Responsible Research


Book Description

When 18-year-old Jesse Gelsinger died in a gene transfer study at the University of Pennsylvania, the national spotlight focused on the procedures used to ensure research participants' safety and their capacity to safeguard the well-being of those who volunteer for research studies. Responsible Research outlines a three-pronged approach to ensure the protection of every participant through the establishment of effective Human Research Participant Protection Programs (HRPPPs). The approach includes: Improved research review processes, Recognition and integration of research participants' contributions to the system, and Vigilant maintenance of HRPPP performance. Issues addressed in the book include the need for in-depth, complimentary reviews of science, ethics, and conflict of interest reviews; desired qualifications for investigators and reviewers; the process of informed consent; federal and institutional oversight; and the role of accreditation. Recommendations for areas of key interest include suggestions for legislative approaches, compensation for research-related injury, and the refocusing of the mission of institutional review boards. Responsible Research will be important to anyone interested in the issues that are relevant to the practice of using human subjects as research participants, but especially so to policy makers, research administrators, investigators, and research sponsorsâ€"but also including volunteers who may agree to serve as research participants.




Responsible Conduct of Research


Book Description

Recent scandals and controversies, such as data fabrication in federally funded science, data manipulation and distortion in private industry, and human embryonic stem cell research, illustrate the importance of ethics in science. Responsible Conduct of Research, now in a completely updated second edition, provides an introduction to the social, ethical, and legal issues facing scientists today.




Responsible Research and Innovation


Book Description

Responsible Research and Innovation provides a comprehensive and impartial overview of the European Commission’s Responsible Research and Innovation (RRI) framework, including discussion of both the meaning and aims of the concept, and of its practical application. As a governance framework for research and innovation, RRI involves four key perspectives: ethical, economic/business, legal and governance and political. The book is organised into chapters covering these different dimensions. The authors provide different viewpoints on these aspects, in order to offer guidance from experts in the field, while at the same time acknowledging the interpretative openness of the RRI frameworks.




Implementing Responsible Research and Innovation


Book Description

This open access book offers a unique and practically oriented study of organisational and national conditions for implementing Responsible Research Innovation (RRI) policies and practices. It gives the reader a thorough understanding of the different aspects of RRI, and of barriers and drivers of implementation of RRI related policies. It shows how different organisational and national contexts provide unique challenges and opportunities for bringing RRI into practice. The book provides concrete examples and offers the reader both a theory-based understanding of the topic, as well as guidance for action. The target audience encompasses, in addition to RRI students and scholars in particular, all students and scholars in the field of Science and Technology Studies (STS). The book is also of interest to students and scholars in the fields of research ethics, philosophy of science, organisational governance in the research system and organisational theory more generally. Finally, the book is of use to practitioners in research conducting and funding organisations working to implement RRI.--




Planning Ethically Responsible Research


Book Description

""Two important aspects covered in this text are the ethical considerations in qualitative research methodologies, and the attention that is needed in University Research Ethics Committees to understanding and addressing these methodologies.""




Responsible Research and Innovation Actions in Science Education, Gender and Ethics


Book Description

This book gathers case studies presented at the International Conference on Responsible Research and Innovation in Science, Innovation and Society (RRI-SIS2017). It highlights European initiatives and projects in various domains and contexts, each of which explores how to create guidelines and good practices for Responsible Research and Innovation and how to promote them among citizens, industry stakeholders, policy and decision makers, research funders and educational institutions to foster their adoption as a potential benchmark in establishing RRI processes. Further, the book discusses gender and ethical issues, which are highly relevant for RRI initiatives in connection with representativeness, risks and in some cases, minority rights.




Governance and Sustainability of Responsible Research and Innovation Processes


Book Description

This book provides methods and practical cases and experiences with the aim of stimulating Responsible Research and Innovation (RRI) through the direct engagement of researchers, Civil Society Organisations (CSOs), citizens, industry stakeholders, policy and decision makers, research funders and communicators. The book furthermore aims to advance debate on Responsible Research and Innovation and also to reinforce the RRI community identity. With chapters covering governance, public engagement and inclusion in responsible R&D and innovation processes; RRI actions in science education and communication; gender and ethical issues in RRI initiatives; and sustainability of RRI processes, the book is solidly part of the Europe 2020 strategy to promote a vision for a stronger collaborations between social, natural and physical scientists and the societal actors for a wider dimensions of science and innovation and the role in environmental preservation. Chapters 1 and 3 are open access under a CC BY 4.0 license via link.springer.com.




Responsible Science


Book Description

Responsible Science is a comprehensive review of factors that influence the integrity of the research process. Volume I examines reports on the incidence of misconduct in science and reviews institutional and governmental efforts to handle cases of misconduct. The result of a two-year study by a panel of experts convened by the National Academy of Sciences, this book critically analyzes the impact of today's research environment on the traditional checks and balances that foster integrity in science. Responsible Science is a provocative examination of the role of educational efforts; research guidelines; and the contributions of individual scientists, mentors, and institutional officials in encouraging responsible research practices.




ORI Introduction to the Responsible Conduct of Research


Book Description

Text by Nicholas H. Steneck, illustrations by David Zinn. Issued to further the undertaking of activities and to support programs that enhance education in the responsible conduct of research. Seeks to supplement existing resources by making a comprehensive overview of basic rules for responsible research available to all Public Health Service-funded researchers. Prepared with the needs of small and mid-size research institutions and beginning researchers in mind. Other related products: Developing a Protocol for Observational Comparative Effectiveness Research: A User's Guide --ePub format can be found here: https://bookstore.gpo.gov/products/sku/017-300-00006-7 and here: https://bookstore.gpo.gov/products/sku/999-000-55552-5 Developing a Protocol for Observational Comparative Effectiveness Research: A User's Guide -- MOBI format can be found here: https://bookstore.gpo.gov/products/sku/017-300-00003-2-0 Other products produced by the Agency for Healthcare Research and Quality (AHRQ) within the U.S. Department of Heatlh and Human Services (HHS) can be found here: https://bookstore.gpo.gov/agency/343




Responsible Research Practice


Book Description

This book explores ways in which creative research practice can be explicitly and mindfully geared to make a difference to the quality of social and ecological existence. It offers a range of examples of how different research methods can be employed (and re-tuned) with this intention. The book suggests that what Romm names "active" research involves using the research space responsibly to open up new avenues for thinking and acting on the part of those involved in the inquiry and wider stakeholders. The book includes a discussion of a range of epistemological, ontological, methodological and axiological positions (or paradigms) that can be embraced by inquirers implicitly or explicitly. It details the contours of an epistemology where knowing is recognized to be grounded in social relations, as a matter of ethics. While focusing on discussing the “transformative paradigm” and attendant view of research ethics, it considers to what extent the borders between paradigms can be treated as being permeable in creative and active inquiries. Apart from considering options for enhancing responsible research practice during the process of inquiry (and reconsidering mixed-research designs) the book also considers options for responsible theorizing that is inspirational for pursuing goals of social and ecological justice.