Book Description

Starred Review. Forman's enormously affecting memoirwinner of the Bread Loaf Writer's Conference Bakeless Prizeabout the drastic disabilities of her extremely premature child poses challenging questions about parenthood and human compassion. Having given birth to twins at just six months' gestation (23 weeks), due to an undetected infection she learned of only much later, the author, living with her husband and three-year-old daughter in Southern California, and aware of the daunting health issues facing these babies, begged the doctors to let them go. However, the doctors refused the do-not-resuscitate order, offering the infants every form of neonatal intensive care available, and while one of the twins died within days, the boy, Evan, survived, spending six months in the hospital before the family could take him home. Evan was plagued by severe developmental difficulties, including seizures, cerebral palsy, mental retardation, congenital heart defect and blindness, and the author writes with unflinching honesty about her raw fear and conflicted feelings. With time, Forman persevered as Evan's advocate, finding solace in friendships with other mothers of special-needs children and open to experimental therapies that might prove helpful. Numbed by the crass exigencies surrounding the burial of one child (cemetery plots, tax forms), and hardened by what she terms post-traumatic stress syndrome, Forman portrays herself (sometimes shockingly) as deeply flawed and forgivingly human. (July) Copyright Reed Business Information, a division of Reed Elsevier Inc. All rights reserved.