My Girlfriend Has Cystic Fibrosis


Book Description

►►► My Girlfriend has Cystic Fibrosis The Forgotten Medicine, How an Anti-Inflammatory Diet and Sports Positively Influence CF (Cystic Fibrosis) ❝My girlfriend Simone P. is 24 years old. Sadly, she has the incurable disease known as cystic fibrosis (CF). This book should not only be helpful and informative for all patients, but also act as a small guide for all friends, acquaintances and family members who have to deal with this illness sooner or later. Everyone wants the best for their loved ones. As a partner, I see it as my duty to contribute to my girlfriend's psychological well-being and to support her in every situation. As a fitness trainer and nutritionist on the other hand, it is my calling to increase Simone's quality of life to a maximum - as far as I can, of course. In my opinion, a specific diet and the right sports and fitness program have a preventive effect against further disease development of cystic fibrosis and thus have an indirect influence on the life expectancy❞ » For the world you are just someone, but for me you are the world. « › What to expect from this book? ✔ Learn how I, as a partner, deal with this disease ✔ The, in my opinion ,"right" diet for cystic fibrosis ✔ How a conscious diet influences life expectancy and quality ✔ Everything about anti-inflammatory nutrition ✔ Important information on CF-typical diabetes mellitus Type3c (CFRD) ✔ Learn more about Osteoporosis, Gout and Drum Flail Finger in CF ✔ The five most important basic rules in CF in relation to diet and sport ✔ Delicious, high-calorie and healthy recipes for CF patients ✔ The perfect sports program for cystic fibrosis patients › Table of Contents: Chapter 1 - Introduction Remarks Chapter 2 - How I found about CF Chapter 3 - What is Cystic Fibrosis? Chapter 4 - How Can You Help? Chapter 5 - Nutrition as "Cure" ("Cure" related to secondary diseases) Chapter 6 - Calorie Deficit in CF Chapter 7 - Anti-Inflammatory Diet Chapter 8 - Osteoporosis and CF Chapter 9 - Diabetes mellitus in CF Chapter 10 - Gout and CF Chapter 11 - Drum Flail Fingers in CF Chapter 12 - Five Basic Rules for CF Chapter 13 - Recipes for Cystic Fibrosis Chapter 14 - The perfect Sports Program Chapter 15 - Concluding Remarks › 50 Percent of the Revenue: › I would also like you to know that I donate 50 percent of the revenue from this book to institutions for cystic fibrosis research! Therefore, I thank you for your support! « Learn how and why the right diet and sports program can have a preventive effect against CF-typical secondary diseases! » › This book is a guide and in my opinion contains the most important recommendations to delay or even prevent secondary diseases of cystic fibrosis. I take no responsibility for any changes in lifestyle.










Cystic Fibrosis


Book Description













Hodson and Geddes' Cystic Fibrosis


Book Description

Hodson and Geddes' Cystic Fibrosis provides everything the respiratory clinician, pulmonologist or health professional treating patients needs in a single manageable volume. This international and authoritative work brings together current knowledge and has become established in previous editions as a leading reference in the field. This fourth edition includes a wealth of new information, figures, useful videos, and a companion eBook. The basic science that underlies the disease and its progression is outlined in detail and put into a clinical context. Diagnostic and clinical aspects are covered in depth, as well as promising advances such as gene therapies and other novel molecular based treatments. Patient monitoring and the importance of multidisciplinary care are also emphasized. This edition: Features accessible sections reflecting the multidisciplinary nature of the cystic fibrosis care team Contains a chapter written by patients and families about their experiences with the disease Includes expanded coverage of clinical areas, including chapters covering sleep, lung mechanics and the work of breathing, upper airway disease, insulin deficiency and diabetes, bone disease, and sexual and reproductive issues Discusses management both in the hospital and at home Includes a new section on monitoring and discusses the use of databases to improve patient care Covers monitoring in different age groups, exercise testing and the outcomes of clinical trials in these areas Includes chapters devoted to nursing, physiotherapy, psychology, and palliative and spiritual care Throughout, the emphasis is on providing an up-to-date and balanced review of both the clinical and basic science aspects of the subject and reflecting the multidisciplinary nature of the cystic fibrosis care team.




Sex, Intimacy and Living with Life-Shortening Conditions


Book Description

This multi-disciplinary and inclusive collection brings together theoretically informed and empirically focused research on sex, intimacy and reproduction in relation to young people and adults with life-shortening conditions. Advances in healthcare mean that increasing numbers of young people with life-shortening conditions are transitioning into adulthood. Issues such as sex and intimacy, dating and relationships, fertility and having children are increasingly relevant to them and to the people that support them, including families, carers, practitioners and professional education, health and social care agencies. This three-part book explores the relevance and significance of this field, examines everyday experiences, and highlights the challenges faced by individuals and organisations in addressing the needs of such people in daily life and in the context of practice. Drawing on perspectives from sociology, disability studies, epidemiology, health policy, psychotherapy, legal studies, queer studies and nursing, this ground-breaking volume is written by academics, policy makers, practitioners and experts by experience. It is an essential read for all those practising and researching in the fields of sexuality, chronic illness and disability and transition.




Salt in My Soul


Book Description

The diaries of a remarkable young woman who was determined to live a meaningful and happy life despite her struggle with cystic fibrosis and a rare superbug—from age fifteen to her death at the age of twenty-five—the inspiration for the original streaming documentary Salt in My Soul “An exquisitely nuanced chronicle of a terrified but hopeful young woman whose life was beginning and ending, all at once.”—Los Angeles Times Diagnosed with cystic fibrosis at the age of three, Mallory Smith grew up to be a determined, talented young woman who inspired others even as she privately raged against her illness. Despite the daily challenges of endless medical treatments and a deep understanding that she’d never lead a normal life, Mallory was determined to “Live Happy,” a mantra she followed until her death. Mallory worked hard to make the most out of the limited time she had, graduating Phi Beta Kappa from Stanford University, becoming a cystic fibrosis advocate well known in the CF community, and embarking on a career as a professional writer. Along the way, she cultivated countless intimate friendships and ultimately found love. For more than ten years, Mallory recorded her thoughts and observations about struggles and feelings too personal to share during her life, leaving instructions for her mother to publish her work posthumously. She hoped that her writing would offer insight to those living with, or loving someone with, chronic illness. What emerges is a powerful and inspiring portrait of a brave young woman and blossoming writer who did not allow herself to be defined by disease. Her words offer comfort and hope to readers, even as she herself was facing death. Salt in My Soul is a beautifully crafted, intimate, and poignant tribute to a short life well lived—and a call for all of us to embrace our own lives as fully as possible.