Mothers, Young People and Chronic Illness


Book Description

This title was first published in 2003: Although young people are generally very healthy, it has become clear that many of the health behaviours of young people can have serious consequences later in life. This is particularly so with the management of chronic illness, where poor management can result in serious long-term complications. This book explores how gender differentially affects both the ways in which young people manage chronic illness and the ways in which mothers care for their teenage sons and daughters. Until recently, where gender and health have been linked, the focus has typically been on women rather than men. However, there is growing interest in the health of men, with the recognition that masculinities and health interact in specific, sometimes detrimental ways. Most books examine either women’s, or less commonly, men’s health, but the comparative approach proposed reflects a growing academic and empirical trend which aims to develop new theoretical perspectives both on gender and on the relationship between gender and health. The book also challenges assumptions that gender is static, by exploring the effects of gender at a specific time of transition in the life course. The focus on adolescence is important, as it is seen by many to be the time when heterosexual values are most powerfully pursued and enforced, thus enabling interactions between gender and health to be thrown into relief. The approach adopted takes issue with many current ideas about young people, which tend to portray them as autonomous individuals, acting independently. For example, in terms of health care for young people with a chronic illness, health professionals generally adopt an individualistic approach, stressing the importance of independence for young people. Rather than seeing young people as purely autonomous, this book relocates them within families, in transition between childhood and adulthood and acting interdependently with other family members. Little is known about the complex deci




Tackling Chronic Disease in Europe


Book Description

Chronic conditions and diseases are the leading cause of mortality and morbidity in Europe, accounting for 86% of total premature deaths, and research suggests that complex conditions such as diabetes and depression will impose an even greater health burden in the future - and not only for the rich and elderly in high-income countries, but increasingly for the poor as well as low- and middle-income countries. The epidemiologic and economic analyses in the first part of the book suggest that policy-makers should make chronic disease a priority. This book highlights the issues and focuses on the strategies and interventions that policy-makers have at their disposal to tackle this increasing challenge. Strategic discussed in the second part of this volume include (1) prevention and early detection, (2) new provider qualifications (e.g. nurse practitioners) and settings, (3) disease management programmes and (4) integrated care models. But choosing the right strategies will be difficult, particularly given the limited evidence on effectiveness and cost-effectiveness. In the third part, the book therefore outlines and discusses institutional and organizational challenges for policy-makers and managers: (1) stimulating the development of new effective pharmaceuticals and medical devices, (2) designing appropriate financial incentives, (3) improving coordination, (4) using information and communication technology, and (5) ensuring evaluation. To tackle these challenges successfully, key policy recommendations are made.




Fight Like a Mother


Book Description

FIGHT LIKE A MOTHER is a survival guide, offering personal stories, practical advice, tips, and resources on how to be a mom with a chronic illness. Full of the kind of candid advice you would expect from your BFF, this book gives parents with chronic illness hope, help, and a good laugh. "This is a first. A useful guide for chronically ill parents, written with intense honesty and best-girlfriend humor. FIGHT LIKE A MOTHER is the what we've all been thinking but were afraid to say, with plenty of tips from one-who-has-gone-before. This book should be handed out upon diagnosis." -Alicia King, author of "Healing: The Essential Guide to Helping Others Overcome Grief & Loss", Fighter of SOD "Thank you for putting all of the practical tips that all Chronically Awesome patients need in one place, and in a voice we all can access without falling asleep! I will be recommending this to friends and members of my foundation. Joslyne Decker is truly a Chronically Awesome Super She-ro!" - Julianna Shapiro, Founder and Executive Director of the Chronically Awesome Foundation, Fighter of Bipolar, Ehlers-Danlos Syndrome, Fibromyalgia, Lupus, Osteoarthritis "I really wish I had this book 28 yrs. ago when I was first diagnosed with Lupus. I was just handed photo copies of all the things that could and probably would happen and then told to stay out of the sun. I had 3 small children and thought my life was over. FIGHT LIKE A MOTHER is full of practical, doable ideas and suggestions that will not only be useful to you but will also make you smile and laugh out loud. I believe every Dr. office that deals with chronically ill patients needs to have this book!" -Janet, mother of 3, grandmother of 3, Fighter of Lupus "FIGHT LIKE A MOTHER is at once funny, practical, helpful and hopeful. It fills the gap of information out there about the reality of experiencing chronic illness, and the ways to cope... and even have a good life. Anyone who has chronic illness or knows someone who has it will love this book. It is full of the right kind of information to help yourself and/or your loved ones." -Kate, mother of 2, Fighter of depression




Extreme Parenting


Book Description

[A] valuable addition to the literature on chronic paediatric illness... The book provides an in depth understanding of the path through chronic illness, illustrating the obvious effects on the child, but also the parents, siblings and the family as a whole across the spectrum from the psychological and social to the physical... There is much to be learnt from this book and it deserves careful reading.' - from the Foreword by Hilton Davis, Emeritus Professor of Child Health Psychology, King's College London Parents of children with chronic illnesses experience 'extreme parenting'. Parenting under extreme circumstances, like an extreme sport, challenges us to find our true strengths, to push ourselves physically and emotionally. This book is a guide and a source of support for parents of children with long-term illnesses. Sharon Dempsey argues that by helping parents to cope with their child's condition we are ultimately helping the child, and that parents are better able to live a full, enjoyable life if they have an awareness of strategies and knowledge to cope with the difficulties of dealing with their child with a chronic illness. The guide is packed with practical advice, models of exploration and lists of action points, and will empower parents to be good advocates for their children. It will also provide health professionals with invaluable insights into the demands of living with chronic illness.




Investing in the Health and Well-Being of Young Adults


Book Description

Young adulthood - ages approximately 18 to 26 - is a critical period of development with long-lasting implications for a person's economic security, health and well-being. Young adults are key contributors to the nation's workforce and military services and, since many are parents, to the healthy development of the next generation. Although 'millennials' have received attention in the popular media in recent years, young adults are too rarely treated as a distinct population in policy, programs, and research. Instead, they are often grouped with adolescents or, more often, with all adults. Currently, the nation is experiencing economic restructuring, widening inequality, a rapidly rising ratio of older adults, and an increasingly diverse population. The possible transformative effects of these features make focus on young adults especially important. A systematic approach to understanding and responding to the unique circumstances and needs of today's young adults can help to pave the way to a more productive and equitable tomorrow for young adults in particular and our society at large. Investing in The Health and Well-Being of Young Adults describes what is meant by the term young adulthood, who young adults are, what they are doing, and what they need. This study recommends actions that nonprofit programs and federal, state, and local agencies can take to help young adults make a successful transition from adolescence to adulthood. According to this report, young adults should be considered as a separate group from adolescents and older adults. Investing in The Health and Well-Being of Young Adults makes the case that increased efforts to improve high school and college graduate rates and education and workforce development systems that are more closely tied to high-demand economic sectors will help this age group achieve greater opportunity and success. The report also discusses the health status of young adults and makes recommendations to develop evidence-based practices for young adults for medical and behavioral health, including preventions. What happens during the young adult years has profound implications for the rest of the life course, and the stability and progress of society at large depends on how any cohort of young adults fares as a whole. Investing in The Health and Well-Being of Young Adults will provide a roadmap to improving outcomes for this age group as they transition from adolescence to adulthood.




Depression in Parents, Parenting, and Children


Book Description

Depression is a widespread condition affecting approximately 7.5 million parents in the U.S. each year and may be putting at least 15 million children at risk for adverse health outcomes. Based on evidentiary studies, major depression in either parent can interfere with parenting quality and increase the risk of children developing mental, behavioral and social problems. Depression in Parents, Parenting, and Children highlights disparities in the prevalence, identification, treatment, and prevention of parental depression among different sociodemographic populations. It also outlines strategies for effective intervention and identifies the need for a more interdisciplinary approach that takes biological, psychological, behavioral, interpersonal, and social contexts into consideration. A major challenge to the effective management of parental depression is developing a treatment and prevention strategy that can be introduced within a two-generation framework, conducive for parents and their children. Thus far, both the federal and state response to the problem has been fragmented, poorly funded, and lacking proper oversight. This study examines options for widespread implementation of best practices as well as strategies that can be effective in diverse service settings for diverse populations of children and their families. The delivery of adequate screening and successful detection and treatment of a depressive illness and prevention of its effects on parenting and the health of children is a formidable challenge to modern health care systems. This study offers seven solid recommendations designed to increase awareness about and remove barriers to care for both the depressed adult and prevention of effects in the child. The report will be of particular interest to federal health officers, mental and behavioral health providers in diverse parts of health care delivery systems, health policy staff, state legislators, and the general public.




Mommy Can't Dance


Book Description

Mommy used to do a lot of fun things with me, but now she can't. Now it's my turn to help mommy! It can be sad and confusing for both kids and moms when a mother is hurt or sick and can't do all the things she used to. This simple and sweet book helps children understand limitations. It shares ideas on how kids can help, as well as activities a mom and child can can still do together. It reminds children that they are loved, and the best thing they can do is show love in return. Proceeds from this book will be donated to Dysautonomia International to help fund the research and advocacy of disautonomic disorders.




Why Does Mommy Hurt?


Book Description

The children of people with chronic illness and pain suffer quietly. "Why Does Mommy Hurt?" is a joyful, yet honest, portrayal of family life burdened with chronic illness. This is a delightful story told by a young boy learning to understand and cope with his mother's illness. The story creates natural opportunities for families to talk about both the symptoms of chronic illness, and how they affect family life. Even more importantly, the story puts power into the hands of the children. It also offers a helpful "Tips and Resources" section for parents! This book is appropriate for a wide-variety of illnesses associated with chronic pain, such as: Lupus, Lyme Disease, ME, CFS, Fibromyalgia, Arthritis, Multiple Sclerosis, Autoimmune Disease, and many others.




Nursing Care of Children and Young People with Chronic Illness


Book Description

Children and young people suffering from long-term conditions require continuing support and nursing care throughout their lives. Nursing Care of Children and Young People with Chronic Illness explores chronic disease management in the context of recent developments, including the National Service Framework for Children. It addresses the aetiology of chronic illness and the impact on the child’s family. It also explores holistic approaches to caring for their social, physical and psychological needs, and highlights the importance of the nurse’s role in promoting children and their parents as ‘expert patients’. Nursing Care of Children and Young People with Chronic Illness is a comprehensive, up-to-date resource for nursing students and practitioners on the context, theory and practice of assessing health needs, and the delivery of holistic care and services within a variety of care settings, to enable them to meet the changing needs of children and young people with chronic illnesses and diseases, and their families. The first nursing-specific text related to the care of children & young people with chronic illness Incorporates case studies & scenarios throughout to enable readers to gain an understanding of the application of concepts & theories in practice Covers care aspects of the child and young person in different settings including tertiary, secondary, primary health care and the home Written in the context of the NSF for Children




A Compromised Generation


Book Description

The media has called attention to new ?epidemics? of chronic illness in children, including ADHD, autism, food allergies, asthma, and obesity. Are they real, and if so, why are so many children getting sick? This book, rooted in scientific literature, answers these questions for parents. Many children considered healthy by their pediatricians show subtle signs of ill health. The author explains how to prevent these illnesses, and how to help those who are already ill.