The Unseen Gifts of Alzheimer's Disease and Dementia


Book Description

SELF IMPROVEMENT Learn how to see the joy and love as we assist people living with dementia and Alzheimers disease Dementia and Alzheimers disease is a devastating diagnosis. How can we, as caregivers, walk through this journey, assisting our loved ones to live life fully? There is a rainbow in the storm, and we, the caregivers, are often the ones that need to be able to look upward. The person with dementia is still the same person that you know; yet he or she is different and unable at times to comprehend what is happening. How can we prepare and embrace these individuals as they travel this road? The frequency of this disease is increasing and now is the time to view it as we do other diseases. People can live fulfilling lives with this disability. We, the caregivers, are the solution as we learn to embrace and enjoy the journey. There is no easy route, and there will be setbacks and crises. I offer this book as simply another tool to assist you along the way. * Discover how you can make a difference through acceptance and gratitude. * Understand the changes that are taking place. * Learn how to take care of yourself. * Find the gifts along the journey.




Alzheimer's Workbook, Holistic Health and Problem Solving for Everyday Care


Book Description

The Alzheimer's Workbook is an in-depth, easy to use guide to help caregivers track, document and understand the behaviors of a loved one with Alzheimer's Disease and other dementia disorders. * Helps caregivers track the Alzheimer's person through the 3 stages of the disease. * Space for notes to chronicle the progression of the disease. * Hundreds of practical, common sense problem solving suggestions to ease the stress of both caregivers and the person with Alzheimer's. The Alzheimer's Workbook was written by Elizabeth Cochran, a home health nurse and case manager with a Masters Degree in Health Education who cared for her mother-in-law for four years in her home.




Keeping Love Alive as Memories Fade


Book Description

Across America and around the world, the five love languages have revitalized relationships and saved marriages from the brink of disaster. Can they also help individuals, couples, and families cope with the devastating diagnosis of Alzheimer's disease (AD)? Coauthors Chapman, Shaw, and Barr give a resounding yes. Their innovative application of the five love languages creates an entirely new way to touch the lives of the five million Americans who have Alzheimer’s, as well as their fifteen million caregivers. At its heart, this book is about how love gently lifts a corner of dementia’s dark curtain to cultivate an emotional connection amid memory loss. This collaborative, groundbreaking work between a healthcare professional, caregiver, and relationship expert will: Provide an overview of the love languages and Alzheimer’s disease, correlate the love languages with the developments of the stages of AD, discuss how both the caregiver and care receiver can apply the love languages, address the challenges and stresses of the caregiver journey, offer personal stories and case studies about maintaining emotional intimacy amidst AD. Keeping Love Alive as Memories Fade is heartfelt and easy to apply, providing gentle, focused help for those feeling overwhelmed by the relational toll of Alzheimer’s. Its principles have already helped hundreds of families, and it can help yours, too.




The Unseen World: A Novel


Book Description

From the New York Times bestselling author of Long Bright River: The moving story of a daughter’s quest to discover the truth about her beloved father’s hidden past. Ada Sibelius is raised by David, her brilliant, eccentric, socially inept single father, who directs a computer science lab in 1980s-era Boston. Home-schooled, Ada accompanies David to work every day; by twelve, she is a painfully shy prodigy. The lab begins to gain acclaim at the same time that David’s mysterious history comes into question. When his mind begins to falter, leaving Ada virtually an orphan, she is taken in by one of David’s colleagues. Soon she embarks on a mission to uncover her father’s secrets: a process that carries her from childhood to adulthood. What Ada discovers on her journey into a virtual universe will keep the reader riveted until The Unseen World’s heart-stopping, fascinating conclusion.




Forgetting Whose We are


Book Description

Alzheimer's disease - a degenerative disease of the central nervous system characterized especially by premature mental deterioration - is the most publicly visible and widely discussed form of a range of disorders known as senile dementia. The nature of Alzheimer's disease, especially its progressive debilitation of the memory, raises key theological issues. What does it mean to be truly human? Does our ability to remember define who we are as persons? When the mind loses its ability to remember, what happens to the life of the soul? When we forget God, does God still remember us? Forgetting Whose We Are offers a Christian understanding of and response to the difficult theological, spiritual, and pastoral problems raised by Alzheimer's disease. Filling an important gap in existing literature by directly confronting the theological challenges of Alzheimer's disease to victims, caregivers, and their communities, the book affirms the classic Christian doctrines that witness to the reality of grace and the promises of salvation even for those who can no longer remember themselves, their families, or their relationship with God.




Palliative Care for Advanced Alzheimer's and Dementia


Book Description

2010 AJN Book of the Year Award Winner in both Gerontologic Nursing and Hospice and Palliative Care! "This book...provides important information on best practices and appropriate ways to care for a person with Alzheimer's and advanced dementia. Drs. Martin and Sabbagh have assembled a team of experts to help craft recommendations that should ultimately become standards that all professional caregivers adopt." -Michael Reagan Son of former President Ronald Reagan President, Reagan Legacy Foundation This book testifies that caregivers can have a monumental impact on the lives of persons with advanced dementia. Through specialized programming and a renewed effort toward patient-centered care, caregivers can profoundly enrich the quality of life for these persons. Providing guidelines for health care professionals, caregivers, and family members, this book introduces palliative care programs and protocols for the treatment of people with advanced dementia. The book is designed to guide professional caregivers in meeting the needs of patients and their families, providing insight into the philosophy, assessment, planning, implementation, and evaluation measures involved in interdisciplinary palliative care. The chapter authors offer guidelines and standards of care based on contributions from nurses, physical therapists, social workers, dietitions, psychologists, family caregivers and pastors. An exhibit at the end of every chapter clearly articulates the standards of care appropriate for all advanced dementia facilities and health care staff. This book helps caregivers: Enhance the physiological, psychological, social, and spiritual well-being of the patient and the patient's family Anticipate and meet the patient's basic human needs: hunger, thirst, body positioning, hygiene, continence, and management of any pain Ensure that the patient's surroundings are safe, comfortable, and homelike Address health care decisions that will support the patient's right to self-determination until the end of life




We Are Our Brains


Book Description

'A blockbuster about the brain ... provocative, fascinating, remarkable' Clive Cookson, Financial Times Everything we think, do and refrain from doing is determined by our brain. From religion to sexuality, it shapes our potential, our desires and our characters. Taking us through every stage in our lives, from the womb to falling in love to old age, Dick Swaab shows that we don't just have brains: we are our brains. 'A giant in the field' Zoe Williams, Guardian 'Engrossing, intriguing and enlightening' Robin Ince 'Enchantingly written' The Times Higher Education 'Wide-ranging, fun and informative ... as an ice-breaker at parties, it is unmatched' Bryan Appleyard, Sunday Times




Who will I be when I die?


Book Description

Christine Bryden was 46 years old when she was diagnosed with dementia, and in this book she describes her remarkable emotional, physical and spiritual journey in the three years immediately following. Offering rare first-hand insights into how it feels to gradually lose the ability to undertake tasks most people take for granted, it is made all the more remarkable by Christine's positivity and strength, and deep sense, drawn in part from her Christian faith, that life continues to have purpose and meaning. Originally published in Australia in 1998, the book is brought up-to-date with a new Foreword, Preface and Appendix, in which Christine explains how the disease has progressed over the years, and how she is today. It also contains many previously unseen photographs of Christine and her family, from around the time of her diagnosis up to the present day. Inspirational and informative in equal measure, Who will I be when I die? will be of interest to other people with dementia and their families, as well as to dementia care professionals.




The Soul of Care


Book Description

A moving memoir and an extraordinary love story that shows how an expert physician became a family caregiver and learned why care is so central to all our lives and yet is at risk in today's world. When Dr. Arthur Kleinman, an eminent Harvard psychiatrist and social anthropologist, began caring for his wife, Joan, after she was diagnosed with early-onset Alzheimer's disease, he found just how far the act of caregiving extended beyond the boundaries of medicine. In The Soul of Care: The Moral Education of a Husband and a Doctor, Kleinman delivers a deeply humane and inspiring story of his life in medicine and his marriage to Joan, and he describes the practical, emotional and moral aspects of caretaking. He also writes about the problems our society faces as medical technology advances and the cost of health care soars but caring for patients no longer seems important. Caregiving is long, hard, unglamorous work--at moments joyous, more often tedious, sometimes agonizing, but it is always rich in meaning. In the face of our current political indifference and the challenge to the health care system, he emphasizes how we must ask uncomfortable questions of ourselves, and of our doctors. To give care, to be "present" for someone who needs us, and to feel and show kindness are deep emotional and moral experiences, enactments of our core values. The practice of caregiving teaches us what is most important in life, and reveals the very heart of what it is to be human.




Elegy for Iris


Book Description

"I was living in a fairy story--the kind with sinister overtones and not always a happy ending--in which a young man loves a beautiful maiden who returns his love but is always disappearing into some unknown and mysterious world, about which she will reveal nothing." So John Bayley describes his life with his wife, Iris Murdoch, one of the greatest contemporary writers in the English-speaking world, revered for her works of philosophy and beloved for her incandescent novels. In Elegy for Iris, Bayley attempts to uncover the real Iris, whose mysterious world took on darker shades as she descended into Alzheimer's disease. Elegy for Iris is a luminous memoir about the beauty of youth and aging, and a celebration of a brilliant life and an undying love.