The Potential for Discrimination in Health Insurance Based on Predictive Genetic Tests


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The potential for discrimination in health insurance based on predictive genetic tests : hearing before the Subcommittee on Commerce, Trade, and Consumer Protection of the Committee on Energy and Commerce, House of Representatives, One Hundred Seventh Congress, first session, July 11, 2001.
















Fulfilling the Promise of Genetics Research


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Assessing Genetic Risks


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Raising hopes for disease treatment and prevention, but also the specter of discrimination and "designer genes," genetic testing is potentially one of the most socially explosive developments of our time. This book presents a current assessment of this rapidly evolving field, offering principles for actions and research and recommendations on key issues in genetic testing and screening. Advantages of early genetic knowledge are balanced with issues associated with such knowledge: availability of treatment, privacy and discrimination, personal decision-making, public health objectives, cost, and more. Among the important issues covered: Quality control in genetic testing. Appropriate roles for public agencies, private health practitioners, and laboratories. Value-neutral education and counseling for persons considering testing. Use of test results in insurance, employment, and other settings.




The Potential for Discrimination in Health Insurance Based on Predective Genetic Tests


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Witnesses: Mary E. Davidson, Exec. Dir., Genetic Alliance, Inc.; Constance A. Morella, a Representative in Congress from the State of Maryland; Karen H. Rothenberg, Marjorie Cook Professor of Law, Univ. of Maryland School of Law; Louise M. Slaughter, a Representative in Congress from the State of N.Y.; J. Craig Venter, Pres. & CSO, Celera Genomics; & Donald A. Young, Interim Pres., Health Insurance Assoc. of Amer.




Protecting Against Genetic Discrimination


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Genetic Non-discrimination


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