Service Delivery Systems for Individuals with Intellectual and Developmental Disabilities and their Families Across the Lifespan


Book Description

International Review of Research in Developmental Disabilities, Volume 54 shares the latest research on the interactions between families of individuals with intellectual and developmental disabilities and service delivery systems. Chapters discuss Strengthening service access for children of color with autism spectrum disorders, Assessing the service impact of early intervention on young children with IDD and their families, Family-professional partnership with refugee families whose children have disabilities, Post high school transition for individuals with Down syndrome, Supporting families and school professionals to be engaged partners in the transition to adulthood for young adults with disabilities, amongst other timely topics. Provides the most recent scholarly research in the study of developmental disabilities Contains a vast range of perspectives, with many topics covered Presents an excellent resource for academic researchers




Belonging and Resilience in Individuals with Developmental Disabilities


Book Description

This book examines belonging as a key protective factor for enhancing resilience for individuals with intellectual and developmental disabilities and their families. It focuses on understanding intellectual and developmental disabilities and resilience from systemic and social-ecological perspectives, emphasizing the roles of professionals, families, and communities in combating long-standing segregation and health disparities experienced by individuals and families. The volume explores the dimensions of belonging across diverse professional fields using a person-centered approach that acknowledges the significant lifelong role of family members and emphasizes reflective practice for professionals. Chapters present research and innovative strategies to facilitate belonging when working alongside individuals and families. Key areas of coverage include: Family-professional partnerships in working with individuals with intellectual and developmental disabilities across lifespan and community contexts. Spirituality, mental health, and identity in persons with intellectual and developmental disabilities. Research ethics and design in working with individuals with intellectual and developmental disabilities. The diverse needs, desires, and preferences of individuals with intellectual and developmental disabilities. The importance of individualized planning and approaches in fostering belonging for individuals with intellectual and developmental disabilities. Belonging and Resilience in Individuals with Developmental Disabilities is a valuable resource for researchers, professors, and graduate students as well as clinicians, therapists, and related professionals in developmental psychology, family studies, public health, and social work as well as related disciplines, including education policy and politics, behavioral health, and psychiatry.




Health Care for People with Intellectual and Developmental Disabilities across the Lifespan


Book Description

This book provides a broad overview of quality health care for people with intellectual and developmental disabilities (IDD). It focuses on providing the reader a practical approach to dealing with the health and well-being of people with IDD in general terms as well as in dealing with specific conditions. In addition, it offers the reader a perspective from many different points of view in the health care delivery system as well as in different parts of the world. This is the 3rd , and much expanded edition, of a text that was first published in 1989 (Lea and Fibiger). The second edition was published in 2006 (Paul Brookes) and has been used as a formal required text in training programs for physicians, nurses and nurse practitioners as well as by administrators who are responsible for programs serving people with IDD. This book is considered the “Bible” in the field of health care for people with IDD since 1989 when the first edition came out.




The SAGE Encyclopedia of Intellectual and Developmental Disorders


Book Description

This encyclopedia provides an inter-disciplinary approach, discussing the sociocultural viewpoints, policy implications, educational applications and ethical issues involved in a wide range of disorders and interventions.







Prevention Science and Research in Intellectual and Developmental Disabilities


Book Description

Prevention Science and Research in Intellectual and Developmental Disabilities, Volume 61 highlights the WHOs emphasis on the importance of adopting a public health approach. Chapters in the book include A Prevention Science Approach to Promoting Health for Those with Developmental Disabilities, From Surviving to Thriving: A New Conceptual Model to Advance Interventions to Support People with FASD Across the Lifespan, Disability-related Abuse in People with Intellectual and Developmental Disabilities: Considerations Across the Lifespan, Two Sides of the Same Coin: A Qualitative Study of Multiple Stakeholder Perspectives on Factors Affecting Implementation of Evidence-Based Practices for Children with Autism in Elementary Schools, and more. Other topics discussed include Family-Focused Interventions as Prevention and Early Intervention of Behavioral Problems in Children with Autism Spectrum Disorder, Body weight improvements associated with nutritional intervention for adults with IDD living in group homes: A randomized controlled trial, Lifestyle Intervention Adaptation to Promote Healthy Eating and Physical Activity of Youth with Intellectual and Developmental Disability, Cultural Adaptations of the Parents Taking Action Program for Youth with Autism Spectrum Disorder, and more. Includes a framework for integrating a prevention science approach into IDD research Provides examples of prevention science research with IDD populations Illustrates how some are implementing and adapting preventive interventions for those with IDD




Intellectual Disabilities: Health and Social Care Across the Lifespan


Book Description

This textbook provides nurses, allied health and social care professionals with the background knowledge necessary to support individuals with intellectual disabilities and their families. It is a unique and viable resource which is particularly timely, as recent decades have seen a significant change in the demographics and associated care and support needs of this population. The textbook is laid into four sections to provide a logical structure for the content with chapters developing key topic areas relevant to the field. The introductory section sets the overall context for the book and considers the importance of developing an understanding of intellectual disability as a core concept identifying philosophies and models of service that underpin health and social care across the lifespan. Communication as a basis for caring and the overall concept of person-centred caring in a multidisciplinary context is considered. The second section explores key concepts from birth to adulthood exploring the nature of intellectual disability, the child with intellectual disability and other related neurodevelopmental conditions. The third section explores adulthood to older age and considers specific health care needs, understanding behaviour and other fundamental concepts including mental health, ageing and palliative care. The fourth and final section explores the integration of health and social care addressing such issues as supporting and enabling families, education, employment, and sexuality and relationships. Edited by experienced and widely respected professionals, this textbook is written by international practitioners, educators and researchers who all play critical roles in working with individuals with intellectual disability and their families.




Trauma-Informed Health Care


Book Description

This comprehensive reflective resource explores the values, principles and practical applications of trauma-informed and -infused health care. Trauma-Informed Health Care introduces the different types of trauma - including medical and health trauma - and the impact of adversities, social inequalities and stressors. It explores their effects on health and the body, and on people's relationships with health providers. Key issues addressed include the importance of cultural humility, the effects of secondary and vicarious trauma, burnout and moral injury. It also covers the critical issue of organizational trauma: how to avoid practice which has potential to traumatize or retraumatize, and the role of cultural understanding, language, leadership, staff wellbeing and the physical environment. Drawing substantially on the experiences of people who use services and active practitioners, this book spans diverse settings -- from doctor's surgeries to hospitals and allied health services. It reveals how "every interaction can be an intervention" and provides you with practical examples, graphics and reflective exercises to support you to bring about positive change.




Integrated Lifecycle Services for Persons with Disabilities


Book Description

The field of education is under pressure, both external and internal, to improve the services provided to all students. In American society, and elsewhere, there is a concern that current educational practices fail to adequately prepare many students to be productive citizens. There has been a call for educational services that are more responsive to the needs of students, that use effective educational practices, that involve parents and the local community, and that adequately prepare teachers to assume more professional roles. Over the last several decades special educators have addressed these and other critical issues as they relate to students with disabilities. The knowledge gained from these endeavors can be useful in the reshaping of schools for all students, those with disabilities and those without. Indeed, this information may be useful for services beyond school whether for young children or adults. This volume has been written to address how people with disabilities can be effectively served in settings with their nondisabled peers. Because many of the students who are not well served by current educational practices have similar needs as students with disabilities, it is anticipated that some of this information may be useful in the discussion regarding the reshaping of educational systems. It is also anticipated that the mate rial presented will help in the design of more effective coordinated sys tems that serve people with disabilities throughout their lives.




Families and People with Mental Retardation and Quality of Life


Book Description

Revision of papers presented at the Eloisa de Lorenzo Symposium on Family Quality of Life, held July 30-Aug. 1, 2000, in Seattle, Wash.