Invisible


Book Description

This vital exploration of the ways society overlooks—and fails—young women with disabilities and chronic illnesses is an “essential read for . . . those wondering how to be a better support system” (Library Journal). Michele Lent Hirsch knew she couldn’t be the only woman who has dealt with serious health issues at a young age, as well as the resulting effects on her career, her relationships, and her sense of self. What she found while researching Invisible was a surprisingly large and overlooked population—and now, with long COVID emerging, one that continues to grow. Though young women with serious illness tend to be seen as outliers, young female patients are in fact the primary demographic for many illnesses. They are also one of the most ignored groups in our medical system—a system where young women, especially women of color and trans women, are invisible. And because of expectations about gender and age, young women with health issues must often deal with bias in their careers and personal lives. Lent Hirsch weaves her own experiences together with stories from other women, perspectives from sociologists on structural inequality and inequity, and insights from neuroscientists on misogyny in health research. She shows how health issues and disabilities amplify what women in general already confront: warped beauty standards, workplace sexism, worries about romantic partners, and mistrust of their own bodies. By shining a light on this hidden demographic, Lent Hirsch explores the challenges that all women face.




Young, Sick, and Invisible


Book Description

Drawing on her own deeply personal experiences, Ania Bula explores what it is like to live with unseen chronic disabilities. She paints a vibrant picture of what it is like to be diagnosed with two life-long debilitating conditions as a young adult and relates the challenges and frustrations of dealing with predatory alternative medicine practitioners, arrogant doctors, indifferent bureaucracies, and well-meaning friends and family who always seem to say either the wrong thing—or nothing at all. As she discovered, suddenly everyone's aunt is a health expert and everyone's fad diet a cure. Making matters worse, her physical torment quickly translated into mental stresses. Relationships became strained, while others, including all-important romantic ones, never had a chance to start at all. Wading through a constant stream of ignorance and lies, in a desperate attempt to find peace, to stop the pain, and to return to a more normal life, she submits to being stuffed with powders and magic potions, poked and prodded, and even &“faith healed.&” With honesty and humor, she shares her journey of pain, suffering, and, ultimately, coping, both to help others gain some understanding about what it is like to live with chronic illness—and to help those who might similarly suffer feel less alone, so that they too might start living again.




Surviving and Thriving with an Invisible Chronic Illness


Book Description

“An important antidote to the dogmatic ‘kale and vitamins’ tone of most ‘self-help’ literature.” —Alexa Tsoulis-Reay, senior writer, New York magazine Popular blogger Ilana Jacqueline offers smart and savvy advice, humor, and practical tips for living with an invisible chronic illness. Do you live with a chronic, debilitating, yet invisible condition? You may feel isolated, out of step, judged, lonely, or misunderstood—and that’s on top of dealing with the symptoms of your actual illness. Take heart. You are not alone, although sometimes it can feel that way. Written by a blogger who suffers from an invisible chronic illness, Surviving and Thriving with an Invisible Chronic Illness offers peer-to-peer support to help you stay sane, be your own advocate, and get back to living your life. This compelling guide is written for anyone suffering with an illness no one can see—such as postural orthostatic tachycardia syndrome (POTS), chronic fatigue syndrome (CFS), fibromyalgia, multiple chemical sensitivity (MCS), Lyme disease, lupus, dysautonomia, or even multiple sclerosis (MP). This book will tell you everything you need to know about living with a complicated, invisible condition—from how to balance sex, dating, and relationships to handling work and school with unavoidable absences. You’ll also learn to navigate judg-y or skeptical relatives and strangers and—most importantly—manage your medical care. Suffering from a chronic illness doesn’t mean you can’t live an active, engaged life. This book will show you how.




You Don't Look Sick!


Book Description

Chronicles one person's true life story of illness and her physicians compassionate commentary as they journey through the four stages of chronic illness; Getting Sick, Being Sick, Grief and Acceptance and Living Well. Designed for people at all stages of the chronic illness journey, this book is also illuminating for caregivers and loved ones.




The Edge of Anything


Book Description

A Kirkus Reviews Best Book of 2020 One of A Mighty Girl's Best Books of the Year A Bank Street Best Books 2021 Finalist for the Cybils Awards Len is a loner teen photographer haunted by a past that's stagnated her work and left her terrified she's losing her mind. Sage is a high school volleyball star desperate to find a way around her sudden medical disqualification. Both girls need college scholarships. After a chance encounter, the two develop an unlikely friendship that enables them to begin facing their inner demons. But both Len and Sage are keeping secrets that, left hidden, could cost them everything, maybe even their lives. Set in the North Carolina mountains, this dynamic #ownvoices novel explores grief, mental health, and the transformative power of friendship.




The Invisible Kingdom


Book Description

A NEW YORK TIMES BESTSELLER FINALIST FOR THE 2022 NATIONAL BOOK AWARD FOR NONFICTION Named one of the BEST BOOKS OF 2022 by NPR, The New Yorker, Time, and Vogue “Remarkable.” –Andrew Solomon, The New York Times Book Review "At once a rigorous work of scholarship and a radical act of empathy.”—Esquire "A ray of light into those isolated cocoons of darkness that, at one time or another, may afflict us all.” —The Wall Street Journal "Essential."—The Boston Globe A landmark exploration of one of the most consequential and mysterious issues of our time: the rise of chronic illness and autoimmune diseases A silent epidemic of chronic illnesses afflicts tens of millions of Americans: these are diseases that are poorly understood, frequently marginalized, and can go undiagnosed and unrecognized altogether. Renowned writer Meghan O’Rourke delivers a revelatory investigation into this elusive category of “invisible” illness that encompasses autoimmune diseases, post-treatment Lyme disease syndrome, and now long COVID, synthesizing the personal and the universal to help all of us through this new frontier. Drawing on her own medical experiences as well as a decade of interviews with doctors, patients, researchers, and public health experts, O’Rourke traces the history of Western definitions of illness, and reveals how inherited ideas of cause, diagnosis, and treatment have led us to ignore a host of hard-to-understand medical conditions, ones that resist easy description or simple cures. And as America faces this health crisis of extraordinary proportions, the populations most likely to be neglected by our institutions include women, the working class, and people of color. Blending lyricism and erudition, candor and empathy, O’Rourke brings together her deep and disparate talents and roles as critic, journalist, poet, teacher, and patient, synthesizing the personal and universal into one monumental project arguing for a seismic shift in our approach to disease. The Invisible Kingdom offers hope for the sick, solace and insight for their loved ones, and a radical new understanding of our bodies and our health.




When Force Meets Fate


Book Description

"The gripping prose in this memoir describes a young man, whose life deteriorates from a healthy fitness trainer to the sudden depths of being sick and bedridden with a mysterious illness for years. Jamison’s dedication to life, however fragile, and advocacy, however impossible, have brought out this incredible story of survival." —Stephanie Land, New York Times bestselling author of Maid: Hard Work, Low Pay, and a Mother's Will to Survive At age twenty-two, Jamison Hill was a fitness instructor and competitive bodybuilder who could lift more than four hundred pounds. Five years later, after surviving a tragic car accident that killed the other driver, a rare disease left Jamison bedridden and too weak to hold a water glass. He spent every day lying motionless in bed, his body paralyzed by pain and weakness, his mind hijacked by flashes of crunched metal, broken windshields, and exploding gas tanks. After months of being too sick to express himself, Jamison’s health began to improve along with his ability to tell his story. When Force Meets Fate is an unflinching exploration of the human condition, notably how our limitations and strengths shape our identities and how unexpected events can inevitably alter those perceptions. It’s a story of perseverance—of sheer will and unrelenting fight—but also of overcoming life’s toughest challenges through the power of vulnerability, and how freeing it can be to surrender to the unpredictability of circumstances out of our control.




Big Tree is Sick


Book Description

Snibbles and Big Tree are best friends! They have always hung out together, and Snibbles loves Big Tree very much. When Big Tree unexpectedly falls ill with woodworm, Snibbles is very upset and angry. The illness is a very bad one and Big Tree does not feel well and doesn't want to play for a long time. Poor Snibbles! He wants Big Tree to get better, but he feels as if there is nothing he can do. What can Snibbles and his friends do to help Big Tree through his treatment and recovery? This beautifully illustrated storybook describes the anger and emotion that many children encounter when a close relative or friend is diagnosed with a long-term illness, such as cancer. The story of Big Tree depicts how things are often out of your control and sets out effective strategies for dealing with these emotions. This story features loveable characters and vivid illustrations, as well as activities for children aged 5+ to complete with their parents or professionals in times of illness and loss.




Things Not Seen


Book Description

Winner of American Library Association Schneider Family Book Award! Bobby Phillips is an average fifteen-year-old-boy. Until the morning he wakes up and can't see himself in the mirror. Not blind, not dreaming-Bobby is just plain invisible. There doesn't seem to be any rhyme or reason to Bobby's new condition; even his dad the physicist can't figure it out. For Bobby that means no school, no friends, no life. He's a missing person. Then he meets Alicia. She's blind, and Bobby can't resist talking to her, trusting her. But people are starting to wonder where Bobby is. Bobby knows that his invisibility could have dangerous consequences for his family and that time is running out. He has to find out how to be seen again-before it's too late.




An Invisible Thread


Book Description

Eleven-year-old Maurice must beg for change in order to eat, but when Laura stops to help, they begin a years-long friendship that gives each a new perspective and hope. Includes a list of suggested acts of kindness.