When Your Child Has a Chronic Medical Illness


Book Description

Written by leading mental health professionals, this warm and accessible parenting book for children with chronic illnesses offers clear, practical guidance for all aspects of the journey. When you're focused on ensuring your child gets the best possible treatments for their symptoms, it's easy to overlook or dismiss the impact the illness can have on your relationships and emotions. This book places your psychological well-being front and center, so you can be the best caregiver possible for your child.




Extreme Parenting


Book Description

[A] valuable addition to the literature on chronic paediatric illness... The book provides an in depth understanding of the path through chronic illness, illustrating the obvious effects on the child, but also the parents, siblings and the family as a whole across the spectrum from the psychological and social to the physical... There is much to be learnt from this book and it deserves careful reading.' - from the Foreword by Hilton Davis, Emeritus Professor of Child Health Psychology, King's College London Parents of children with chronic illnesses experience 'extreme parenting'. Parenting under extreme circumstances, like an extreme sport, challenges us to find our true strengths, to push ourselves physically and emotionally. This book is a guide and a source of support for parents of children with long-term illnesses. Sharon Dempsey argues that by helping parents to cope with their child's condition we are ultimately helping the child, and that parents are better able to live a full, enjoyable life if they have an awareness of strategies and knowledge to cope with the difficulties of dealing with their child with a chronic illness. The guide is packed with practical advice, models of exploration and lists of action points, and will empower parents to be good advocates for their children. It will also provide health professionals with invaluable insights into the demands of living with chronic illness.




Parenting Children with Health Issues


Book Description

Does your child have a health condition which requires special medical or dietary care? Whatever the health issue, you will learn the essential parenting skills you need to help your child comply with medical requirements, cope well with health challenges, and live a hope-filled life. Get practical and compassionate answers to your toughest questions as you discover effective ways to communicate about medical issues with children of all ages. This book will teach you how to: . Encourage your child to love life despite health challenges. . Handle refusal to take medication and do medical treatments. . Skillfully respond to your child's special emotional needs. . Avoid power struggles and other common parenting traps. . Promote responsibility without nagging or lecturing. . Navigate sibling, family and couple relationship issues. . Enable your child to make good self-care decisions.




Raising an Emotionally Healthy Child When a Parent is Sick (A Harvard Medical School Book)


Book Description

For families with a seriously ill parent--advice on helping your children cope from two leading Harvard psychiatrists Based on a Massachusetts General Hospital program, Raising an Emotionally Healthy Child When a Parent is Sick covers how you can address children's concerns when a parent is seriously ill, how to determine how children with different temperaments are really feeling and how to draw them out, ways to ensure the child's financial and emotional security and reassure the child that he or she will be taken care of.




Reaching for Normal


Book Description

When Amy and Dave learned that their six-month-old daughter, Emily, was diagnosed with a slow-growing brain tumor, they were devastated. Throughout her childhood, they managed their daughter's complex cancer, all the while striving just to be an ordinary, normal family. In doing so, Amy kept her emotions close and plastered on smiles, some genuine, as she worked in between cancer clinic appointments, had another baby, and attended cul-de-sac potluck dinners. The smiles were harder to put on when Emily suffered from a massive stroke just before her 8th birthday. Amy suddenly found herself a parent to an active toddler and an almost eight-year-old who could no longer talk, walk, or feed herself. Emily's spirit remained shockingly unscathed. In the end, it was she who reminded the family to laugh, smile, and finally accept that they were anything but ordinary. This memoir of motherhood at its hardest reveals what went on behind closed doors and beneath the smiles, as Amy writes in raw, honest detail about her relationship with her spouse, juggling work demands, raising her typically developing son, and finding lasting friendships throughout each of Emily's setbacks.




Parenting Matters


Book Description

Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.




A Compromised Generation


Book Description

The media has called attention to new ?epidemics? of chronic illness in children, including ADHD, autism, food allergies, asthma, and obesity. Are they real, and if so, why are so many children getting sick? This book, rooted in scientific literature, answers these questions for parents. Many children considered healthy by their pediatricians show subtle signs of ill health. The author explains how to prevent these illnesses, and how to help those who are already ill.




A Different Dream for My Child


Book Description

Devotional meditations for parents of critically or chronically ill children.Author Jolene Philo shares lessons from her own life, as well as the stories of other parents.




Medical Parenting


Book Description

Medical Parenting is the essential guide for parents to take control of their child’s health, from choosing a pediatrician to helping children transition into adulthood. As one of America's Top Doctors™, a mother of two grown children, and a physician and surgeon with over 25 years’ experience, Dr. Jones understands that there is no greater responsibility as a parent than ensuring your child's optimum health. With so much information out there, it can be hard to navigate the medical system. Medical Parenting walks parents through a myriad of scenarios involving children’s health, from choosing that first pediatrician to chronic illness and surgery to nutrition and binge drinking in teenagers, so parents feel confident in their decisions and learn self-care along the way. More than just a medical system how-to, Medical Parenting is told from a physician and mother’s perspective to include heartfelt stories from Dr. Jones’ own journey of self-discovery. Dr. Jones helps parents connect with their children on a personal level as they grow towards adulthood and find their way through the maze of the medical system today.




Nursing Care of Children and Young People with Chronic Illness


Book Description

Children and young people suffering from long-term conditions require continuing support and nursing care throughout their lives. Nursing Care of Children and Young People with Chronic Illness explores chronic disease management in the context of recent developments, including the National Service Framework for Children. It addresses the aetiology of chronic illness and the impact on the child’s family. It also explores holistic approaches to caring for their social, physical and psychological needs, and highlights the importance of the nurse’s role in promoting children and their parents as ‘expert patients’. Nursing Care of Children and Young People with Chronic Illness is a comprehensive, up-to-date resource for nursing students and practitioners on the context, theory and practice of assessing health needs, and the delivery of holistic care and services within a variety of care settings, to enable them to meet the changing needs of children and young people with chronic illnesses and diseases, and their families. The first nursing-specific text related to the care of children & young people with chronic illness Incorporates case studies & scenarios throughout to enable readers to gain an understanding of the application of concepts & theories in practice Covers care aspects of the child and young person in different settings including tertiary, secondary, primary health care and the home Written in the context of the NSF for Children