The Poetics and Politics of Alzheimer’s Disease Life-Writing


Book Description

This book is open access under a CC BY 4.0 license. This is the first book-length exploration of the thoughts and experiences expressed by dementia patients in published narratives over the last thirty years. It contrasts third-person caregiver and first-person patient accounts from different languages and a range of media, focusing on the poetical and political questions these narratives raise: what images do narrators appropriate; what narrative plot do they adapt; and how do they draw on established strategies of life-writing. It also analyses how these accounts engage with the culturally dominant Alzheimer’s narrative that centres on dependence and vulnerability, and addresses how they relate to discourses of gender and aging. Linking literary scholarship to the medico-scientific understanding of dementia as a neurodegenerative condition, this book argues that, first, patients’ articulations must be made central to dementia discourse; and second, committed alleviation of caregiver burden through social support systems and altered healthcare policies requires significantly altered views about aging, dementia, and Alzheimer’s patients.




The Poetics and Politics of Alzheimer’s Disease Life-Writing


Book Description

This book is open access under a CC BY 4.0 license. This is the first book-length exploration of the thoughts and experiences expressed by dementia patients in published narratives over the last thirty years. It contrasts third-person caregiver and first-person patient accounts from different languages and a range of media, focusing on the poetical and political questions these narratives raise: what images do narrators appropriate; what narrative plot do they adapt; and how do they draw on established strategies of life-writing. It also analyses how these accounts engage with the culturally dominant Alzheimer’s narrative that centres on dependence and vulnerability, and addresses how they relate to discourses of gender and aging. Linking literary scholarship to the medico-scientific understanding of dementia as a neurodegenerative condition, this book argues that, first, patients’ articulations must be made central to dementia discourse; and second, committed alleviation of caregiver burden through social support systems and altered healthcare policies requires significantly altered views about aging, dementia, and Alzheimer’s patients.




The Poetics and Politics of Alzheimer's Disease Life-Writing


Book Description

This is the first book-length exploration of the thoughts and experiences expressed by dementia patients in published narratives over the last thirty years. It contrasts third-person caregiver and first-person patient accounts from different languages and a range of media, focusing on the poetical and political questions these narratives raise: what images do narrators appropriate; what narrative plot do they adapt; and how do they draw on established strategies of life-writing. It also analyses how these accounts engage with the culturally dominant Alzheimer's narrative that centres on dependence and vulnerability, and addresses how they relate to discourses of gender and aging. Linking literary scholarship to the medico-scientific understanding of dementia as a neurodegenerative condition, this book argues that, first, patients' articulations must be made central to dementia discourse; and second, committed alleviation of caregiver burden through social support systems and altered healthcare policies requires significantly altered views about aging, dementia, and Alzheimer's patients.




The Poetics and Politics of Alzheimer's Disease Life-Writing


Book Description

This is the first book-length exploration of the thoughts and experiences expressed by dementia patients in published narratives over the last thirty years. It contrasts third-person caregiver and first-person patient accounts from different languages and a range of media, focusing on the poetical and political questions these narratives raise: what images do narrators appropriate; what narrative plot do they adapt; and how do they draw on established strategies of life-writing. It also analyses how these accounts engage with the culturally dominant Alzheimer's narrative that centres on dependence and vulnerability, and addresses how they relate to discourses of gender and aging. Linking literary scholarship to the medico-scientific understanding of dementia as a neurodegenerative condition, this book argues that, first, patients' articulations must be made central to dementia discourse; and second, committed alleviation of caregiver burden through social support systems and altered healthcare policies requires significantly altered views about aging, dementia, and Alzheimer's patients. This work was published by Saint Philip Street Press pursuant to a Creative Commons license permitting commercial use. All rights not granted by the work's license are retained by the author or authors.




Alzheimer's Disease Memoirs


Book Description

This book examines writings by people living with Alzheimer's Disease and their caregivers. Its focus areas include the construction of the self in the face of diminishing linguistic and cognitive abilities, the stigmatization of ageing, the various narrative strategies that these texts (often collaborative) employ, the health activism and advocacy generated via a 'biosociality,' and the ethics of care. It examines the 'disease writing' genre about a condition that ravages the ability to use language. It serves as a "literary" examination of the work done in this area through a critical reading of the memoirs of those with AD and caregivers and a healthy dose of literary theory. The book is a valuable resource for those interested in literary and critical theory and researchers in the field of ageing/dementia studies.




Alzheimer’s Disease in Contemporary U.S. Fiction


Book Description

This volume seeks to bring readers to a deeper understanding of contemporary cultural and social configurations of Alzheimer’s disease by analyzing 21st-century U.S. novels in which the disease plays a key narrative role. Via analysis of selected works, Garrigós considers how the erasure of memory in a person with Alzheimer’s affects our idea of the identity of that person and their sense of belonging to a group. Starting out from three different types of memory (individual, social and cultural), the study focuses on the narrative strategies that authors use to configure how the disease is perceived and represented. This study is significant not only because of what the texts reveal about those with Alzheimer’s, but also for what they say about us - about the authors and readers who are producing and consuming these texts, about how we see this disease, and what our attitudes to it say about contemporary U.S. society.




The Politics of Dementia


Book Description

Memory loss is not always viewed purely as a contingent neurobiological process present in an ageing population; rather, it is frequently related to larger societal issues and political debates. This edited volume examines how different media and genres – novels, auto/biographical writings, documentary as well as fictional films and graphic memoirs – represent dementia for the sake of critical explorations of memory, trauma and contested truths. In ten analytical chapters and one piece of graphic art, the contributors examine the ways in which what might seem to be the individual, ahistorical diseases of dementia are used in contemporary cultural texts to represent and respond to violent historical and political events – ranging from the Holocaust to postcolonial conditions – all of which can prove difficult to remember. Combining approaches from literary studies with insights from memory studies, trauma studies, anthropology, the critical medical humanities and media, film and comics studies, this volume explores the politics of dementia and incites new debates on cultures of remembrance, while remaining attentive to the lived reality of dementia.




Remembering Iris Murdoch


Book Description

This annotated edition of the unpublished letters that Iris Murdoch wrote to Jeffrey Meyers includes her discussion of writers from Conrad to Updike; her quarrel with Rebecca West; and her difficulty with Alzheimer's. With both scholarly insight and personal reflection, this volume will deepen our understanding of Murdoch's complex life and work.




The COVID Pandemic: Essays, Book Reviews, and Poems


Book Description

This book contains several critical essays, book reviews, and poems that address the current pandemic to mark a sad but hopeful first anniversary of COVID. Similar to many academic journals, the Journal of Medical Humanities, in which these contributions were first published, has received a number of submissions during the first year of the pandemic relating directly to it. In the early months, the journal saw an unprecedented number of poetry submissions from physicians who seemed to be turning to verse as a way to memorialize what was happening, to find ways of healing from the devastating number of dying patients, and to capture the exhaustion and anxiety of caring for others day after day without respite. By publishing this selection, the volume editors honor and thank all those who have been caring for patients, teaching and mentoring students, and as such have been contributing to our understanding and awareness of this crisis. Previously published in Journal of Medical Humanities, Volume 42, issue 1, March 2021 Chapters “COVID-19, Contagion, and Vaccine Optimism”, “Virile Infertile Men, and Other Representations of In/Fertile Hegemonic Masculinity in Fiction Television Series”, “Movement as Method: Some Existential and Epistemological Reflections on Dance in the Health Humanities” and “The Ethic of Responsibility: Max Weber’s Verstehen and Shared Decision-Making in Patient-Centred Care” are available open access under a Creative Commons Attribution 4.0 International License via link.springer.com.




Creativity in Later Life


Book Description

This collection begins with two premises: that our understanding of the nature and forms of creativity in later life remains limited and that dialogue between specialists in gerontology, the arts and humanities can produce the crucial new insights that are so obviously needed. Representing the outcome of ongoing dialogue across the disciplinary divide, the contributions of this volume reflect anew on what we share and how we differ; creating new narratives so as to build an understanding of late-life creativity that goes far beyond the narrow confines of the pervasively received idea of ‘late style’. Creativity in Later Life encompasses a range of personal reflections and discussions of the boundaries of creativity, including: Canonical artistic achievements to community art projects Narratives of carers for those living with dementia Analyses of creative theory Through these insightful chapters, the authors consequently offer an understanding of creativity in later life as varied, socialised and - above all - located in the cultural and economic circumstances of the here and now. This title will appeal to academics, practitioners and students in the various gerontological, arts and humanities fields; and to anyone with an interest in the nature of creativity in later life and the forms it takes.