The Patient One


Book Description

Seven former best friends reunite and struggle to heal after the tragic death of one of their own in this evocative and heartrending novel from the New York Times bestselling author of The Gift and Her Secret. When word had gotten out that Andy Warner had committed suicide, everyone in Walnut Creek, Ohio, had been shocked. For seven men and women in their twenties, some Amish, some Mennonite, and some English, each of whom had once counted his or herself as one of Andy’s best friends, it had been extremely painful. And, maybe, a source of guilt. Years have passed since they’d all been together last. Some of them got into trouble. A couple got into arguments. Eventually they all drifted apart. But even though none of them really saw each other anymore, there was a steadfast certainty that they’d always have each other’s backs—even when no one else did. Their bond was that strong…until Andy did the unthinkable. Now the seven remaining friends, still reeling from Andy’s death, have vowed to look after each other again. As far as they’re concerned, it doesn’t matter that they’re now in their twenties and have drifted far apart. They need to connect again…for Andy. With her signature “taut writing” (RT Book Reviews), Shelley Shepard Gray delivers a lyrical and heartfelt tale of friendship and forgiveness.




Registries for Evaluating Patient Outcomes


Book Description

This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.




Patient Number One


Book Description

"In Great Dames, Marie Benner introduces us to a pantheon of women whose lives are both gloriously individual and yet somehow universal. Her subjects range from Jacqueline Kennedy Onassis, who found happiness in her last decade, to Constance Baker Motley, who argued Brown versus the Board of Education before the United States Supreme Court, to Luise Rainer, who won two Academy Awards by age thirty, then fled Hollywood for good. We meet Kitty Carlisle Hart, a professional charmer and tireless advocate of the arts, and Diana Trilling, the intellectual's intellectual, who published her final, splendid memoir at age ninety-one. There are even the Becky Sharps, who maneuvered powerful men to help them ascend: Marietta Tree, Pamela Harriman, and Clare Boothe Luce. And the wonderfully flamboyant Kay Thompson, whose pint-sized creation, Eloise, gave her a place in American cultural history. Finally, there is Thelma Brenner, who was the first great dame her daughter ever knew." "These are women who helped shape a century. Marie Brenner's portraits are intimate, vivid, and true, and full of subtle but important lessons. The way the great dames lived their lives - their rules, their codes, their insistence on certain fundamentals - are models that today's women should consider as they ascend to positions of leadership in a new millennium."--BOOK JACKET.Title Summary field provided by Blackwell North America, Inc. All Rights Reserved




Patient 1


Book Description

Charlotte Raven had never heard of Huntington's Disease when, in her mid-thirties, she discovered that her father was suffering from the illness. Life for her and her young family would never be the same again. Patient 1 is her brutally candid account of coming to terms with this inherited neurodegenerative disease, which can manifest at any time in life for people who carry the faulty gene. As the illness began to take hold of Raven's body, mind and memory, she began to write. She wrote like her life depended on it -- and in many ways she believed it did. Frank and fearless, Patient 1 is an act of self-preservation and a kind of reckoning -- with the illness, with the person she once was, with the person she is now. In an afterword, Raven's doctor Ed Wild explains how doctors and patients like Charlotte are working together in the hope of one day eliminating this disease altogether.




Patient-Reported Outcomes in Performance Measurement


Book Description

Patient-reported outcomes (PROs) are measures of how patients feel or what they are able to do in the context of their health status; PROs are reports, usually on questionnaires, about a patient's health conditions, health behaviors, or experiences with health care that individuals report directly, without modification of responses by clinicians or others; thus, they directly reflect the voice of the patient. PROs cover domains such as physical health, mental and emotional health, functioning, symptoms and symptom burden, and health behaviors. They are relevant for many activities: helping patients and their clinicians make informed decisions about health care, monitoring the progress of care, setting policies for coverage and reimbursement of health services, improving the quality of health care services, and tracking or reporting on the performance of health care delivery organizations. We address the major methodological issues related to choosing, administering, and using PROs for these purposes, particularly in clinical practice settings. We include a framework for best practices in selecting PROs, focusing on choosing appropriate methods and modes for administering PRO measures to accommodate patients with diverse linguistic, cultural, educational, and functional skills, understanding measures developed through both classic and modern test theory, and addressing complex issues relating to scoring and analyzing PRO data.




The Role of Telehealth in an Evolving Health Care Environment


Book Description

In 1996, the Institute of Medicine (IOM) released its report Telemedicine: A Guide to Assessing Telecommunications for Health Care. In that report, the IOM Committee on Evaluating Clinical Applications of Telemedicine found telemedicine is similar in most respects to other technologies for which better evidence of effectiveness is also being demanded. Telemedicine, however, has some special characteristics-shared with information technologies generally-that warrant particular notice from evaluators and decision makers. Since that time, attention to telehealth has continued to grow in both the public and private sectors. Peer-reviewed journals and professional societies are devoted to telehealth, the federal government provides grant funding to promote the use of telehealth, and the private technology industry continues to develop new applications for telehealth. However, barriers remain to the use of telehealth modalities, including issues related to reimbursement, licensure, workforce, and costs. Also, some areas of telehealth have developed a stronger evidence base than others. The Health Resources and Service Administration (HRSA) sponsored the IOM in holding a workshop in Washington, DC, on August 8-9 2012, to examine how the use of telehealth technology can fit into the U.S. health care system. HRSA asked the IOM to focus on the potential for telehealth to serve geographically isolated individuals and extend the reach of scarce resources while also emphasizing the quality and value in the delivery of health care services. This workshop summary discusses the evolution of telehealth since 1996, including the increasing role of the private sector, policies that have promoted or delayed the use of telehealth, and consumer acceptance of telehealth. The Role of Telehealth in an Evolving Health Care Environment: Workshop Summary discusses the current evidence base for telehealth, including available data and gaps in data; discuss how technological developments, including mobile telehealth, electronic intensive care units, remote monitoring, social networking, and wearable devices, in conjunction with the push for electronic health records, is changing the delivery of health care in rural and urban environments. This report also summarizes actions that the U.S. Department of Health and Human Services (HHS) can undertake to further the use of telehealth to improve health care outcomes while controlling costs in the current health care environment.




One Patient at a Time: The K2 Way Playbook for Healthcare & Business Success


Book Description

A Better Way For Doctors & Patients Are you a doctor who wants to give patients the best care, yet struggle with the demands of managing the clinic and the business? Or are you a patient who's tired of poor service, impolite greetings, and providers in a rush? Doctors Jeff and Susan Kegarise are here to give you hope. There is a better way--for both patients and doctors. In One Patient At A Time, they open the doors to their Nashville practice to let patients see how leadership, systems, staff, and doctors combine to deliver patient-focused, relationship-driven care. And they show doctors how to provide this kind of care by giving specific, implementable steps that drive a culture of service to patients--one that patients clearly see as unique, enjoyable, and a better experience than the typical doctor visit. Read this book and you will never look at your healthcare experience or your practice the same. And you will be better for it.




The Addict


Book Description

“A gripping, illuminating book . . . Dr. Stein is drawn, in an almost Sherlock Holmesian way, toward trying to fathom and analyze addicts’ behavior. . . . hauntingly and successfully, Stein lets readers make a doctor’s experiences their own.” — New York Times “Beautifully told… [with] great insight, empathy and compassion.” — Abraham Verghese, author of The Tennis Partner, My Own Country, and Cutting for Stone The Addict is the powerful and revealing narrative of Dr. Michael Stein’s year-long treatment of a young woman addicted to Vicodin. Dr. Stein has followed up his award winning book The Lonely Patient with “a useful, sensible, and often inspiring guide to how the medical profession does—and should—treat the sick, and the sick at heart.” (Francine Prose, O magazine)




Patient Safety and Quality


Book Description

"Nurses play a vital role in improving the safety and quality of patient car -- not only in the hospital or ambulatory treatment facility, but also of community-based care and the care performed by family members. Nurses need know what proven techniques and interventions they can use to enhance patient outcomes. To address this need, the Agency for Healthcare Research and Quality (AHRQ), with additional funding from the Robert Wood Johnson Foundation, has prepared this comprehensive, 1,400-page, handbook for nurses on patient safety and quality -- Patient Safety and Quality: An Evidence-Based Handbook for Nurses. (AHRQ Publication No. 08-0043)." - online AHRQ blurb, http://www.ahrq.gov/qual/nurseshdbk/




The Patient Will See You Now


Book Description

The essential guide by one of America's leading doctors to how digital technology enables all of us to take charge of our health A trip to the doctor is almost a guarantee of misery. You'll make an appointment months in advance. You'll probably wait for several hours until you hear "the doctor will see you now"-but only for fifteen minutes! Then you'll wait even longer for lab tests, the results of which you'll likely never see, unless they indicate further (and more invasive) tests, most of which will probably prove unnecessary (much like physicals themselves). And your bill will be astronomical. In The Patient Will See You Now, Eric Topol, one of the nation's top physicians, shows why medicine does not have to be that way. Instead, you could use your smartphone to get rapid test results from one drop of blood, monitor your vital signs both day and night, and use an artificially intelligent algorithm to receive a diagnosis without having to see a doctor, all at a small fraction of the cost imposed by our modern healthcare system. The change is powered by what Topol calls medicine's "Gutenberg moment." Much as the printing press took learning out of the hands of a priestly class, the mobile internet is doing the same for medicine, giving us unprecedented control over our healthcare. With smartphones in hand, we are no longer beholden to an impersonal and paternalistic system in which "doctor knows best." Medicine has been digitized, Topol argues; now it will be democratized. Computers will replace physicians for many diagnostic tasks, citizen science will give rise to citizen medicine, and enormous data sets will give us new means to attack conditions that have long been incurable. Massive, open, online medicine, where diagnostics are done by Facebook-like comparisons of medical profiles, will enable real-time, real-world research on massive populations. There's no doubt the path forward will be complicated: the medical establishment will resist these changes, and digitized medicine inevitably raises serious issues surrounding privacy. Nevertheless, the result-better, cheaper, and more human health care-will be worth it. Provocative and engrossing, The Patient Will See You Now is essential reading for anyone who thinks they deserve better health care. That is, for all of us.