Beyond the HIPAA Privacy Rule


Book Description

In the realm of health care, privacy protections are needed to preserve patients' dignity and prevent possible harms. Ten years ago, to address these concerns as well as set guidelines for ethical health research, Congress called for a set of federal standards now known as the HIPAA Privacy Rule. In its 2009 report, Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research, the Institute of Medicine's Committee on Health Research and the Privacy of Health Information concludes that the HIPAA Privacy Rule does not protect privacy as well as it should, and that it impedes important health research.




Fostering Integrity in Research


Book Description

The integrity of knowledge that emerges from research is based on individual and collective adherence to core values of objectivity, honesty, openness, fairness, accountability, and stewardship. Integrity in science means that the organizations in which research is conducted encourage those involved to exemplify these values in every step of the research process. Understanding the dynamics that support â€" or distort â€" practices that uphold the integrity of research by all participants ensures that the research enterprise advances knowledge. The 1992 report Responsible Science: Ensuring the Integrity of the Research Process evaluated issues related to scientific responsibility and the conduct of research. It provided a valuable service in describing and analyzing a very complicated set of issues, and has served as a crucial basis for thinking about research integrity for more than two decades. However, as experience has accumulated with various forms of research misconduct, detrimental research practices, and other forms of misconduct, as subsequent empirical research has revealed more about the nature of scientific misconduct, and because technological and social changes have altered the environment in which science is conducted, it is clear that the framework established more than two decades ago needs to be updated. Responsible Science served as a valuable benchmark to set the context for this most recent analysis and to help guide the committee's thought process. Fostering Integrity in Research identifies best practices in research and recommends practical options for discouraging and addressing research misconduct and detrimental research practices.




Translational Biotechnology


Book Description

Translational Biotechnology: A Journey from Laboratory to Clinics presents an integrative and multidisciplinary approach to biotechnology to help readers bridge the gaps between fundamental and functional research. The book provides state-of-the-art and integrative views of translational biotechnology by covering topics from basic concepts to novel methodologies. Topics discussed include biotechnology-based therapeutics, pathway and target discovery, biological therapeutic modalities, translational bioinformatics, and system and synthetic biology. Additional sections cover drug discovery, precision medicine and the socioeconomic impact of translational biotechnology. This book is valuable for bioinformaticians, biotechnologists, and members of the biomedical field who are interested in learning more about this promising field. - Explains biotechnology in a different light by using an application-oriented approach - Discusses practical approaches in the development of precision medicine tools, systems and dynamical medicine approaches - Promotes research in the field of biotechnology that is translational in nature, cost-effective and readily available to the community




Hearings


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1981 DOE authorization


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The Forefront of International Higher Education


Book Description

This book honors the academic trajectory and global impact of Philip G. Altbach, one of the most important education comparativists worldwide for over forty years. From his early writings on India and student activism to his recent work on research universities, Altbach has served as a key developer of the expansion of the field to include comparative higher education. His capacity to find, support, and gather the best minds around the world, to organize research teams in order to explore the most relevant issues on comparative higher education has earned him international recognition. His service to the field of comparative higher education is invaluable and incomparable. This festschrift contains original pieces from colleagues and former students following a twofold discussion: the most relevant topics on comparative higher education and particular Altbach’s contributions to this field of work.




Congressional Budget Request


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Making It to the Forefront


Book Description

Nanotechnology, as shortly described as the study of manipulating matter on an atomic and molecular scale, is one of the most dynamic and promising industries, receiving a great deal of attention from researchers, business leaders, investors, and policymakers around the world. In Making It to the Forefront, Nesli Aydogan-Duda has assembled a distinguished group of authors to analyze the particular challenges and opportunities of nanotechnology emergence and management in the developing world. In so doing, they address the issues from several angles, ranging from cultural issues to capital markets, industrial clusters to government policy and legal structure. Drawing from in-depth research and case studies in Turkey, Latin America, India, China, and Iran, and a comparison with the development of the industry in the United states, the authors present a cross-cultural approach, with particular emphasis on the strategic nature of the nanotechnology industry for economic development, consumer welfare, and homeland security. Among the topics they consider are the importance of knowledge transfer from universities to the market and, more generally, the interface between science and its commercialization—and the institutional infrastructure that is necessary to maximize the potential of science and technology. In doing so, the authors provide unprecedented theoretical and empirical contributions to the study of nanotechnology, and, more generally, insight into the complex business, political, and cultural environment that must be established in order for such an industry to thrive in the context of a developing country.