Surviving to Living


Book Description

The intended outcome of rehabilitation is that people with spinal cord injury return to the highest level of function possible and participate in community life. However, little is known about the process of achieving participation from the perspectives of the individuals with SCI who have experienced rehabilitation. The purpose of this study was to describe experiences of rehabilitation after spinal cord injury and the influence of the rehabilitation experiences on the ability to achieve community reintegration from the individuals' perspectives. A qualitative phenomenological approach was used. Six participants who were six months to one year post discharge from initial rehabilitation for an acute spinal cord injury participated in a series of semistructured interviews and confirmatory discussions. Participants described the process of community integration as a transition from surviving to living. Four major themes related to this transition emerged from narrative descriptions: support, psychological adjustment, physical adjustment, and education. Although the intended outcome of rehabilitation is that people with SCI return to the highest level of cummunity participation possible, rehabilitation focuses on support and education that assists people with skills necessary for day to day survival of SCI. Under the traditional continuum of care, support and education to facilitating living skills are lacking. Home and cummunity rehabilitation or other transition programs may better enhance individuals' abilities to participate in community life after discharge from inpatient rehabilitation.




Tetraplegia and Paraplegia


Book Description

Extensively illustrated and easy to use, this practical resource offers clear guidelines and step-by-step sequences for moving and working with individuals with differing levels of paralysis. It serves as both an ideal student textbook and a valuable clinical manual for therapists who see tetraplegic and paraplegic patients. Clear, practical, concise chapters present important information in an easily understandable approach.Spiral-bound format enables the book to lay flat for easy reference in the clinical setting or classroom.Excellent coverage of wheelchairs and wheelchair management is included. All illustrations have been redrawn for increased clarity, to enhance the clinical usefulness of this resource.Audit and evidence-based practice is incorporated throughout.Discussion of patient empowerment is included.The chapter on hands has been expanded to provide more in-depth coverage of this important topic.New discussion of levers has been added to this edition.New chapter on aging offers insight and considerations for treating aging and elderly patients with spinal cord injury.Expanded section on equipment provides details on current and state-of-the-art equipment used in practice.




Genesis, A Portrait of a Spinal Cord Injury


Book Description

Not long after Indiana University had won the NCAA championship in 1981, a young man of twenty was hurriedly riding his bicycle in order to make it on time for a tennis tournament. He had plans for returning to the game after having been sidetracked with the "college life." Although he expected to attend graduate school, he was hoping to play professional tennis one day. He never made it to that tournament. A head-on collision with an automobile had crushed his dreams and also his neck, resulting in a cervical spinal cord injury. As he lay in the intensive care unit unable to move, he listened to music on his Walkman to distract him from his terrible predicament. His favorite tape, "The Lamb" by Genesis, seemed to help keep his attitude positive and hopeful. The following months are torturous and frustrating and he prays for a miracle; near-death experiences that seem too mysterious to comprehend show him that there is life beyond human existence. Then, after finally making it to the rehabilitation unit, he meets other young men in similar situations and they all struggle together to increase their functional abilities. In this rare and candid memoir, Stephen Thompson shares his many tribulations as he experiences new beginnings, both physical and spiritual, and strives for the ultimate goal of any spinal cord injury victim: to walk again.




Spinal Cord Injury


Book Description

A comprehensive approach to complex challenges Here’s the foundational knowledge, skills, and understanding physical therapists need to develop and implement rehabilitation programs for persons living with spinal cord injuries. From coverage of pathology and the pathological repercussions through medical and rehabilitative management to patient and family education, students will be prepared to be effective members of the rehabilitation team. They’ll also understand the importance of psychosocial adaptation and develop insights into their roles in the process.




Roll Models


Book Description

"I thought life was pretty much over." Paul Herman "I was afraid people wouldn''t see me for who I still was." Cathy Green "I didn''t need this to be a better person." Susan Douglas "I wasn''t sure I wanted to live ''this way.''" Kevin Wolitzky The above four people and 49 more just like them went on to find high levels of success and lead satisfying lives. Together they tell 53 stories of moving forward to meet all the challenges, fears, obstacles, and problems common to the life-altering circumstances after spinal cord injury, and doing it without benefit of wealth, large settlements or solid health coverage. Ranging in age from 21 to 67, disabled from three to 48 years they share 931 years of disability experience. Roll Models is a valuable new resource for recently injured people and their families, and for nurses, therapists, psychologists and all other professionals who treat, work with and care for people with spinal cord injury. Straight from the horse''s mouth, survivors explore their experiences with disability and answer many questions those in rehab are asking: Early Thoughts What were your thoughts immediately following injury? What were your initial thoughts and reactions regarding SCI and the future? The First Years What were your biggest fears during that first year or so? How did you get past those early fears? Changes, Obstacles and Solutions How much different are you now, compared to how you were before injury? What''s been the biggest obstacle? How did you address these obstacles? Finding What Works What have been the most difficult things for you to deal with since injury? What''s the worst thing about having an SCI and using a chair? What''s been your biggest loss due to injury? Is SCI the worst thing that ever happened to you? Tell me something about your problem solving skills. How do you deal with stress? What do you do to relieve stress? Salvations, Turning Points and More Was there any one thing that was your "salvation" or key to your success? Was there a turning point for you when you began to feel things were going to get better? What personal factors, habits and beliefs have helped you the most? SCI and Meaning Do you find any meaning, purpose or lessons in your disability? Did any positive opportunities come your way because of your injury? What''s your greatest accomplishment? What are you most proud of? "A wonderful roadmap with many alternate routes to living and thriving with SCI." Minna Hong, SCI survivor and Peer Support Coordinator/Vocational Liaison, Shepherd Center "Avoids the trap of providing a ''one size fits all mentality'' and provides solutions as varied as the individuals used as examples. Accentuates the positives while not sugar coating the difficulties. Essential reading." Jeff Cressy SCI survivor and Director of Consumer and Community Affairs, SCI Project, Rancho Los Amigos "A great resource for people as they venture out into the world, or search for meaning and a deeper, richer life. Filled with examples of real people and their real experiences." Terry Chase, ND, RN; SCI survivor; Patient & Family Education Program Coordinator, Craig Hospital "A wonderful tool for the newly spinal cord injured individual, as well as the therapists and counselors working with them. This certainly hits the mark in capturing important survival strategies." Jack Dahlberg, SCI survivor, Past President of the National Spinal Cord Injury Association "Artfully crafted and organized, Roll Models sensitively portrays life following spinal cord injury. Informative, creative, sensitive, as well as infused with humor and a kind heart. Recommended with my highest accolades."Lester Butt, Ph.D., ABPP, Director of the Department of Psychology, Craig Hospital




Spinal Cord Injuries


Book Description

Spinal Cord Injuries: Psychological, Social, and Vocational Adjustment focuses on the process of adjustment to spinal cord injuries, including rehabilitation, medical intervention, and examination of the daily life of persons with this kind of injury. The book first discusses the consequences of spinal cord injury and rehabilitation as a behavior change process, including physical symptoms of spinal cord injury; rehabilitation process and treatment systems; approach to the concept of adjustment; and suicide and self-neglect. The manuscript also deals with the psychological factors in the adjustment to spinal cord injury. Topics include emotional reactions at onset of spinal cord injury; personality characteristics of persons with spinal cord injury; and factors associated with adjustment to spinal cord injury. The publication takes a look at the social factors in the adjustment to spinal cord injury, as well as the social implications of disability, family relationships, recreation, aging, and task of socialization. The book also reviews the variables related with productivity following spinal cord injury and sexuality and spinal cord injury. The effect of the treatment environment on adjustment to spinal cord injury and therapeutics techniques are discussed. The manuscript is a dependable reference for readers interested in the psychological, social, and productivity implications of spinal cord injuries.