PSYCHOLOGICAL SUPPORT BY COGNITIVE BEHAVIORAL THERAPY FOR CYSTIC FIBROSIS


Book Description

Cystic fibrosis (CF) is a chronic, life-threatening genetic disorder that impacts not only the respiratory and digestive systems but also an individual's psychological well-being. The continuous battle with illness, medical treatments, and the uncertainty of the future can leave profound emotional and mental imprints on patients and their families. In recent years, the importance of psychological support for those affected by CF has come to light, and among the various therapeutic approaches, Cognitive Behavioral Therapy (CBT) stands out as an effective method for managing the psychological toll of chronic illness. This book, Psychological Support by Cognitive Behavioral Therapy for Cystic Fibrosis, is designed to serve as a comprehensive guide for understanding the psychological challenges faced by CF patients and their families. It aims to highlight how CBT can provide effective tools to help them navigate these difficulties, from managing the trauma of diagnosis to coping with the ongoing physical and emotional pain associated with the disorder. The journey of living with a genetic illness like cystic fibrosis is often filled with uncertainty, fear, and emotional strain. For patients, the impact of the disease goes beyond the physical symptoms—it affects their identity, independence, relationships, and self-worth. Families, too, must cope with the overwhelming stress of caregiving, fear of the future, and the emotional exhaustion that comes with chronic illness. In this book, I combine essential knowledge about the biology, genetics, and medical challenges of CF with an introduction to CBT techniques that can be personalized to address these psychological struggles. I delve into the science behind cystic fibrosis and the complexities of genetic mutations that drive the condition. I also explore the impact of hereditary diseases and offer insights into how behavioral genetics and epigenetics play a role in CF and similar conditions. More than just a theoretical discussion, this book offers actionable tools and strategies based on CBT principles to help CF patients and their families manage anxiety, depression, chronic pain, and the everyday emotional hurdles they encounter. From practical tips on pain management to learning how to live a fulfilling life despite the challenges, this book is meant to be a practical guide for both mental health professionals and those directly affected by CF. I hope that this book can offer not only information but also hope and empowerment for individuals and families facing cystic fibrosis. By integrating psychological support into the treatment of CF, it is possible to improve the quality of life for everyone touched by this difficult journey.




Handbook of Parenting


Book Description

This highly anticipated third edition of the Handbook of Parenting brings together an array of field-leading experts who have worked in different ways toward understanding the many diverse aspects of parenting. Contributors to the Handbook look to the most recent research and thinking to shed light on topics every parent, professional, and policymaker wonders about. Parenting is a perennially "hot" topic. After all, everyone who has ever lived has been parented, and the vast majority of people become parents themselves. No wonder bookstores house shelves of "how-to" parenting books and magazine racks in pharmacies and airports overflow with periodicals that feature parenting advice. However, almost none of these is evidence-based. The Handbook of Parenting is. Period. Each chapter has been written to be read and absorbed in a single sitting, and includes historical considerations of the topic, a discussion of central issues and theory, a review of classical and modern research, and forecasts of future directions of theory and research. Together, the five volumes in the Handbook cover Children and Parenting, the Biology and Ecology of Parenting, Being and Becoming a Parent, Social Conditions and Applied Parenting, and the Practice of Parenting. Volume 1, Children and Parenting, considers parenthood as a functional status in the life cycle: Parents protect, nurture, and teach their progeny, even if human development is more dynamic than can be determined by parental caregiving alone. Volume 1 of the Handbook of Parenting begins with chapters concerned with how children influence parenting. Notable are their more obvious characteristics, like child age or developmental stage; but subtler ones, like child gender, physical state, temperament, mental ability, and other individual-differences factors, are also instrumental. The chapters in Part I, on Parenting across the Lifespan, discuss the unique rewards and special demands of parenting children of different ages and stages – infants, toddlers, youngsters in middle childhood, and adolescents—as well as the modern notion of parent-child relationships in emerging adulthood, adulthood, and old age. The chapters in Part II, on Parenting Children of Varying Status, discuss common issues associated with parenting children of different genders and temperaments as well as unique situations of parenting adopted and foster children and children with a variety of special needs, such as those with extreme talent, born preterm, who are socially withdrawn or aggressive, or who fall on the autistic spectrum, manifest intellectual disabilities, or suffer a chronic health condition.




JIMD Reports, Volume 37


Book Description

JIMD Reports publishes case and short research reports in the area of inherited metabolic disorders. Case reports highlight some unusual or previously unrecorded feature relevant to the disorder, or serve as an important reminder of clinical or biochemical features of a Mendelian disorder.




Cystic Fibrosis, Third Edition


Book Description

This international and authoritative work, which brings together current knowledge in the field of cystic fibrosis, has become established in previous editions as a leading reference in the field. The third edition continues to provide everything that the clinician or allied health professional treating patients with cystic fibrosis will need in a single manageable volume. Thoroughly revised and updated throughout, it reflects the significant advances that have been made in the field since the second edition published in 2000. Cystic Fibrosis evaluates in detail the basic science that underlies the disease and its progression, putting it into a clinical context. Diagnostic and clinical aspects are covered in depth, as are monitoring the condition and the importance of multi-disciplinary care, reflected in the sections into which the new edition has been sub-divided to improve accessibility. Future developments, including novel therapies, are covered in a concluding section. The clinical areas have been much expanded, with the introduction of separate chapters covering sleep, lung mechanics and the work of breathing, upper airway disease, insulin deficiency and diabetes, bone disease, and sexual and reproductive issues. A new section on monitoring discusses the use of databases to improve patient care, and covers monitoring in different age groups, exercise testing and the outcomes of clinical trials in these areas. Separate chapters are devoted to paramedical issues, including nursing, physiotherapy, psychology, and palliative and spiritual care. Throughout, the emphasis is on providing an up-to-date and balanced review of both the clinical and basic sciences aspects of the subject, and to reflect the multi-disciplinary nature of the cystic fibrosis care team. Drawing on the expertise of a team of international specialists from a variety of backgrounds, the third edition of Cystic Fibrosiswill continue to find a broad readership among respiratory physicians, paediatricians, specialist nurses and other health professionals working with patients with cystic fibrosis.




Evaluating Family Programs


Book Description

The diverse composition of American families and changing ways of raising our children have become subjects of intense scrutiny by researchers and policymakers in recent years. Shifting demographics and work patterns, growing numbers of women in the work force, teenage pregnancy, single-parent families, and the deinstitutionalization of the elderly, disabled, and mentally ill--all these trends have significantly affected family life. Evaluating Family Programs effectively bridges the gap between researchers and practitioners in order to bring practical, understandable advice to providers of family programs and to program funders and policymakers. Heather B. Weiss and Francine H. Jacobs have collected in this volume works which move outside the traditional approaches of their disciplines to create new models for delivering and evaluating services. This sets a mood of genuine inquiry and excitement about successful aspects of programs while maintaining openness about the limitations of both research and practice. By expanding the research model, this work is an attempt to understand reciprocal influences of extended family, culture, community, and social institutions. It urges those who advocate program accountability to understand that not all types of evaluations are appropriate for all programs, and it notes that limitations in current evaluation technologies make it difficult to evaluate outcomes. Evaluating Family Programs reminds the reader that in order to develop sound family policy we must look at children and families in context. Beacuse policymakers, program administrators, and informed citizens have come to rely more upon the results of evaluation research, we must improve our methods while not losing sight of its limitations. It is a thought-provoking contribution to the efforts of those who seek to support the American family with compassion, understanding, and realism.




The Textbook of Children's Nursing


Book Description

Divided into three sections, this book provides coverage of the Branch Programme in Children's Nursing. It includes user-friendy content based on lecture plans and activities. It is a useful reading for those students embarking on a course of study in children's nursing.




Basic Concepts in Family Therapy


Book Description

Gain confidence and creativity in your family therapy interventions with new, up-to-date research!Basic Concepts in Family Therapy: An Introductory Text, Second Edition, presents twenty-two basic psychological concepts that therapists may use to understand clients and provide successful services to them. Each chapter focuses on a single concept using material from family therapy literature, basic psychological and clinical research studies, and cross-cultural research studies. Basic Concepts in Family Therapy is particularly useful to therapists working in a family context with child- or adolescent-referred problems, and for students and clinicians treating the problems they see every day in their community. The book builds on the strengths of the first edition, incorporating ideas and articles that have become worthy of investigating since 1990 into the original text. This new edition also introduces five new chapters on resiliency and poverty, adoption, chronic illness, spirituality and religion, and parenting strategies. The new chapters make the book far more relevant for students and clinicians try ing to use family theory and technique in response to the problems they see in their communities. Basic Concepts in Family Therapy will assist you in offering clients better services by providing a deeper understanding of the contemporary family in its various forms, the psychological bonds that shape all families, and the developmental stages of the family life cycle. This exploration of how family demography, stages and life cycles affect family functions is a solid foundation from which all of the therapeutic concepts in this book can be explored. Some of the facets of family therapy you will explore in Basic Concepts in Family Therapy are: the importance of spirituality and religion in family therapy generational boundaries, closeness, and role behaviors managing a family's emotions defining problems and generating and evaluating possible solutions teaching children specific attitudes, values, social skills, and norms transracial adoptions and normative processes and developmental issues of adoptive parents strategies for reducing conflict . . . and much more!Basic Concepts in Family Therapy will help to broaden your understanding of the ways families function in general. You can use the effective concepts explored in this text to make a thorough assessment of the impact of a disorder on a child and on the rest of his or her family, as well as how family dynamics might have shaped or exacerbated the problems. The concepts described in this text can be customized to clients’cultural values to avoid unnecessary resistance. As a new therapist, you will gain confidence in your assessments, and if you are already a seasoned professional, you will gain creativity in your interventions.




Parenting Stress


Book Description

All parents experience stress as they attempt to meet the challenges of caring for their children. This comprehensive book examines the causes and consequences of parenting distress, drawing on a wide array of findings in current empirical research. Kirby Deater-Deckard explores normal and pathological parenting stress, the influences of parents on their children as well as children on their parents, and the effects of biological and environmental factors. Beginning with an overview of theories of stress and coping, Deater-Deckard goes on to describe how parenting stress is linked with problems in adult and child health (emotional problems, developmental disorders, illness); parental behaviors (warmth, harsh discipline); and factors outside the family (marital quality, work roles, cultural influences). The book concludes with a useful review of coping strategies and interventions that have been demonstrated to alleviate parenting stress.







The Assessment of Child and Adolescent Personality


Book Description

Now available in paper for the first time, this volume brings together leading contributors to provide a comprehensive review of theory, research, and practice in child and adolescent personality assessment. Organized for easy reference, the book is divided into four parts. Part I summarizes basic theories, issues, and concepts, setting forth a framework for assessment as a hypothesis- generating, problem-solving process. Part II describes and evaluates a wide range of relevant approaches, tests, and techniques, marshaling the available data and reviewing administration procedures, scoring, and interpretation. In Part III, the process by which personality assessment is translated into effective intervention strategies and programs for children is examined in depth. A summary of major perspectives and recommended practices is presented in Part IV, which also considers future needs and directions for the field.