The Patient's Voice


Book Description

See the world through a patient’s eyes…from other side of illness. Pause to see the world beyond the scientific and clinical. Each chapter in the book provides a brief memoir recounting an experience of illness, written either by the patient, a member of the patient’s family, or an advocate for the patient within the medical, legal, or judicial system. As you share their experiences, you’ll gain a deeper understanding of the importance of holistic, patient-centered care. Reviews of the 1st Edition… “...powerful stories...shed light on care giving, spiritual growth, altered self-concept and other aspects of chronic illness.”—ALS Newsletter on the Web “...speak about the most important things clearly, strongly as possible...to do anything else is precious waste of time.”—UMass Magazine “...these accounts...are deep reflections about living with afflictions, relationships, and interactions with the healthcare system.”—Nursing Spectrum "The Patient's Voice: Experiences of Illness is an outstanding collection of autobiographical essays. The 16 narratives, solicited specifically for this book, are skilfully written by both children and adults. The narratives themselves are intensely personal and powerful accounts of self understanding and human triumph over acute physical and psychiatric illness, and chronic disability. As the author notes in her preface, the contributors to The Patient's Voice are "known for their writing ability and the quality of their perceptions" (p. ix).This is a modest description, however, for the contributors are talented writers indeed."- Cathy Lysack, Wayne State University, Detroit MI




The Patient's Voice


Book Description

Do you need to add caring to your course? Do your students need to become more aware of the process patients and families go through as they adapt to an illness or death? Sixteen contemporary autobiographical case studies written by children and adults who have experienced psychiatric and physical illnesses are contained in this extraordinary text. Each case study begins with a brief description of the patient's clinical situation. Chapters are followed by points for discussion and study questions to further direct the exploration of the accounts and enhance students' critical thinking skills.







Patient voices in Britain, 1840–1948


Book Description

Historians have long engaged with Roy Porter’s call for histories that incorporate patients’ voices and experiences. But despite concerted methodological efforts, there has simply not been the degree and breadth of innovation that Porter envisaged. Patients’ voices still often remain obscured. This has resulted in part from assumptions about the limitations of archives, many of which are formed of institutional records written from the perspective of health professionals. Patient voices in Britain repositions patient experiences at the centre of healthcare history, using new types of sources and reading familiar sources in new ways. Focusing on military medicine, Poor Law medicine, disability, psychiatry and sexual health, this collection encourages historians to tackle the ethical challenges of using archival material and to think more carefully about how their work might speak to persistent health inequalities and challenges in health-service delivery.




HealthConsuming


Book Description

Health care costs are the top kitchen table issue facing most Americans. As people are morphing into health consumers, they seek Amazon-like experiences in health care. This book documents how Americans can become full health citizens through universal health care access, data privacy and personal control, investment in social determinants, digital tools, and health engagement.







Living Donor Advocacy


Book Description

The inadequate supply of organs in the United States and other countries continues to drive the reliance on living donor transplantation. In 2000, representatives of the transplant community convened for a meeting on living donation in an effort to provide guidelines to promote the welfare of living donors. The consensus statement that resulted from this meeting recommended that transplant centers retain an Independent Living Donor Advocate (ILDA) to focus on the best interest of the donor. A decade later, nearly every transplant center in the United States, performing living donor surgeries, has incorporated an ILDA into their living donor screening and/or evaluation process Living Donor Advocate provides an overview of living donation and its risks, ethical challenges and future developments​, as well as details about the role a Living Donor Advocate plays in the transplantation process. This book will interest health professionals across various disciplines and patients undergoing transplantation or living donor surgery.







Voice Technology in Healthcare


Book Description

In this book, the editors review information from the top though-leaders in this space and examine real-world case studies of the outcomes and potential of voice technology in healthcare.




Working with Voice Disorders


Book Description

An essential resource for clinicians of varying levels of experience from student to very specializer, "Working with Voice Disorders" provides practical insight and direction into all aspects of voice disorders from assessment and diagnosis to intervention and case management. This second edition retains the successful format of mixing theory and practice, a melding of scientific knowledge with clinical art, which was such a feature of the first edition. In recognition of changes in practice and theory over the past decade, it contains a wealth of new, up-to-date, evidence based material. This blends with a practical approach to clinical efficiencies and management of the voice service. The second edition of "Working with Voice Disorders" provides a sound theoretical framework to this specialism and also offers a rich variety of tried and tested, practical and photocopiable resource material, which is the result of the authors' wide experience, accumulated over several decades in the field of voice therapy. The multi-dimensional structure of the manual allows the clinician to look, not only at specific aspects of patient management, but also at aspects such as clinical effectiveness, clinical efficiencies and service management. The authors' aim is that this resource should provide clinicians with a pragmatic, patient-centred, easy to use and accessible resource, facilitating and informing decision-making along the clinical journey from referral to discharge. The contents of this title include: Anatomy overview; The Spectrum of Voice Disorders; The Case History; Assessment; Treatment Strategies; Management Strategies; Service Provision; Over 50 pages of practical, photocopiable exercises. Photocopiable Appendices: Voice Care Advice; Voice Disorders Summary Chart; Voice Assessment Sheet; Voice Record Sheet; and, Voice Diary.