The Disabled State


Book Description

This is a book about the defining assumptions and assumed definition of the welfare state. It is a work that pulls apart social categories like "disability" or "need" and shows how they function politically and where they come from historically. For many years, the welfare state was expanding. In those times, advocates for many new groups of people were able to win through the political process the extension of benefits to their constituents. Definitions of need, worth, and eligibility were changed so that more people became "entitled" to payments. The opposite trend is in effect now. Most advanced industrial states have experienced some form of fiscal crisis, and their governments are taking a hard look at how they define who is eligible for support. One major category is disability. But who is "disabled," and who decides that? Though doctors certify disability for the state, Stone argues that "the concept of disability is fundamentally the result of political conflict about distributive criteria and the appropriate recipients of social aid." The concept also has a social history and a social context today. Despite the very real stigma of the world "disabled" in other settings, being "disabled" for welfare purposes means being morally worthy. Like the "deserving poor" of English Poor Law, the "disabled" would work if they could. Isn't disability something that can be measured scientifically and apolitically determined? That argument breaks down in the face of a simple example: blindness. Many blind people can work, yet because of the obviousness of the condition and sympathy it arouses, the "blind" have always been considered eligible for benefits without question. The concern with "welfare cheats" is not a new one. The author reaches back several centuries to trace the fascinating history of this and other aspects of welfare policy in Germany, England, and the United States. What she finds are elaborate tests to weed out fraudulent applicants (beggars with faked afflictions) and changing criteria to distinguish the able from the "disabled." Author note: Deborah A. Stone is Associate Professor of Political Science a the Massachusetts Institute of Technology. She is author of The Limits of Professional Power: National Health Care in the Federal Republic of Germany.




The Disabled State


Book Description




A Disability History of the United States


Book Description

The first book to cover the entirety of disability history, from pre-1492 to the present Disability is not just the story of someone we love or the story of whom we may become; rather it is undoubtedly the story of our nation. Covering the entirety of US history from pre-1492 to the present, A Disability History of the United States is the first book to place the experiences of people with disabilities at the center of the American narrative. In many ways, it’s a familiar telling. In other ways, however, it is a radical repositioning of US history. By doing so, the book casts new light on familiar stories, such as slavery and immigration, while breaking ground about the ties between nativism and oralism in the late nineteenth century and the role of ableism in the development of democracy. A Disability History of the United States pulls from primary-source documents and social histories to retell American history through the eyes, words, and impressions of the people who lived it. As historian and disability scholar Nielsen argues, to understand disability history isn’t to narrowly focus on a series of individual triumphs but rather to examine mass movements and pivotal daily events through the lens of varied experiences. Throughout the book, Nielsen deftly illustrates how concepts of disability have deeply shaped the American experience—from deciding who was allowed to immigrate to establishing labor laws and justifying slavery and gender discrimination. Included are absorbing—at times horrific—narratives of blinded slaves being thrown overboard and women being involuntarily sterilized, as well as triumphant accounts of disabled miners organizing strikes and disability rights activists picketing Washington. Engrossing and profound, A Disability History of the United States fundamentally reinterprets how we view our nation’s past: from a stifling master narrative to a shared history that encompasses us all.




No Right to Be Idle


Book Description

During the late nineteenth and early twentieth centuries, Americans with all sorts of disabilities came to be labeled as "unproductive citizens." Before that, disabled people had contributed as they were able in homes, on farms, and in the wage labor market, reflecting the fact that Americans had long viewed productivity as a spectrum that varied by age, gender, and ability. But as Sarah F. Rose explains in No Right to Be Idle, a perfect storm of public policies, shifting family structures, and economic changes effectively barred workers with disabilities from mainstream workplaces and simultaneously cast disabled people as morally questionable dependents in need of permanent rehabilitation to achieve "self-care" and "self-support." By tracing the experiences of policymakers, employers, reformers, and disabled people caught up in this epochal transition, Rose masterfully integrates disability history and labor history. She shows how people with disabilities lost access to paid work and the status of "worker--a shift that relegated them and their families to poverty and second-class economic and social citizenship. This has vast consequences for debates about disability, work, poverty, and welfare in the century to come.




The Minority Body


Book Description

Elizabeth Barnes argues compellingly that disability is primarily a social phenomenon—a way of being a minority, a way of facing social oppression, but not a way of being inherently or intrinsically worse off. This is how disability is understood in the Disability Rights and Disability Pride movements; but there is a massive disconnect with the way disability is typically viewed within analytic philosophy. The idea that disability is not inherently bad or sub-optimal is one that many philosophers treat with open skepticism, and sometimes even with scorn. The goal of this book is to articulate and defend a version of the view of disability that is common in the Disability Rights movement. Elizabeth Barnes argues that to be physically disabled is not to have a defective body, but simply to have a minority body.




Pennhurst and the Struggle for Disability Rights


Book Description

Conceived in the era of eugenics as a solution to what was termed the “problem of the feeble-minded,” state-operated institutions subjected people with intellectual and developmental disabilities to a life of compulsory incarceration. One of nearly 300 such facilities in the United States, Pennhurst State School and Hospital was initially hailed as a “model institution” but was later revealed to be a nightmare, where medical experimentation and physical and psychological abuse were rampant. At its peak, more than 3,500 residents were confined at Pennhurst, supervised by a staff of fewer than 600. Using a blended narrative of essays and first-person accounts, this history of Pennhurst examines the institution from its founding during an age of Progressive reform to its present-day exploitation as a controversial Halloween attraction. In doing so, it traces a decades-long battle to reform the abhorrent school and hospital and reveals its role as a catalyst for the disability rights movement. Beginning in the 1950s, parent-advocates, social workers, and attorneys joined forces to challenge the dehumanizing conditions at Pennhurst. Their groundbreaking advocacy, accelerated in 1968 by the explosive televised exposé Suffer the Little Children, laid the foundation for lawsuits that transformed American jurisprudence and ended mass institutionalization in the United States. As a result, Pennhurst became a symbolic force in the disability civil rights movement in America and around the world. Extensively researched and featuring the stories of survivors, parents, and advocates, this compelling history will appeal both to those with connections to Pennhurst and to anyone interested in the history of institutionalization and the disability rights movement.




What Can a Body Do?


Book Description

Named a Best Book of the Year by NPR and LitHub Winner of the 2021 Science in Society Journalism Book Prize A fascinating and provocative new way of looking at the things we use and the spaces we inhabit, and a call to imagine a better-designed world for us all. Furniture and tools, kitchens and campuses and city streets—nearly everything human beings make and use is assistive technology, meant to bridge the gap between body and world. Yet unless, or until, a misfit between our own body and the world is acute enough to be understood as disability, we may never stop to consider—or reconsider—the hidden assumptions on which our everyday environment is built. In a series of vivid stories drawn from the lived experience of disability and the ideas and innovations that have emerged from it—from cyborg arms to customizable cardboard chairs to deaf architecture—Sara Hendren invites us to rethink the things and settings we live with. What might assistance based on the body’s stunning capacity for adaptation—rather than a rigid insistence on “normalcy”—look like? Can we foster interdependent, not just independent, living? How do we creatively engineer public spaces that allow us all to navigate our common terrain? By rendering familiar objects and environments newly strange and wondrous, What Can a Body Do? helps us imagine a future that will better meet the extraordinary range of our collective needs and desires.




Crippled


Book Description

The austerity crisis and threat to disability rights. New updated edition includes the impact of COVID on Britain's 14 million disabled people. In austerity Britain, disabled people have been recast as worthless scroungers. From social care to the benefits system, politicians and the media alike have made the case that Britain’s 12 million disabled people are nothing but a drain on the public purse. In Crippled, journalist and campaigner Frances Ryan exposes the disturbing reality, telling the stories of those most affected by this devastating regime. It is at once both a damning indictment of a safety net so compromised it strangles many of those it catches and a passionate demand for an end to austerity, which hits hardest those most in need.




All the Way to the Top


Book Description

2021 Schneider Family Book Award Young Children's Honor Book (American Library Association) Experience the true story of lifelong activist Jennifer Keelan-Chaffins and her participation in the Capitol Crawl in this inspiring autobiographical picture book. This beautifully illustrated story includes a foreword from Jennifer and backmatter detailing her life and the history of the disability rights movement. This is the story of a little girl who just wanted to go, even when others tried to stop her. Jennifer Keelan was determined to make a change—even if she was just a kid. She never thought her wheelchair could slow her down, but the way the world around her was built made it hard to do even simple things. Like going to school, or eating lunch in the cafeteria. Jennifer knew that everyone deserves a voice! Then the Americans with Disabilities Act, a law that would make public spaces much more accessible to people with disabilities, was proposed to Congress. And to make sure it passed, Jennifer went to the steps of the Capitol building in Washington DC to convince them. And, without her wheelchair, she climbed. ALL THE WAY TO THE TOP! A Rise: A Feminist Book Project Nominee A Junior Library Guild Selection All the Way to the Top is perfect for: Elementary school teachers looking for books to supplement disability rights curriculum and the history of the ADA (find a free Common-Core Aligned Educator Guide at www.sourcebooks.com) Parents looking for social justice picture books, books on activism and for young activists, and inspiring books for girls Parents, teachers, librarians, and guardians looking for beautifully illustrated, inspirational and educational books for young readers in their life




Disabilities of the Color Line


Book Description

"Rather than simply engaging in a triumphalist narrative of overcoming where both disability and disablement are shunned alike, Disabilities of the Color Line argues that Black authors and activists have consistently avowed disability as a part of Black social life in varied and complex ways. Sometimes their affirmation of disability serves to capture how their bodies, minds, and health have been and are made vulnerable to harm and impairment by the state and society. Sometimes their assertion of disability symbolizes a sense of commonality and community that comes not only from a recognition of the shared subjection of blackness and disability but also from a willingness to imagine and create a world distinct from the dominant social order. Through the work of David Walker, Henry Box Brown, William and Ellen Craft, Charles Chesnutt, James Weldon Johnson, and Mamie Till-Mobley, Disabilities of the Color Line examines how Black writer-activists have engaged in an aesthetics of redress: modes of resistance that show how Black communities have rigorously acknowledged disability as a response to forms of racial injury and in the pursuit of racial and disability justice"--