Illness Behavior


Book Description

In August, 1985, the 2nd International Conference on Illness Behaviour was held in Toronto, Ontario, Canada. The first International Conference took place one year previous in Adelaide, South Australia, Australia. This book is based on the proceedings of the second conference. The purpose behind this conference was to facilitate the development of a single integrated model to account for illness experience and presentation. A major focus of the conference was to outline methodological issues related to current behaviour research. A multidiscipl~nary approach was emphasized because of the bias that collaborative efforts are likely to be the most successful in achieving greater understanding of illness behaviour. Significant advances in our knowledge are occurring in all areas of the biological and social sciences, albeit more slowly in the latter areas. Marked specialization in each of these areas has lead to greater difficulty in integrating new knowledge with that of other areas and the development of a meaningful cohesive model to which all can relate. Thus there is a major need for forums such as that provided by this conference.




The Illness Experience


Book Description

Vivid descriptions of the ways individuals and their families make sense of, respond to, cope with and adapt to symptoms and disabilities are provided in this volume in order to encourage students and professionals to embrace human reponses to illness. Topics addressed include adjustments following heart attacks, the experiences of women having hysterectomies, mothers' involvement in their adolescent daughters' abortions and husbands' experiences during their wives' chemotherapy. It also provides outstanding examples of grounded theory and qualitative research.




The Experience of Illness


Book Description




Textbook of Palliative Care Communication


Book Description

'The Textbook of Palliative Care Communication' is the authoritative text on communication in palliative care. Uniquely developed by an interdisciplinary editorial team to address an array of providers including physicians, nurses, social workers, and chaplains, it unites clinicians and academic researchers interested in the study of communication.




Chronic Illness, Vulnerability and Social Work


Book Description

Whilst the body has recently assumed greater sociological significance, there has been less engagement in social work and social care on the bodily experience of health, illness and disease. This innovative volume redresses the balance by exploring chronic illness and social work, through the specific lens of autoimmunity, engaging in wider debates around vulnerability, resistance and the lived experience of ongoing ill-health. Moving beyond existing conceptualisations of vulnerability as an issue of mental distress, ageing, child protection and poverty, Price and Walker demonstrate the role that society has to play in actively engaging the physical body, rather than working around and through it. The book focuses on auto-immune conditions such as lupus, multiple sclerosis, rheumatoid arthritis and scleroderma. Conditions like these allow for an exploration of the materiality of illness which exacerbates social and economic vulnerability and may precipitate personal and social crises, requiring a variety of interventions and support. The risks and challenges associated with chronic illness include disruptions to a sense of self and identity, altered relationships and the renegotiation of roles and responsibilities in a variety of relationships in addition to an economic impact, with the potential for disruption to employment status and financial insecurity. This text opens up a range of debates around some of the central concerns of the social work profession, including vulnerability, ill-health, and independence. It will be of interest to scholars and students of social work, nursing, disability studies, medicine and the social sciences.




The Shared Experience of Illness


Book Description

In the narrative of every human life and family, illness is a prominent character. Even if we have avoided serious illness ourselves, we cannot escape its reach into our circle of family and friends. Illness brings us closer to one another through caregiving and separates us through disability and death, yet little attention has been paid to personal and family illness in psychotherapy. Rather, therapists tend to focus on the psychosocial realm, leaving the biological realm to other physicians and nurses. Susan H. McDaniel, Jeri Hepworth, and William J. Doherty invited therapists who work with individuals and families experiencing chronic illness and disability to describe clinical cases that illustrate their approach to medical family therapy. Contributors then were asked to share a personal story about their experiences with illness, and to explain how those experiences affect the way they work with their clients. Vivid case studies dealing with a range of illnesses, including cancer infertility, schizophrenia, AIDS, heart disease, diabetes, asthma, and multiple sclerosis, show how the therapists' own experiences of illness are relevant to their care of others-and how these experiences can be used to form a healing bond in therapy. Poignant, honest, and illuminating, The Shared Experience of Illness allows us to understand more fully the relationship between the personal and the professional.




Phenomenology of Illness


Book Description

The experience of illness is a universal and substantial part of human existence. Like death, illness raises important philosophical issues. But unlike death, illness, and in particular the experience of being ill, has received little philosophical attention. This may be because illness is often understood as a physiological process that falls within the domain of medical science, and is thus outside the purview of philosophy. In Phenomenology of Illness Havi Carel argues that the experience of illness has been wrongly neglected by philosophers and proposes to fill the lacuna. Phenomenology of Illness provides a distinctively philosophical account of illness. Using phenomenology, the philosophical method for first-person investigation, Carel explores how illness modifies the ill person's body, values, and world. The aim of Phenomenology of Illness is twofold: to contribute to the understanding of illness through the use of philosophy and to demonstrate the importance of illness for philosophy. Contra the philosophical tendency to resist thinking about illness, Carel proposes that illness is a philosophical tool. Through its pathologising effect, illness distances the ill person from taken for granted routines and habits and reveals aspects of human existence that normally go unnoticed. Phenomenology of Illness develops a phenomenological framework for illness and a systematic understanding of illness as a philosophical tool.




The Illness Narratives


Book Description

From one of America's most celebrated psychiatrists, the book that has taught generations of healers why healing the sick is about more than just diagnosing their illness. Modern medicine treats sick patients like broken machines -- figure out what is physically wrong, fix it, and send the patient on their way. But humans are not machines. When we are ill, we experience our illness: we become scared, distressed, tired, weary. Our illnesses are not just biological conditions, but human ones. It was Arthur Kleinman, a Harvard psychiatrist and anthropologist, who saw this truth when most of his fellow doctors did not. Based on decades of clinical experience studying and treating chronic illness, The Illness Narratives makes a case for interpreting the illness experience of patients as a core feature of doctoring. Before Being Mortal, there was The Illness Narratives. It remains today a prescient and passionate case for bridging the gap between patient and practitioner.




Coping with Illness Digitally


Book Description

An examination of “digital coping” involving the use of communication technologies, particularly social media, in responding to illness. Communication technologies have become a valuable resource for responding to the profound challenges posed by illness. Medical websites make it possible to find information about specific health conditions, e-mail provides a means to communicate with health care providers, social network sites can be used to solidify existing relationships, online communities provide opportunities for expanding support networks, and blogs offer a forum for articulating illness-related experiences. In this book, Stephen Rains examines this kind of “digital coping” involving the use of communication technologies, particularly social media, in responding to illness. Synthesizing a diverse body of existing empirical research, Rains offers the first book-length exploration of what it means to cope with illness digitally. Rains examines the implications of digital communication technologies on a series of specific challenges raised by illness and discusses the unique affordances of these technologies as coping resources. He considers patients' motivations for forging relationships online and the structure of those networks; the exchange of social support and the outcomes of sharing illness experiences; online health information searches by patients and surrogates; the effects of Internet use on patient-provider communication; and digital coping mechanisms for end-of-life and bereavement, including telehospice, social media memorials, and online grief support. Finally, Rains presents an original model of digital coping that builds on issues discussed to summarize how and with what effects patients use communication technologies to cope with illness.




Speaking of Sadness


Book Description

"Speaking of Sadness, based on fifty in-depth interviews, provides first-hand accounts of the depression experience while discovering clear regularities in the ways that personal identities are shaped over the course of an "illness career." The new edition of the book is highlighted by a thoroughly new and extensive introduction"--