK – a perceived ‘hard-to-reach group’ and largely invisible in mental health literature – to illustrate the myriad ways that social inequalities such as class, ethnicity and gender contribute to service users' distress and mental ill-health, as well as shape their subsequent recovery journeys. Recovery, Mental Health and Inequality contributes to the debate about the implementation of ‘recovery approach’ in mental health services and demonstrates the importance of tackling structural inequalities in facilitating meaningful recovery. This timely book would benefit practitioners and students in various fields, such as nurses, social workers and mental health postgraduate trainees.