Surviving HIV/AIDS in the Inner City


Book Description

Surviving HIV/AIDS in the Inner City explores the survival strategies of poor, HIV-positive Puerto Rican women by asking four key questions: Given their limited resources, how did they manage an illness as serious as HIV/AIDS? Did they look for alternatives to conventional medical treatment? Did the challenges they faced deprive them of self-determination, or could they help themselves and each other? What can we learn from these resourceful women? Through an exploration of life and death among these resourceful women, thebook provides the groundwork for inciting positive change in the U.S.




Strong Shadows


Book Description

In this gripping book, gifted writer and veteran AIDS doctor Abigail Zuger shows us the face of the AIDS epidemic among the urban poor, in spare, evocative language that makes her patients live before the reader's eyes. There is Eddie, caring for his wife and himself, trying to keep his children out of foster homes. There is elderly Pauline, HIV-positive herself, caring for her grandchildren and watching her daughters die. There is Shannon, whose symptoms are ultimately traced to a surprising source. In a world beset by crime, drugs, and abandonments large and small, AIDS is the latest and bitterest affliction. Doctors and nurses struggle to care for patients in crowded clinics and emergency rooms, far from international biomedical conferences in expensive hotels, from laboratories and journals in which theories are debated, and from glossy state-of-the-art medical centers. The poor live and die, for the most part, in the shadows. This remarkable and memorable book brings them into the light.




Surviving Aids


Book Description

Surviving AIDS involves making all the right movesand even then, your life is at risk. David W. Driver knows that well: two years after getting married to his wife, Kari-Ann, he discovered that not only did she have HIV, but she was suffering from full-blown AIDS. The disease came on quickly. First, she began to experience numbness in her right hand, fingers, and mouthand then the numbness spread to her entire right arm. Shortly after being diagnosed she came down with pneumonia, usually a very deadly illness in the AIDS community, but she left the hospital a relatively healthy woman. Then came the PML decease that took her life while she was at home. David was relieved when his blood test for HIV came back negative, but his young daughter, Jordyn, was not so lucky. She was diagnosed as having the HIV virus and was expected to live only several more years. Twenty-six years later, Jordyn is enjoying the best health she has ever had thanks to the proper medical treatment. Join David as he shares a scary and inspirational story of survival that can help others going through a similar journey.




The Social Impact of AIDS in the United States


Book Description

Europe's "Black Death" contributed to the rise of nation states, mercantile economies, and even the Reformation. Will the AIDS epidemic have similar dramatic effects on the social and political landscape of the twenty-first century? This readable volume looks at the impact of AIDS since its emergence and suggests its effects in the next decade, when a million or more Americans will likely die of the disease. The Social Impact of AIDS in the United States addresses some of the most sensitive and controversial issues in the public debate over AIDS. This landmark book explores how AIDS has affected fundamental policies and practices in our major institutions, examining: How America's major religious organizations have dealt with sometimes conflicting values: the imperative of care for the sick versus traditional views of homosexuality and drug use. Hotly debated public health measures, such as HIV antibody testing and screening, tracing of sexual contacts, and quarantine. The potential risk of HIV infection to and from health care workers. How AIDS activists have brought about major change in the way new drugs are brought to the marketplace. The impact of AIDS on community-based organizations, from volunteers caring for individuals to the highly political ACT-UP organization. Coping with HIV infection in prisons. Two case studies shed light on HIV and the family relationship. One reports on some efforts to gain legal recognition for nonmarital relationships, and the other examines foster care programs for newborns with the HIV virus. A case study of New York City details how selected institutions interact to give what may be a picture of AIDS in the future. This clear and comprehensive presentation will be of interest to anyone concerned about AIDS and its impact on the country: health professionals, sociologists, psychologists, advocates for at-risk populations, and interested individuals.




HIV Survivors in Sydney


Book Description

Inner-city Sydney was the epicenter of gay life in the Southern hemisphere in the 1970s and early 1980s. Gay men moved from across Australasia to find liberation in the city’s vibrant community networks; and when HIV and AIDS devastated those networks, they grieved, suffered, and survived in ways that have often been left out of the historical record. This book excavates the intimate lives and memories of HIV-positive gay men in Sydney, focusing on the critical years between 1982 and 1996, when HIV went from being a terrifying unidentified disease to a chronic condition that could be managed with antiretroviral medication. Using oral histories and archival research, Cheryl Ware offers a sensitive, moving exploration of how HIV-positive gay men navigated issues around disclosure, health, sex, grief, death, and survival. HIV Survivors in Sydney reveals how gay men dealt with the virus both within and outside of support networks, and how they remember these experiences nearly three decades later.




Surviving HIV


Book Description

Surviving HIV: Growing Up a Secret and Being Positive is the true story of Jamie Gentille, a girl in her 30s who defies the odds by living a healthy and productive life after contracting HIV during a blood transfusion at age 3 during open heart surgery. This book follows Jamie's life as a child, to whom the medical world was a second home, through adolescence and adulthood. Along the way she encounters pain, joy, adversity, despair, ignorance, and above all, hope. Her journey takes the reader through a time when HIV and AIDS was a highly stigmatized terminal disease, to groundbreaking hope in the form of medical advances, to an age of full life expectancy and near normalcy. The book's style is a playful balance between dry, self-deprecating humor, and raw emotion. She describes heartbreaking experiences as a child enduring painful medical procedures, and the terrifying reality of a terminal illness. The book poignantly describes Jamie's process of coming to terms with her own mortality at the age of 10. While the reader is moved by these sobering stories, they will also laugh at loud at Jamie's irreverent humor and light-hearted style. Interwoven throughout Surviving HIV is a theme of stark reality, and enduring optimism that can offer the reader a new perspective on their own lives.




Let the Record Show


Book Description

Winner of the 2022 Lambda Literary LGBTQ Nonfiction Award and the 2022 NLGJA Excellence in Book Writing Award. Finalist for the PEN/John Kenneth Galbriath Award for Nonfiction, the Gotham Book Prize, and the ALA Stonewall Israel Fishman Nonfiction Award. A 2021 New York Times Book Review Notable Book and a New York Times Book Review Editors' Choice. Longlisted for the 2021 Brooklyn Public Library Literary Prize. One of NPR, New York, and The Guardian's Best Books of 2021, one of Buzzfeed's Best LGBTQ+ Books of 2021, one of Electric Literature's Favorite Nonfiction Books of 2021, one of NBC's 10 Most Notable LGBTQ Books of 2021, and one of Gay Times' Best LGBTQ Books of 2021. "This is not reverent, definitive history. This is a tactician’s bible." --Parul Sehgal, The New York Times Twenty years in the making, Sarah Schulman's Let the Record Show is the most comprehensive political history ever assembled of ACT UP and American AIDS activism In just six years, ACT UP, New York, a broad and unlikely coalition of activists from all races, genders, sexualities, and backgrounds, changed the world. Armed with rancor, desperation, intelligence, and creativity, it took on the AIDS crisis with an indefatigable, ingenious, and multifaceted attack on the corporations, institutions, governments, and individuals who stood in the way of AIDS treatment for all. They stormed the FDA and NIH in Washington, DC, and started needle exchange programs in New York; they took over Grand Central Terminal and fought to change the legal definition of AIDS to include women; they transformed the American insurance industry, weaponized art and advertising to push their agenda, and battled—and beat—The New York Times, the Catholic Church, and the pharmaceutical industry. Their activism, in its complex and intersectional power, transformed the lives of people with AIDS and the bigoted society that had abandoned them. Based on more than two hundred interviews with ACT UP members and rich with lessons for today’s activists, Let the Record Show is a revelatory exploration—and long-overdue reassessment—of the coalition’s inner workings, conflicts, achievements, and ultimate fracture. Schulman, one of the most revered queer writers and thinkers of her generation, explores the how and the why, examining, with her characteristic rigor and bite, how a group of desperate outcasts changed America forever, and in the process created a livable future for generations of people across the world.




The Sounds of Furious Living


Book Description

Four decades have passed since reports of a mysterious “gay cancer” first appeared in US newspapers. In the ensuing years, the pandemic that would come to be called AIDS changed the world in innumerable ways. It also gave rise to one of the late twentieth century’s largest health-based empowerment movements. Scholars across diverse traditions have documented the rise of the AIDS activist movement, chronicling the impassioned echoes of protestors who took to the streets to demand “drugs into bodies.” And yet not all activism creates echoes. Included among the ranks of 1980s and 1990s-era AIDS activists were individuals whose expressions of empowerment differed markedly from those demanding open access to mainstream pharmaceutical agents. Largely forgotten today, this activist tradition was comprised of individuals who embraced unorthodox approaches for conceptualizing and treating their condition. Rejecting biomedical expertise, they shared alternative clinical paradigms, created underground networks for distributing unorthodox nostrums, and endorsed etiological models that challenged the association between HIV and AIDS. The theatre of their protests was not the streets of New York City’s Greenwich Village but rather their bodies. And their language was not the riotous chants of public demonstration but the often-invisible embrace of contrarian systems for defining and treating their disease. The Sounds of Furious Living seeks to understand the AIDS activist tradition, identifying the historical currents out of which it arose. Embracing a patient-centered, social historical lens, it traces historic shifts in popular understanding of health and perceptions of biomedicine through the nineteenth and twentieth centuries to explain the lasting appeal of unorthodox health activism into the modern era. In asking how unorthodox health activism flourished during the twentieth century’s last major pandemic, Kelly also seeks to inform our understanding of resistance to biomedical authority in the setting of the twenty-first century’s first major pandemic: COVID-19. As a deeply researched portrait of distrust and disenchantment, The Sounds of Furious Living helps explain the persistence of movements that challenge biomedicine’s authority well into a century marked by biomedical innovation, while simultaneously posing important questions regarding the meaning and metrics of patient empowerment in clinical practice.




Post-AIDS Discourse in Health Communication


Book Description

This book examines the discourse of a "post-AIDS" culture, and the medical-discursive shift from crisis and death to survival and living. Contributions from a diverse group of international scholars interrogate and engage with the cultural, social, political, scientific, historical, global, and local consumptions of the term "post-AIDS" from the perspective of meaning-making on health, illness, and well-being. The chapters critique and connect meanings of "post-AIDS" to topics such as neoliberalism; race, gender, and advocacy; disclosure; relationships and intimacy; stigma and structural violence; family and community; migration; work; survival; normativity; NGOs, transnational organizations; aging and end-of-life care; the politics of ART and PrEP; mental illness; campaigns; social media; and religion. Using a range of methodological tools, the scholarship herein asks how "post-AIDS" or the "End of the Epidemic" is communicated and made sense of in everyday discourse, what current meanings are circulated and consumed on and around HIV and AIDS, and provides thorough commentary and critique of a "post-AIDS" time. This book will be an essential read for scholars and students of health communication, sociology of health and illness, medical humanities, political science, and medical anthropology, as well as for policy makers and activists.




Queer Newark


Book Description

Histories of gay and lesbian urban life typically focus on major metropolitan areas like San Francisco and New York, opportunity-filled destinations for LGBTQ migrants from across the country. Yet there are many other queer communities in economically depressed cities with majority Black and Hispanic populations that receive far less attention. Though just a few miles from New York, Newark is one of these cities, and its queer histories have been neglected—until now. Queer Newark charts a history in which working-class people of color are the central actors and in which violence, poverty, and homophobia could never suppress joy, resistance, love, and desire. Drawing from rare archives that range from oral histories to vice squad reports, this collection’s authors uncover the sites and people of Newark’s queer past in bars, discos, ballrooms, and churches. Exploring the intersections of class, race, gender, and sexuality, they offer fresh perspectives on the HIV/AIDS epidemic, community relations with police, Latinx immigration, and gentrification, while considering how to best tell the rich and complex stories of queer urban life. Queer Newark reveals a new side of New Jersey’s largest city while rewriting the history of LGBTQ life in America.