My Story of Living with a Rare Female Medical and Disease Condition Called Thoracic Lung Endometriosis


Book Description

This is my story of living with a rare condition called Thoracic Lung Endometriosis. This is a rare disease where endometriosis can spread outside of the pelvic area and lines within the uterus and endometriosis grows outside of the uterus and grows in other areas of the body. With my condition endometriosis spread to my lungs and caused my right lungs to collapse. My treatments included medical therapy and surgery. I talk about how this disease affected my health and body, the mental and physical aspects that I went through having lung endometriosis, the surgical procedures, and medical treatments. Having this kind of rare disease meant I had to keep the faith and pray. Support from family and friends helped me to cope with my condition, and holding on and believing that Jesus would bring me through this illness. Thus far it has been well over a year of no further lung collapse. I give thanks to God for healing me. I had knowledgeable physicians that helped my condition improve. I'm happy being able to share with others my testimony of making it through several lung surgeries and to share my story with others.




Living with Lung and Colon Endometriosis


Book Description

In 1958 100 women were written up in the literature with endometriosis on the lung causing it to fill up with fluid and collapse. Catamenial pneumothorax was considered extremely rare, but actually an under-recognized manifestation of catamenial ectopic endometriosis. 2016 record numbers of women have been diagnosed globally with menstrual lung collapse and other presentations referred to as Thoracic Endometriosis Syndrome. KIRKUS REVIEW A plainspoken chronicle of living with a dreadful case of a difficult-to-diagnosis disease. What started as a minor pain just below her ribs would soon begin to impact the authors breathing, and she was eventually diagnosed with pulmonary endometriosis. Endometriosis usually affects the mucous membrane of the uterus, but it can also be a traveler, with endometrial implants attaching themselves to the colon and the lungs. The tissue of the implants sheds, causing a monthly flow of blood that can lead to lung collapse. Desiring to call attention to the little-known disease, the author vibrantly recalls her 13-year struggle with the illness, the three major surgeries she underwent (in Army, Navy and Air Force hospitals) and the seven chest-tube procedures. She charts her progress and backslides, the expression of her symptoms and her close brushes with death. She also includes the surgeons narrative summaries of her operations. During her protracted battle with the disease, she faced countless debilitating procedures, including colonic resections and an abdominal hysterectomy with bilateral salpingo-oophorectomy. Though it may be expected that a military officer address each piece of new bad news with dignity and resolve, readers will still be impressed by Wallaces fortitude, as well as the thoughtful, caring impulse that prompted her to write this book: to alert other women to this obscure, diagnostic nightmare of an illness. A slim but sharp and valuable little book that will go a long way toward helping those who suffer from pulmonary endometriosis. Kirkus Discoveries August 31, 2006 First book published on Pulmonary Endometriosis/Catamenial Pneumothorax




Communities in Action


Book Description

In the United States, some populations suffer from far greater disparities in health than others. Those disparities are caused not only by fundamental differences in health status across segments of the population, but also because of inequities in factors that impact health status, so-called determinants of health. Only part of an individual's health status depends on his or her behavior and choice; community-wide problems like poverty, unemployment, poor education, inadequate housing, poor public transportation, interpersonal violence, and decaying neighborhoods also contribute to health inequities, as well as the historic and ongoing interplay of structures, policies, and norms that shape lives. When these factors are not optimal in a community, it does not mean they are intractable: such inequities can be mitigated by social policies that can shape health in powerful ways. Communities in Action: Pathways to Health Equity seeks to delineate the causes of and the solutions to health inequities in the United States. This report focuses on what communities can do to promote health equity, what actions are needed by the many and varied stakeholders that are part of communities or support them, as well as the root causes and structural barriers that need to be overcome.




Clinical Case Studies for the Family Nurse Practitioner


Book Description

Clinical Case Studies for the Family Nurse Practitioner is a key resource for advanced practice nurses and graduate students seeking to test their skills in assessing, diagnosing, and managing cases in family and primary care. Composed of more than 70 cases ranging from common to unique, the book compiles years of experience from experts in the field. It is organized chronologically, presenting cases from neonatal to geriatric care in a standard approach built on the SOAP format. This includes differential diagnosis and a series of critical thinking questions ideal for self-assessment or classroom use.




EndoMEtriosis


Book Description

From the award-winning Dr. Tamer Seckin comes a book written for all of the Endo Warriors out there, from the thirteen-year-old girl who is being told that her pain is “part of becoming a women,” to the woman who has been misdiagnosed for decades—and needs to know she is not alone. Every girl has the right to be pain-free. To live the life they want to live. The journey toward new and happy lives for young women begins now! Endometriosis is a physically and mentally debilitating disease that has tortured women for centuries. It currently affects 176 million of childbearing age worldwide, including one in ten in the U.S. Despite those startling statistics, this horrific and incurable ailment is still relatively unknown to the general population and medical professionals alike. Symptoms of heavy periods and excruciating pain most often begin in middle school or high school, yet doctors take an average of twelve years to diagnose it in a patient. As a result, these undiagnosed and misdiagnosed women suffer into at least their mid-twenties or early thirties, repeatedly told that the pain is in their minds, that it’s simply part of becoming a woman, or that it’s caused by some other disease or condition. That nonsense must stop, and it must stop now! This book will explain what endo is in terms that adolescents can understand, along with potential remedies, treatments to avoid, and how to manage the psychological and social effects of the disease. It will also include riveting stories from women in their teens and mid-twenties, and from those closest to them such as mothers, fathers, teachers, and coaches. One of the most terrifying aspects of having endo is feeling like nobody believes the pain is real or severe, which can cause a woman to feel scared, isolated, and depressed. This book will fully arm her with the truth and knowledge about the disease so that she can overcome her fears and confidently advocate for herself. If her cry for help has been dismissed by anyone, she will be able to educate them so that they can empathize with her and fully support her in her quest for healing.




NORD Guide to Rare Disorders


Book Description

NORD Guide to Rare Disorders is a comprehensive, practical, authoritative guide to the diagnosis and management of more than 800 rare diseases. The diseases are discussed in a uniform, easy-to-follow format--a brief description, signs and symptoms, etiology, related disorders, epidemiology, standard treatment, investigational treatment, resources, and references.The book includes a complete directory of orphan drugs, a full-color atlas of visual diagnostic signs, and a Master Resource List of support groups and helpful organizations. An index of symptoms and key words offers physicians valuable assistance in finding the information they need quickly.




Every Patient Tells a Story


Book Description

A riveting exploration of the most difficult and important part of what doctors do, by Yale School of Medicine physician Dr. Lisa Sanders, author of the monthly New York Times Magazine column "Diagnosis," the inspiration for the hit Fox TV series House, M.D. "The experience of being ill can be like waking up in a foreign country. Life, as you formerly knew it, is on hold while you travel through this other world as unknown as it is unexpected. When I see patients in the hospital or in my office who are suddenly, surprisingly ill, what they really want to know is, ‘What is wrong with me?’ They want a road map that will help them manage their new surroundings. The ability to give this unnerving and unfamiliar place a name, to know it—on some level—restores a measure of control, independent of whether or not that diagnosis comes attached to a cure. Because, even today, a diagnosis is frequently all a good doctor has to offer." A healthy young man suddenly loses his memory—making him unable to remember the events of each passing hour. Two patients diagnosed with Lyme disease improve after antibiotic treatment—only to have their symptoms mysteriously return. A young woman lies dying in the ICU—bleeding, jaundiced, incoherent—and none of her doctors know what is killing her. In Every Patient Tells a Story, Dr. Lisa Sanders takes us bedside to witness the process of solving these and other diagnostic dilemmas, providing a firsthand account of the expertise and intuition that lead a doctor to make the right diagnosis. Never in human history have doctors had the knowledge, the tools, and the skills that they have today to diagnose illness and disease. And yet mistakes are made, diagnoses missed, symptoms or tests misunderstood. In this high-tech world of modern medicine, Sanders shows us that knowledge, while essential, is not sufficient to unravel the complexities of illness. She presents an unflinching look inside the detective story that marks nearly every illness—the diagnosis—revealing the combination of uncertainty and intrigue that doctors face when confronting patients who are sick or dying. Through dramatic stories of patients with baffling symptoms, Sanders portrays the absolute necessity and surprising difficulties of getting the patient’s story, the challenges of the physical exam, the pitfalls of doctor-to-doctor communication, the vagaries of tests, and the near calamity of diagnostic errors. In Every Patient Tells a Story, Dr. Sanders chronicles the real-life drama of doctors solving these difficult medical mysteries that not only illustrate the art and science of diagnosis, but often save the patients’ lives.




Vagina Problems


Book Description

“In Vagina Problems...Lara Parker unpacks the personal and economic costs of endometriosis.” —Vanity Fair “A refreshingly honest read about living with chronic pain.” —Hello Giggles With unflinching honesty, Lara Parker, the Deputy Director for BuzzFeed, shares her day-to-day challenges of living, working, and loving with chronic pain caused by endometriosis in this raw, darkly humorous, and hopeful memoir. I wasn’t ready to be completely honest about my vagina yet, and the world wasn’t ready for that either. But I was getting there. I wanted the world to know that all of this pain I had been feeling...that it was related to my vagina. Thus, Vagina Problems was born. It was a cutesy name. It was my way of taking this pain and saying, “Whatever. I’m here. I have it. It sucks. Let’s talk about it.” In April 2014, Deputy Editorial Director at BuzzFeed Lara Parker opened up to the world in an article on the website: she suffers from endometriosis. And beyond that? She let the whole world know that she wasn’t having any sex, as sex was excruciatingly painful. Less than a year before, she received not only the diagnosis of endometriosis, but also a diagnosis of pelvic floor dysfunction, vulvodynia, vaginismus, and vulvar vestibulitis. Combined, these debilitating conditions have wreaked havoc on her life, causing excruciating pain throughout her body since she was fourteen years old. These are her Vagina Problems. It was five years before Lara learned what was happening to her body. Five years of doctors insisting she just had “bad period cramps,” or implying her pain was psychological. Shamed and stigmatized, Lara fought back against a medical community biased against women and discovered that the ignorance of many doctors about women’s anatomy was damaging more than just her own life. One in ten women have endometriosis and it takes an average of seven years before they receive an accurate diagnosis—or any relief from this incurable illness’ chronic pain. With candid revelations about her vaginal physical therapy, dating as a straight woman without penetrative sex, coping with painful seizures while at the office, diet and wardrobe malfunctions when your vagina hurts all the time, and the depression and anxiety of feeling unloved, Lara tackles it all in Vagina Problems: Endometriosis, Painful Sex, and Other Taboo Topics with courage, wit, love, and a determination to live her best life.




The CMS Hospital Conditions of Participation and Interpretive Guidelines


Book Description

In addition to reprinting the PDF of the CMS CoPs and Interpretive Guidelines, we include key Survey and Certification memos that CMS has issued to announced changes to the emergency preparedness final rule, fire and smoke door annual testing requirements, survey team composition and investigation of complaints, infection control screenings, and legionella risk reduction.




Bone Health and Osteoporosis


Book Description

This first-ever Surgeon General's Report on bone health and osteoporosis illustrates the large burden that bone disease places on our Nation and its citizens. Like other chronic diseases that disproportionately affect the elderly, the prevalence of bone disease and fractures is projected to increase markedly as the population ages. If these predictions come true, bone disease and fractures will have a tremendous negative impact on the future well-being of Americans. But as this report makes clear, they need not come true: by working together we can change the picture of aging in America. Osteoporosis, fractures, and other chronic diseases no longer should be thought of as an inevitable part of growing old. By focusing on prevention and lifestyle changes, including physical activity and nutrition, as well as early diagnosis and appropriate treatment, Americans can avoid much of the damaging impact of bone disease and other chronic diseases. This Surgeon General's Report brings together for the first time the scientific evidence related to the prevention, assessment, diagnosis, and treatment of bone disease. More importantly, it provides a framework for moving forward. The report will be another effective tool in educating Americans about how they can promote bone health throughout their lives. This first-ever Surgeon General's Report on bone health and osteoporosis provides much needed information on bone health, an often overlooked aspect of physical health. This report follows in the tradition of previous Surgeon Generals' reports by identifying the relevant scientific data, rigorously evaluating and summarizing the evidence, and determining conclusions.